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Saw the pacemaker clinician today and am just providing tidbits of info for this thread. You may know all of it. I had read and heard them but did not have as many details.
Note: these were directed at me. My device and rules may be different than yours. But some of this applies to everyone. It is a "pacemaker" (specifically, a Biotronik Edora 8 DR-T):

Airport Security: At an airport security stop they recommend the hand wand and you asking that they not run it directly over the pacemaker. If they do, it causes the pacemaker to go off-program during the time they pass the wand over the device and you might feel it as strongly as feeling "ill" "queasy" if not just sensing the beat disruption. I had not realized what exactly the wand does or how long the effect lasts. Same goes if you opt for walking through the full body scanner, you may feel ill and/or the beat disruption.

MRI: When you get an MRI the pacemaker must be adjusted immediately before and after. So an MRI appointment will require the presence of a pacemaker clinician. I knew they had to adjust it somehow but I did not know as many details, like the need for the clinician to be there to make the adjustments. I just had not considered how it played out. I imagined whatever needed to be done could be handled over a wider range of time.

Cell phones, other devices and falling asleep: You can use your left ear when using a cell phone. It just needs to be no closer than 6" from the pacemaker. But beware of setting up a situation where you might fall asleep and allow the phone to rest too close to the pacemaker. My left ear has better hearing ability so I have always held a phone to that ear. I also use WIFI through my cell to listen to the audio while watching something on television late at night when I do not want to disturb anyone. In both situations I have fallen asleep in the past. The most reliable safeguard is make a habit of using the right ear and train yourself to avoid using any device if you are tired and could fall asleep. A patient fell asleep reading with their iPad ending up resting on their pacemaker.

Sleeping on left side: I can never sleep resting on my left side ever again as well. But I can sleep on my stomach. I place a pillow and my left arm so the pacemaker does not bear the full weight of my chest. I think of it as allowing breathing space, it is not literal it is just an idea to help.

The monitor: My monitor has no audio. It does say "OK" on a small screen. I thought that meant my heart was behaving OK and there were no events worthy of note. So if I had felt something I might see a relevant message at some point. However, the "OK" just means the device is powered and operational. If you feel something and are concerned, make notes and call the pacemaker clinic or cardiology dept. They can check for anything which the monitor might have transmitted to them. There are not enough people to monitor every pacemaker implant patient. If it is substantial they will get an alert but no one is watching constantly even when you are an inpatient at the hospital. When I was in ICU after OHS my alarms went off all the time and staff came with about the same urgency as when you needed assistance to pee. If your hospital was like mine that means 30-45 minutes later. In fact, the girl next to me went into cardiac arrest and no one in ICU responded. Help came from down the hall outside ICU and they managed to push a cart with equipment with them and were running not jogging as they beat everyone in ICU to the patient. No way are you getting close to even that little attention with the pacemaker.

Must say, I have seen some of the worst as well as the best. The OHS, I saw good and bad. During my stay for the pacemaker implant from admitting to escort to my ride upon release everyone was a 10 on a 1-10 scale but my nurse was a 1,000,000, an angel.
 
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I had an Abbott CRT-D pacemaker implanted on June 15. I took Uber to and from the surgical center. The doctor implanted three new leads and left one unconnected. He told me that because of the unconnected lead. I can't have MRIs.

Fortunately, I didn't have much post-op discomfort (a few Tylenol were all that I needed).

The next day, I was feeling great. My kidneys jumped into overdrive because more blood was going through them. I was more active without even thinking about it.

The surgery was on Thursday. On Monday I called to ask the doctor if I could sleep on my side or drive my car. I was told I could do both.

Apparently the only restrictions were against lifting anything over ten pounds or lifting my arms above my shoulders.

A few weeks in, I had an episode of lightheadedness. The doctor was non-responsive.

I noticed that the amplitude of the electrical signal as recorded on my watch ECG was lower than the amplitude from my previous pacemaker, I wasn't feeling well and didn't want to die overnight, and went to the E.R. My signal to my heart was so low that some of the ECGs at the hospital weren't able to get an accucate measurement.

When my doctor's assistant finally saw me in my room, she acted like nothing was wrong, I'll be going to a pacemaker follow-up visit next week - about three weeks post-op.
I am glad the procedure went well. I hope you get some answers and fixes to your issues. Your medical team being lackadaisical has to be frustrating!
 
Glad your pacemaker implant was successful cp172. Like others have mentioned, I did not need a sling post implant and was told to make sure I used my arm and shoulder as normally as possible, simply avoiding lifting too much weight or raising my arm over my head until the wires were healed.

I was told I could take off the dressing and shower normally after 48 hours which I did. I did have a recall in my Abbott Assurity last year, and because I am 100% pacemaker dependent, I had it replaced last Nov. As the wires were fine and didn’t need to be replaced, I virtually no restrictions except for no shower for 48 hours. 4 weeks later I was able to do my full exercise routine including ab wheel, and went to Mexico 6 weeks later with my surgeons blessing.

I will say the recall was scary, but these are amazing little devices. Very great full for mine.
Hi Lynn... Never thought of a recall as being part of the risk. Going to follow your lead with a trip to the north west US in a few months. I am not brave enough to tackle Mexico.
 
