En route.. Self testing

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Here in the UK, In order to be able to self test, I have to approach a foundation that supplies the self test machines. This foundation is known as the 'Somverville' foundation. Their next step is to approach my specialist ACHD nurse to obtain their permission and to ensure there is nothing that will prevent me from testing myself properly.

Once this is done, I can then purchase the machine off them VAT free, either through a monthly interest free payment plan, or in whole at £299.00.

Once the machine is purchased, the clinic will have to 'train' me on how to use the machine, and regularly test that the machine is working every 6 months.

The strips can be purchased via an NHS prescription which is pretty handy.

It is a long winded process here for me, but I'm part way there, (the foundation have contacted my specialist nurse).

It just means that I'll have the freedom to 'dose the diet' as is said, and actually see how well my body metabolises warfarin and how much of an effect new foods have on me (if any).

It also means that I'll have the full freedom on travelling wherever, whenever without the fear of 'what is my INR now?'

That's enough about the process, which I hope members in the UK who are new to Warfarin and are considering self-testing or members in the UK who are considering a mechanical valve will find useful. It's worth mentioning that Warfarin in the most part isn't a dangerous or mystical drug as my INR has been relatively stable for over 5 months since having my valve replaced.

My question to most of you seasoned self testers is once I've obtained my self-test machine, how often should I test? is it once a week? or every half a week initially to try new foods ?

Thank you.
 
I ordered mine from medshop.com.au
They wouldn't mail to the UK
Coaguchek XS; you can look for it online. You don't need to order from Roche.
This 'foundation' sounds like a grandiose little enterprise.
 
I've just had a look on uk Amazon. They're expensive over there.
The currency converter tells me I overestimated the value of the pound.
299 isn't bad, but you could get it cheaper if you looked around.
You don't need scripts for the strips either.
 
zee112;n868659 said:
oh cool, direct from the manufacturer? Could you send me the link please, cheers!

There is a better deal from Germany. The UK is expensive. I was paying €150 for strips when I was in Finland.

The price for the machine is about right.

Test weekly. I sometimes test mid week to satisfy myself that a high or low is returning at the right rate.

Some reading from my blog for you
http://cjeastwd.blogspot.com/2014/09...ng-my-inr.html

http://cjeastwd.blogspot.com/2015/10/managing-my-inr-example.html
 
I'm in the United States. I've gotten most of my machines on eBay. (Yes, I have more than one. A few years ago, I went on a mission to find the machine that I'm most comfortable trusting with my life). The only meter that I DIDN'T buy on eBay was sent to me by Alere after I told them that the InRatio that I HAD been using gave me erroneously high results and caused me to have a stroke. They sent a replacement. How damned generous of them.

You may be able to find a meter on eBay -- possibly one in the UK, or a vendor in the U.S. or Europe who will ship to the UK. These sometimes become available after granny or grandpa, who was on warfarin, dies - and the family doesn't know what to do with it. They sometimes become available because clinics upgrade, or for tax reasons, have to replace perfectly good meters every two or three years.

My personal choice is the Coag-Sense. I'm not sure about availability of the meters or the strips in the UK. (I have two extra machines that I just happened to get as backup or excellent deals). You can also find sources for the strips and lancing devices online. If you get lancets or automated lancing devices make sure that they're designed for INR testing (21 gauge) - the ones for blood sugar testing don't make a large enough incision for INR testing.

Yes - weekly is the way to go. If you've made any significant dietary changes, or have done other things that you're concerned may have impacted your INR, it doesn't hurt to test more frequently. (FWIW - something I did a week or so ago resulted in a LOW INR. I increased my dose and tested every day. I'll probably still test every few days to be sure that my dose is appropriate. You can't do THIS with monthly blood draws).
 
Thank you all for your help guys, I truly appreciate it. I've gone ahead and purchased a coaguchek XS machine, which is the same one my clinic uses. It comes with a 2 years warranty, 6 strips, CoaguChek® Softclix finger pricker, 20 lancets, and a cute little carry case ^-^
 
Hi Zee. I'm in the UK too, and have been self testing for 2 years. I bought mine direct from Roche. I agree with others who say weekly testing is a sensible frequency, and find that the biggest effect on my INR is when I have a cold or similar, when a significant drop in INR is an early symptom. I test more frequently if experimenting with diet things. For example, when I was seeing what effect alcohol had I tested on the day before and then for the next two or three days after (by the way: result was a very small increase in INR for me, though may be different for others of course).

My GP readily agreed to provide the test strips on prescription, and like you my local hospital anti-coagulation clinic does a blood-draw check every 6 months or so.

Welcome to improved control, and freedom!
 
Hi

zee112;n868727 said:
Thank you all for your help guys, I truly appreciate it. I've gone ahead and purchased a coaguchek XS machine, which is the same one my clinic uses. It comes with a 2 years warranty, 6 strips, CoaguChek® Softclix finger pricker, 20 lancets, and a cute little carry case ^-^

good to hear ... now sit down and watch my video before you start ... or you'll just waste strips (costing money) :)

Prime issues are:
  1. getting sufficient blood to make the test (a full hanging drop is what is described by roche). I find that in winter time in particular I lance but fail to get blood for a test. I waste strips with the "error 5" (the most common problem)
  2. follow the 15 second rule
  3. consistent technique
  4. lance the side to avoid damage to the nerves on the important part of your fingers (the tips)
8283963324_8c2184d864.jpg




feel free to ask questions :)
 
Agian;n868747 said:
Whatever you do, don't play Pellicle's video backwards.

Dratt! Have you decoded the demonic chant I've cunningly overlaid in there? I studied Dark Side of the Moon and some other Pink Floyd to be able to master this technique

I instead prefer to summon the Finnish Devil Perkele

Foiled Again by Agian!
 
Cheers for the videos Pellicle! It cost me £299 Agian. Wanted the peace of mind by buying direct plus the warranty. It should be here in the next 3-5 days!
 
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