L
Lisa45
I am so tired and sore. Please tell me if anyone else is having to do this. I am offically listed on the national database for the double lung transplant as of March 4th. Today I had to have a Glofil test. I thought I was going in for a simple test, which became a any all day ordeal and the test from hell called a Glofill. Here is what they did. The glofil starts with drinking a non-radioactive iodine substance mixed in Diet Coke. The Diet Coke doesn't help the flavor at all ( then you try to not throw up.) Then, your first urine sample is taken. This is where being hydrated is an advantage. The specific gravity of this sample determines your initial water-drinking amount. This can be as high as 12 cups ( I had 17!) Before the test begins, you are injected (big shot in the muscle the kind where it is hard to lift your arm and burns going in) with radioactive iodine. Since you're thyroid is already saturated with your initial cocktail, the radioactive stuff avoids your thyroid. The rest of the day (you actually have a hospital room and nurse for the day) consists of drinking the amount of water you're told to drink, having blood drawn, (mine was drawn and has to be out of the same vein 5 times every 30 minutes.) and peeing on demand. That on demand time will be when you least expect, and it's hard to be ready. The CT scan consisted of having an IV installed, In the same vein then lying within a huge spinning wheel. Eventually, the dye was injected into my IV by a gun that looked to be from the set of "Honey, I Shrunk the Kids". And I drove there all by myself!
The reason for the test was because my 24 hour urine collection as part of my evaluation came back below normal. Which means my kidneys are not functioning normally and my Creatine levels are not correct. This has nothing to do with the cyst on my kidney which is common and they will not biopsy right now but just watch. I will have to have this same test every 6 months along with the TEE and heart cath. That I had last week.
So now I am worried that since they found something on my kidney in the abnominal scan, and the CT scan and sent me to a nephrologoist that something is really wrong. But this test was not for Cancer but renial failure and they said it is pretty rear that they do it. Only a few hospitals around the country do it.
Anyone else have experience with this...getting scared. Thanks
Lisa
Lisa
The reason for the test was because my 24 hour urine collection as part of my evaluation came back below normal. Which means my kidneys are not functioning normally and my Creatine levels are not correct. This has nothing to do with the cyst on my kidney which is common and they will not biopsy right now but just watch. I will have to have this same test every 6 months along with the TEE and heart cath. That I had last week.
So now I am worried that since they found something on my kidney in the abnominal scan, and the CT scan and sent me to a nephrologoist that something is really wrong. But this test was not for Cancer but renial failure and they said it is pretty rear that they do it. Only a few hospitals around the country do it.
Anyone else have experience with this...getting scared. Thanks
Lisa
Lisa
