Thanks Nancy, im just finding it hard because Curtis wants everything he see's like all children. Iam doing my best, i always buy him the latest things to come out. sometimes it's a struggle because they dont come cheep, ive just sent off for a hover disc because thats what he's just asked for, my husband moans at me, hes says there's no point in having christmas because he says its christmas all year round. I can't help but think ,if any thing goes wrong when he's in surgery, that i want him to have everything he's asked for. i know i shouldn't but its there in the back of my mind,i dont want to turn him into a bratt but that's how things are going and he knows he can play me and get his own way. Im just a born worrier and wish i knew how to stop. My husband just seem's to be fine, unless he's handling it in his own way, i just dont know.Sometimes i feel bad because he dosn't really have any syptoms, he just looks like a normal everyday child, i dont think we will see much difference after surgery allthow i still know it will save his life in the end. Paula x