Recent content by mlkyle

I have read so many good things about Dr. Dietz and Dr. Cameron at Baltimore/Hopkins...does anyone know if they pediatric surgerys are their expertise also? My two year old has a BAV with a bulging at his aortic root at the sinus of valsalva. He probably will not need surgery for a couple of...

thankyou also so so very much deanne for all your wisdom and knowledge and advice. Thankyou...I know we all love our boys so very much it hurts!!!

please let us know how it turns out. Love, Julie

Thankyou Lyn and Andrews mom...I hope one day we can meet so I can hug you both! You don't know how appreciative I am of you two and everyone else on this forum. Lyn, how is Justin?

so should I be overly worried that my four year old who has a tricuspid valve was found to have his aortic root in the "high end of normal?"

sweet lyn and justin... sweet lyn and justin... You are such a support to all of us when we need it...please feel the love and hugs going out to you and your teenaged baby....we are all here with you in your same boat....so keep us posted... Sincrely, Julie...Kyle and Taj's mommy

we are thinking of you... we are thinking of you... