Just had my TAVR two days ago.

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harrietW

Attitude of Gratitude
Joined
Oct 24, 2014
Messages
566
Location
Magrath, Alberta, Canada
Harriet, I’m having chills off and on. No fever. Huge areas across my upper legs, that are eggplant purple. A quarter sized hard knot is at my femoral incision site. Not warm to touch. It’s ok.
I can put on make-up and decent clothes and nobody would know I’m 8 days out. If people come to visit, don’t put on make-up and decent clothes. A lady from church stayed 2.5 hrs, and I was as limp as a dishrag. To drop the hint that she was overstaying, I laid down on the sofa. I couldn’t help it. How do you convey to people that this miraculous procedure involves the HEART, and I/you are not shot from a cannon into a Wonder Woman outfit?

Ladybug
l hope you're chills are subsiding a bit. Don't over do it, it takes time to bounce back every time we do.
Ugh !!! Company that doesn't know when to leave. I suppose as hard as it is we have to just say l'm sorry l really need my rest. Easier said than done. I had a friend bringing me food when l got home which was nice of her but l asked her to please stop ever day .. I was throwing so much good out .. And sometimes you just want what you want or nothing at all and then it piled up. But she would come and just sit. I hated it. I don't like people seeing me sick listening to me moan.
Your right we cannot just put on a super hero suit. No matter how tough we are or people think we are .. Most times alone l wanted to just sit and cry for what I'd been threw. I hope your able to do the same.
Sending hugs Xx
 

Agian

Well-known member
Joined
Jun 10, 2013
Messages
2,238
Location
Adelaide, South Australia
My mother has a friend who sticks around all day long. I would feel like a trapped animal, if it happened to me. She's so dumb and has an annoying voice.

I suggest a couple of scripts, you can use as an exit strategy.

How about looking vague and saying you have an awful migraine and need to lie in the dark for a few hours. 'Sorry, can we catch up some other time.'

'I hope you don't mind if I can't keep you company today... I have been getting these terrible pains.'

'I've caught a virus. I don't wan't you to get it.'

'I didn't get any sleep last night and really need a nap.'

'Your friends have told me you're not fit to eat with pigs. But I disagree.'
 

rich01

Well-known member
Joined
Aug 23, 2018
Messages
119
Location
Virginia US
How is your incision and the area under it healing?

My incision is almost healed, but the area underneath is hard and still hurts. I've been taking tylenol and benedryl before bed and putting an ice pack on it, otherwise I wouldn't get much sleep.
 

Ladybug

Well-known member
Joined
Jul 30, 2019
Messages
48
I’m not having enough discomfort to even need Tylenol regarding actual pain. I was eggplant black and blue over large areas of both femoral arteries. In the hospital on 9-20, some PA told me that I no longer have a murmur. I saw my regular cardiologist today and he said I still have a bit of a murmur which is normal after TAVR. They told me they would use a Sapien stroke prevention filter during the procedure. It’s the reason I didn’t go to the Cleveland Clinic. The interventional cardiologist said, “The path to your carotids was real curvy. We got very little calcium.” Well I’ll bet there was very little calcium because they aborted the d—-
filter mission! Confirmed on the OR report. And people wonder why I have post traumatic Emory disorder.
My husband was in my appointment today. The dr suggested I have cardiac rehab but it was to be totally my choice. After my husband chimed in his two cents worth (he has Aspergers...☹) about how his expert physical therapist sister says I need need it, I virtually had NO CHOICE. By the end of the appointment, I left the dr office wearing a BERKA! My legs are as weak as water. I just had to cancel my mountain plans. My blood pressure has been swinging around daily. Other than that, I’m depressed, fed up, and angry.
 

harrietW

Attitude of Gratitude
Joined
Oct 24, 2014
Messages
566
Location
Magrath, Alberta, Canada
Ladybug oh my !
Sorry your having a hard time. I think l understand better second go around that no one really understands the psychological effect heart procedures have on us. Not having a sapien screen if l read that right .. Must have an effect of just plain old feeling of Uneasiness. I'm sorry!
Others also always seem to think they know what's best for us and our recovery.
I say wait just a damn minute. !!!!
I am sorry you are feeling angry depressed & just plane old fed up. I can relate on all three accounts.
I am ready to see a shrink .. Aka psychologist for trama counselling. As l am still traumatized by the trama this go around

Hang in there Ladybug Xx ❤
Xx
 

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