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Hi, I constantly suffer with this and have done on and off since my first ohs in 2007. It can be the most horrendous pain can't it ??!! although I'm on warfarin my GP prescribed Feldene Gel which although an anti-inflammatory doesn't interact very much - it does the job and really reduces the...

Hi, How is the nerve pain now ? I'm 8 weeks out and have the same problem as you. I am currently taking gabepentin which does ease the pain / horrible sensation but I feel it is just masking things and not actually making it better. It is starting to really get me down as it hurts to even...

Good luck with the surgery and well done for not taking no for an answer !! I'm 4 weeks out (tomorrow) from having my ascending aortic aneurysm and proximal arch sorted, which included circulatory arrest, 57 mins on clamp and 2hr 50 on bypass previously had mAvr in 2007. Like yourself I had...

I'm pretty sure that the individual rides give warnings / restrictions as to whether it is suitable for someone with a heart condition/ neck / back etc. Although you say you are in good health other than the 'heart stuff' I'm not sure I'd chance the rides which do have a warning for those with...

Hi Mel, I also found that having a 'Big V maternity and nursing pillow' has really helped in relation to getting comfortable and sleeping. It's a lot more flexible than your standard 'v' pillow. The one I have is made by Theraline. 4 weeks out and it's still my best friend whether sitting on...

Hi, I'm in the UK and 4 weeks out of my 2nd OHS..... After my first op in 2007 I was advised to just cuddle a pillow or rolled up towel when coughing, however they did not provide one. After my 2nd surgery last month the physio advised to just place the palm of my hand on the top of each other...

Thanks for all your comments and support - received a phone call today to say they have had to cancel my operation due to lack of beds !!! Re-scheduled for the 21st now......just as I was getting over my wobble, so the countdown starts again. I will keep you all updated, thanks again for the...

So I'm having a wobble.... Previous AVR dec 2007 (mechanical valve) bicuspid valve diagnosed at 36 asymptomatic, biventricular pm due to lbbb and low ejection fraction dec 2011, ascending aneurysm identified October 2012, 4.7 and has periodically grown to the 5.3 it is now ( although different...

Hi Cam I have a biventricular pacemaker (as well as AVR dec 2007 and surgery due 14th April on my ascending and arch aneursym) I had my pm check up last November when I was advised that my RV lead had been dislodged. They decided to fix the lead before my aneursym surgery. I am unsure of...

Hi All, Looking for some reassurance really, had a couple of appointments today neither of which have given me great news. My history is AVR dec 2007 due to bicuspid valve - CRT implant dec 2011, ascending aortic aneurysm 'found' October 2012 after routine watching my specialist has decided the...

Hi, I take 75mg daily but find I have to spread out the dosage to 25mg morning, 25 lunch, 25 tea as It made me fatigued.. Hope it works well for you

Hi all, once again I appear as I need some sensible advice!! On Friday I had a radial angiogram performed to see if there was any problems with my arteries as I have frequent tight band pain round my chest on the slightest exertion, plus tired, can't do hills etc. Well the procedure was not a...

Hi Explorer, I didn't get a choice and don't remember any discussion in relation to having a choice - the only choice I had was between tissue and mechanical (although wasn't offered too much of a choice with this really !!). I had my op at the heart hospital, Westmorland street. I have since...

Bunny I agree with vegasbav and ski girl. However what might help is reading up on the equity act 2010 - your condition can be classed as a disability and thereby your employer has a duty of care by law. The Acas website has a bit on disability discrimination and is fairly easy reading. Did...

Sending best wishes and hugs. Hopefully it goes ahead on schedule -here's looking to a better future from a fellow Uk member x

Fingers crossed for your appointment Larry and I hope you get some answers, sometimes the healing takes longer but something clearly is not right - I know from my ongoing experiences how awful it is to merely exist and not live your life. Keep us updated and good luck

Hi All, Well i saw my cardiologist on wednesday and he is not concerned in the slightest !! Apparently you dont get symptoms when you have an aortic aneurysm ??!! And my tightness in chest, wheezing, light headiness etc etc are due to something else (but no idea what). In addition my height and...

Hi all, Thanks for all the advice - I have contacted my cardiologist who has brought my appointment forward to next week which is a start. Still feel pretty anxious and have that 'time bomb' mentality at the minute, every pain concerns me but I'm sure these thoughts will subside after my...

Hi, I had a CT aortagram for chest pains and the results have come back (which i have discussed on a different thread) but one unrelated result was that i have left kidney renal cysts. I am curious as to whether taking warfarin has contributed to me having these cysts. I had AVR dec 2007 and...

Hi, I only seem to post when i have a problem but once again i am hoping for some words of wisdom / guidance from the wonderful people on this site. Basic background of AVR dec 2007 due to Bicuspid Valve, CRT (biventricular pacer) dec 2011. 41yr old female, 5'4", 10st 6lb. I went to a&e...