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HI: I have not posted anything for a while but I do have a concern and thought someone out there might beable to help me. In the past 3 months my kidney function has demenished. My Creatinine levels have been rising and my gradient flow rate has been dropping. It went from 90 to 56 and now it...

Thanks for the info and the concern. No I haven't tried doing the hold your breath thing...next time it happens I will. The electrolyte imbalance theory really sounds probable. I noticed in the past when my potassium is too low I often get chest pain and arrhythmia. The few times I packed myself...

Its me again: More questions...is it normal for BAV patients with moderate AS and AR to have chronic tachycardia. My heart has been beating above 100 bpm for quite some time. Last night I swear it was beating over 140 bpm. I seriously thought I has in afib but I didn't get it checked out...

Hi: Tass Yeah that was one of the first things they checked for because I had a daughter with a coaortation of the aorta. She passed away at age 6 wks. She also had a BAV and nurmerous other heart problems. I recently had an MRI and it said no coaortation was seen and the illiac vessels were...

Thanks for the advice. Was kind of hoping it was a common ailment for BAVers but I guess not. Do not have bursitis so it could be back related or PAD. Pretty sure it is not DVT as the pain has been going on for a long time. (not acute) All I know for sure is that it is driving me crazy! I will...

Hi: I have BAVD, moderate AR, AS, dilated ascending aorta and LVH. For the past two years I have been experiencing pain radiating down my left leg from my hip to my ankle while lying down. The pain is a deep throbbing ache. For the past 6 months this pain has become unbearable. I also noticed...

My husband recently competed in the Subaru Ironman Triatholon in Penticton, BC, Canada. A 60 year old man died while swimming the 2 mile distance. He had an aortic dissection. Apparently he had a ascending aortic aneurysm. He only had .2 miles left to go when organizers saw him struggling. They...

Hi: I haven't made a post in awhile. I guess I have been feeling okay of late, however I just found out that I have reduced kidney function. My glomerular Flitration Rate is low. Which means my kidneys are not putting out enough urine and are starting to shut down. Hopefully not for good. I...

Just got back from the ER. Just got back from the ER. Thanks for all of your concerns. I did go and I didn't have to wait, they took me in right away. They did the usual cardiac work up. No heart attack, no blood clots and no stroke. Ekg showed LVH. Blood pressure was low. CT scan was...

Yikes!!! I was so hoping that I wouldn't have to make that trip. I guess I will take your advice and get it checked out tonight.....did I tell you how much I hate the ER.....but I wll go....my head is pounding....neck vein is pulsating and now my frigging ear and jaw hurts too! Thanks again for...

Thanks for the advise....the thought of sitting in the ER for hours makes me feel more sick. If my symptoms persist and I can't get to sleep I will probably go...if I fall asleep and I wake up tomorrow with the same pain I will check it out with my GP. At anyrate I'm still here.....still in pain...

Hi I haven't posted for a long time. I have been fairly stable over the past year but two days ago I got this wicked headache while at work. It was so bad that I got sick to my stomache. The headache lasted all day and night. No amount of over the counter pain meds helped. The next day the...

Another Update on Rachel. Another Update on Rachel. Rachel is doing ok. She just had her gallbladder out two days ago. She is in a lot of pain but the surgery went well. She gets to go home for a month to recooperate from her surgery then it is back to the hospital for another round of chemo...

Aussigal: It's funny that you talk about "clicks". because the pediatric cardiologist made a point in having her med student listen to my 14 year old daughter's heart. Apparently all of her valves click shut in unison. One then the other then the other. She said that her heart was quite...

Just thought I would let you know that my kids were screened for BAV and thankfully none of them have one. All three of them have good strong hearts with no abnormalities. EKG and echo studies all normal. So thats one less thing I have to worry about. The cardiologist did say that if I were her...

Just a quick update: 1st thanks for all your support and kind well wishes. Rachel is improving daily. She survived her first round of chemo and apparently they were successful in inducing remission. She starts her next round of chemo next week. Bad news, her right lung keeps filling up with...

Rachel is doing okay for the moment. She had a very stressful weekend because her gallbladder decided to act up. Probably because of the chemo and her recent pregnancy. She went completely jaundice and her belly swell to an enormous girth. She gained 8 kilo's (19 pounds) in one day of fluid...

Thank you all for the very kind words and I will certainly pass them on to Rachel and her family. Little Zachary is doing fine. Grandma Mar is taking good care of him. Rachel waits patiently ever day to see him, if only for a few hours. Thanks again for your prayers and well wishes. I am...

I haven't posted in a awhile because my life has been recently turned upside down. Last Tuesday, December 6, 2005, my 21 year old niece went into labor. Happy day, until she was diagnosed with acute leukemia 3 hours before she delivered a healthy 6 lbs, 4 oz baby boy. When admitted into hospital...

Yaps: I don't have scoliosis but I also suffer from sciatica....grrrrrr...I too am kept awake at night because my left hip kills me...and now my right hip is also starting to pain, and some days it does torture me to walk. My husband keeps trying to tell me that it is just the normal aches...