Lp(a) is CAUSAL for AVS!

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Nocturne

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Joined
Feb 29, 2016
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485
Location
Rhode Island
If you are coming here with a normal tricuspid valve and CALCIFIC DEGENERATIVE aortic valve stenosis, don’t let anyone here dump on you for having “done it to yourself”, as happened to me. High Lp(a) is determined by genetics and some people have shockingly high levels of they have more than one copy of a mutant allele that raises it (I have two and my Lp(a) is 13 times normal, triple the “extremely high risk” rate). If you have AVS from high Lp(a), it is likely that your AVS is only one facet of your health problems, as high Lp(a) drives coronary artery disease and other problems as well. Most people here have AVS because they were born with bicuspid valves, and don’t really understand about Lp(a). This is a place for THEM. There are other places for high Lp(a) patients, like the Lp(a) Foundation on Facebook. Find out about the new drugs coming out (Phase 3 trials started this year) that can lower Lp(a) by as much as 90%! Treatment that can slow the progression of your AVS is on the way!

 

pellicle

Professional Dingbat
Joined
Nov 4, 2012
Messages
6,668
Location
Queensland, OzTrayLeeYa
Hi Noct good to see you. @Agian (among others) has missed your charm and helpful posts.

Most people here have AVS because they were born with bicuspid valves,
not to mention those who had other diseases like scarlet fever ...

and don’t really understand about Lp(a).
correct, we're not experts on everything here....

This is a place for THEM.
I'm not sure who "THEM" is but if its people facing AVR and MVR then it is a place for them ... and IF you ever had or ever were facing AVS it will also also be a place for you to mate ... I hope you never need it (which you may not).
 
Last edited:

Protimenow

Well-known member
Joined
Aug 10, 2010
Messages
2,835
Location
California
Yes, Pellicle - and Rheumatic Fever (diagnosed, but it wasn't until the AVR that the pathologist determined that the issue wasn't valve damage from Rheumatic Fever - it was a bicuspid valve that I was born with).
 

rich01

Well-known member
Joined
Aug 23, 2018
Messages
150
Location
Virginia US
My guess is leaky gut may also be a primary driver, I have tricuspid aortic valve with low lp(a), with atherosclerosis including severe aortic stenosis (valve now replaced). A leaky gut can cause massive inflammation. Think about what must happen when undigested food, bacteria, and toxins leak into the blood system.
 

Ladybug

Well-known member
Joined
Jul 30, 2019
Messages
52
If you are coming here with a normal tricuspid valve and CALCIFIC DEGENERATIVE aortic valve stenosis, don’t let anyone here dump on you for having “done it to yourself”, as happened to me. High Lp(a) is determined by genetics and some people have shockingly high levels of they have more than one copy of a mutant allele that raises it (I have two and my Lp(a) is 13 times normal, triple the “extremely high risk” rate). If you have AVS from high Lp(a), it is likely that your AVS is only one facet of your health problems, as high Lp(a) drives coronary artery disease and other problems as well. Most people here have AVS because they were born with bicuspid valves, and don’t really understand about Lp(a). This is a place for THEM. There are other places for high Lp(a) patients, like the Lp(a) Foundation on Facebook. Find out about the new drugs coming out (Phase 3 trials started this year) that can lower Lp(a) by as much as 90%! Treatment that can slow the progression of your AVS is on the way!

I’m fascinated and grateful to read your comments. I’m a 73 year old grandmother that had TAVR in September 2019. My severe AS was supposedly due to the rheumatic fever I had as a child. However, when I was about age 50, I was living near Charleston, SC and they were unable to get my cholesterol lowered. So, they put me under the care of a cholesterol specialist at MUSC who said I have the highest Lp(a) he’d ever seen. He explained, if I remember correctly that Lp(a) is genetically handed down through females, (???). My grandmother died at age 57, in 1957, of her third heart attack. I’m placing a heavy bet that Lp(a) dropped her like a rock. She came from an era where good women got up early, put on an apron, and fixed bacon, eggs, grits, and toast for breakfast. Country ham, potatoes and gravy...on and on. In 1957, nobody was taking cholesterol lowering meds, and if they knew about Lp(a), meaningful help certainly wasn’t reaching anybody. So, I was put on Niaspan. By week two, I was in the ER having a near death allergic reaction. I’m thrilled to death to hear that Lp(a) help is right around the corner. My cardiologist will be getting a portal message from me this week. BLESS YOU!
 

rich01

Well-known member
Joined
Aug 23, 2018
Messages
150
Location
Virginia US
I came across this article and if I had a high lp(a) I would use the information in it as a starting point for developing my strategy. The key concept of the article is to lower ldl-p (particle #) as a means of reducing risk. Also a discussion of supplements that may help as well as references to related scientific articles.
The Cleveland Clinic references a study on this blog page, without citing or linking to it, that looked at 5,000 patients with elevated Lp(a). When the LDL in these patients was brought down (not specified whether this was LDL-C or LDL-P), the “increased risk for mortality from Lp(a) was negligible.”
Can you Lower Lp(a) with Diet and Supplements?
 

newarrior

Have mild AS live in Thailand
Joined
Jun 29, 2019
Messages
59
Location
Bangkok, Thailand
I got my LDL down to the 70's but my HDL is stuck in the 30's and Lp(a) is 88...Wish I could shift these #'s...I have got HDL from 32 to 36...
 

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