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when it rains it pours! I'm sorry your family is pulled in different directions now. You can be a big help to them with your experience! Take Care

Matt, It is extremely hard to be patient during recovery but, I think it's normal for you to still not feel like yourself. Your body was assaulted and no matter how young you are, six months is not long enough for your body to think nothing happened to it. About the ticking, My mechanical was...

njean, I don't know if you remember me, we talked about a year ago about pulmonary hypertension. I am going to pm you.

To answer your questions about endocarditis, you may never get it. If you do the vast majority of cases are cured with IV antibiotics, just be aware of the symptoms so you can rule that out as quickly as possible. You are young and healthy and will be able to return to your normal life or...

I am sorry this has happened to you. I have had endocarditis since September. I bumped into a lawn chair on vacation and had a 3 inch skin tear on my shin. To make a long story short I have had two previous aortic valve replacements in the last ten years and the infection caused an abcess around...

Laura, I had a mechanical valve for 6 years and I could hear it the whole time. I had to start sleeping with a fan at night to drown out the noise. But, it reminded me I was ok. I'm glad to hear from you I am looking at having my 3rd valve replacement on the aortic valve in 9 years. It's nice to...

I am experiencing endocarditis as we speak. It started with a skin tear on my leg. I started oral antibiotics within 24 hrs of the wound but 5 days later, I just felt off, tired. I had just come back from a relaxing vacation so I shouldn't have been. The rest of the week just got worse until I...

I really appreciate the last part. I am toughest on myself. My family and friends always tell me what a strong woman I am and how encouraging my example is to others. I appreciate those comments from others, I need to tell myself those things too. I have always looked at the glass half full no...

Tabitha, I am so sorry you are in this position. I have had two Valve replacements six years apart and the last was 3 years ago. The first time I had two teenagers and two small children, 7 & 8 and I home schooled. My best advice to you is to get a second and maybe a third opinion so you can...

Piglet, did you also have an abcess?

Lyn, I am at home on the IV. Thanks for the encouragement.

I suggest you let your family doctor look at it. Better to be safe than sorry

I had OHS in 2002 for a stenotic bicuspid valve. A mechanical was placed which proceeded to grow scar tissue all around it and had to be replaced with tissue valve in 2008. I have now been diagnosed with endocarditis and perivalvular abcess beside that valve. I have been sick for five weeks and...

njean, I am so sorry to hear of your situation. You and I talked a little privately after my 2nd OHS in 2008, and a little after I found out a year ago that I have pulmonary hypertension as well. I am going to have a RHC soon, and my new aortic valve is headed south as well. I am hoping to get...

That is encouraging to hear, what was the reason you needed re-op on your pulmonic valve and do you have any other heart issues?

Kim, I had a mechanical valve implanted in 2002 because of a BAV, I developed pannus(scar tissue) around the valve and had to have it replaced in 2008. I wanted another mechanical in the off chance it wouldn't happen again, however, the surgeon had to use a tissue valve because the mechanical...

Have any of you had 3 or more OHS for the same valve? Since 2002 I have had 2 AVR and the valve is closing up again. Wondering if 3rd time around will be an option in the span of 10 years or less.

Thank you njean, you and I are kindred spirits with our situations. I am so glad you are doing better. My cardio doesn't have any input on a ph specialist. He doesn't like any of the docs here. He knows I am a experienced patient and will find the best on my own. I am going to connect with a...

Thank you Nancy, I know Joe had many problems and Ph was one of them. Thanks for the links, I am fine walking on a flat surface but, any incline at all and I feel it. I get worn out just walking into wal-mart. I just want to do what I can to hold the progression off as long as possible. On top...

I would appreciate your input on my current situation. I had my first AVR in 2002 for BAV. Five years later, I had to have my mechanical valve replaced because of pannus(scar tissue)ingrowth. I am now left with Pulmonary Hypertension. My number is 50 at the moderate level however, my cardio told...