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I was put on Ramipril "Altace" and have taken 10mg per day for 6 years almost. Initially the 2.5mg made my hands numb when I fell asleep. Over time I had some cough. Overall, the medicine has been good to me as my echocardiograms have held steady. I do feel tired more easily but it is...

Ross was a great help to many of us. I felt sad upon reading the news of his passing away. I recall when I was diagnosed in 2008 and the MDs never seemed to have enough time for my endless questions. I read and learned and when I needed to vent or was afraid or when no one was giving me a...

Hello all! I have had aortic regurgitation for a while and am in the waiting room. As of 5 years ago, the cardiologist told me to avoid "competitive exercise". I had my echo in March and things are stable. I always loved sports growing up. As my son is growing up, with the World Cup around...

Just read the thread...best of luck Dean! I've heard from many folks that USC is a good place for operations related to the aorta and have read over the years of folks that were successfully operated by Dr. Starnes

I had sub-acute and was misdiagnosed for 5 months. Fever came and left etc...once they did an echo, my heart had deteriorated and they suspected - got antibiotics for one whole year and recovered well.

Ejc, In 2007, at the age of 38, I had a similar period of recurring fevers treated each time with antibiotics. I also had a cough that would not go away. Went through all kinds of testing. Eventually in 2008, 6 months after the fact, I had a positive blood culture but also negative on the...

Good luck Michele!! I had an attempted TEE and I vaguely remember it. My BP went down very fast and they had to stop the procedure. Glad I was in a hospital setting. Rick

I think that you need to separate if this is (i) a real heart issue that needs treatment (could be med changes etc) or (ii) something else. For this, I would go to the cardiologist and ask about an echocardiogram. Between now and then, I would take my meds, relax as much as possible and worry...

Shane, Just a message of encouragement. Many people suffer from different things, heart-related and otherwise and unfortunately some things happen at any age. I have a friend who, for instance, in his early 30s was diagnosed with prostate cancer. Having said this, many things are treatable...

Some eccentric regurgitant streams stemming from the aortic valve happen to be directed toward the mitral valve. If they have sufficient force, the regurgitant blood may over time affect or damage the mitral valve. This was explained and shown to me during an echo. Best of luck with...

Thanks Clay. I will specifically ask about this in my MD appointment and see what he says. Best regards, Rick

I had the same finding on an echo about 3 years ago. I am on blood pressure meds and it has never reappeared on any further echos. Like you, I looked it up on the internet and had some anxiety. My cardio told me not to worry about it and that we would see what happened.... never mentioned...

I have aortic regurgitation due a bicuspid aortic valve. Since approximately 20 years ago, my bloodwork demonstrates a high bilirubin, both types - direct and indirect. As of 3 years ago, my globulin levels are always just below normal but outside of normal and the albumin/globulin ratio is...

Pete, I was diagnosed at 38 also. In terms of the Ross procedure, I found the best surgeon to speak with to be Dr. Paul Stelzer from Mount Sinai in New York. He had done, if I recall, over 400 of these procedures. The Ross procedure has a success rate that is heavily influenced by the...

I had persistent cough, was incredibly tired, and kept getting a flu on and off for 3 months. Eventually, the cough was so bad that I could not speak. I was sent to speech therapy. Separately I was on antibiotics every three weeks when I had fever. Eventually, 5 months later, I was diagnosed...

Pre-existing conditions get excluded apparently.

Does anyone know what the impact of Obamacare shall be in getting new insurance policies? My existing one excludes AVR and am wondering whether Obamacare will change this. If anyone knows the impact, please let me know. Regards, Rick

I will gladly pray for Laurie and you this Thursday.

Great news!!! Enjoy. Rick

I have bicuspid aortic valve, moderate or moderate-severe aortic regurgitation (depending on the MD), mild dilation of ascending aorta 3.7 - 3.8 (looks like a sausage where it gets wider and then back to normal). After diagnosis 4.5 years ago, I was told to (i) reduce my weight - check, meaning...