Saw the pacemaker clinician today and am just providing tidbits of info for this thread. You may know all of it. I had read and heard them but did not have as many details.
Note: these were directed at me. My device and rules may be different than yours. But some of this applies to everyone. It is a "pacemaker" (specifically, a Biotronik Edora 8 DR-T):

Airport Security: At an airport security stop they recommend the hand wand and you asking that they not run it directly over the pacemaker. If they do, it causes the pacemaker to go off-program during the time they pass the wand over the device and you might feel it as strongly as feeling "ill" "queasy" if not just sensing the beat disruption. I had not realized what exactly the wand does or how long the effect lasts. Same goes if you opt for walking through the full body scanner, you may feel ill and/or the beat disruption.

MRI: When you get an MRI the pacemaker must be adjusted immediately before and after. So an MRI appointment will require the presence of a pacemaker clinician. I knew they had to adjust it somehow but I did not know as many details, like the need for the clinician to be there to make the adjustments. I just had not considered how it played out. I imagined whatever needed to be done could be handled over a wider range of time.

Cell phones, other devices and falling asleep: You can use your left ear when using a cell phone. It just needs to be no closer than 6" from the pacemaker. But beware of setting up a situation where you might fall asleep and allow the phone to rest too close to the pacemaker. My left ear has better hearing ability so I have always held a phone to that ear. I also use WIFI through my cell to listen to the audio while watching something on television late at night when I do not want to disturb anyone. In both situations I have fallen asleep in the past. The most reliable safeguard is make a habit of using the right ear and train yourself to avoid using any device if you are tired and could fall asleep. A patient fell asleep reading with their iPad ending up resting on their pacemaker.

Sleeping on left side: I can never sleep resting on my left side ever again as well. But I can sleep on my stomach. I place a pillow and my left arm so the pacemaker does not bear the full weight of my chest. I think of it as allowing breathing space, it is not literal it is just an idea to help.

The monitor: My monitor has no audio. It does say "OK" on a small screen. I thought that meant my heart was behaving OK and there were no events worthy of note. So if I had felt something I might see a relevant message at some point. However, the "OK" just means the device is powered and operational. If you feel something and are concerned, make notes and call the pacemaker clinic or cardiology dept. They can check for anything which the monitor might have transmitted to them. There are not enough people to monitor every pacemaker implant patient. If it is substantial they will get an alert but no one is watching constantly even when you are an inpatient at the hospital. When I was in ICU after OHS my alarms went off all the time and staff came with about the same urgency as when you needed assistance to pee. If your hospital was like mine that means 30-45 minutes later. In fact, the girl next to me went into cardiac arrest and no one in ICU responded. Help came from down the hall outside ICU and they managed to push a cart with equipment with them and were running not jogging as they beat everyone in ICU to the patient. No way are you getting close to even that little attention with the pacemaker.

Must say, I have seen some of the worst as well as the best. The OHS, I saw good and bad. During my stay for the pacemaker implant from admitting to escort to my ride upon release everyone was a 10 on a 1-10 scale but my nurse was a 1,000,000, an angel.
Great info to have. Thanks! I have the exact Biotronic pace maker with the "OK" monitor. I learned today that it is operation 86% of the time in one chamber and 50% in the other so I guess it was really needed. I failed to ask why this make/model was selected but plan to ask at my next visit. Dr told me today that I am off limitations after 4 weeks post surgery (this Friday) and not the expected 6 weeks so I am really looking forward to returning to more activities (wife has told me it will be gradual, common sense approach).
 
It's been 19 days since I had my pacemaker implanted and it's hard to wait until the restrictions are off. The concept of 10 pounds seems to get larger as time goes by.

I'm losing muscle mass in my upper chest and shoulders and there doesn't seem to be anything I can do about it.

I'm looking forward to be able to ignore the restrictions in two weeks.

FWIW: replacing a recalled pacemaker, or one with a battery that's getting low on juice (as long as the leads are okay) isn't as big an issue for the patient as the initial implantation -- the restrictions related to letting the leads completely attach aren't there. The surgeon may have challenges because of scar tissue, but recovery from the new implantation should be much easier.
 
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FWIW: replacing a recalled pacemaker, or one with a battery that's getting low on juice (as long as the leads are okay) isn't as big an issue for the patient as the initial implantation -- the restrictions related to letting the leads completely attach aren't there. The surgeon may have challenges because of scar tissue, but recovery from the new implantation should be much easier
It is! I posted my experience of a replacement due to end-of-life last October here, and didn't even have to stop taking Warfarin!
 
Yes, CP172, recall is apparently an issue . I don’t think it’s worth worrying about until it happens, and home monitoring is meant to catch issues before they cause problems. Having said that, all you need to do is go to the MAUDE data base to see the frequency of issues. (That is an FDA medical device data base). It’s much higher than I had thought.

I would agree with what others have said, a generator replacement where wires are not touched is pretty minor, and it’s really just incision healing. Like London Andy, I didn’t even stop warfarin. Studies do show a higher risk of post implant infection with replacements so that is the only thing to watch for.
 
Yes, CP172, recall is apparently an issue . I don’t think it’s worth worrying about until it happens, and home monitoring is meant to catch issues before they cause problems. Having said that, all you need to do is go to the MAUDE data base to see the frequency of issues. (That is an FDA medical device data base). It’s much higher than I had thought.

I would agree with what others have said, a generator replacement where wires are not touched is pretty minor, and it’s really just incision healing. Like London Andy, I didn’t even stop warfarin. Studies do show a higher risk of post implant infection with replacements so that is the only thing to watch for.
Thanks for the info on MAUDE. I will certainly check it out. I thought it was strange that I stayed on Eliquis during the procedure to implant the new pacemaker. I did not think to ask how this was possible. Glad to hear that a future replacement will not be a major issue.
 
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