potential New Member Seeking info on Marfans

[LUVMyBirman]

We have a number of members with Marfan's. Friend of the family has a child with Marfan's. (He may join VR.com). Seeking information and support, etc.

Anyone aware of a group similar to VR.com for general Marfan's support/info? I am not certain if there is heart or valve issues at this point. In which case...VR.com would be a great resource. I will be forwarding this thread via email to the family. Hoping it will be chock full of useful links!

Thax.

 

[briansmom]

The marfan site is very good and they also can direct them to a local chapter that would have support groups, etc.

 

[francie12]

http://www.marfanlife.net/forum/index.php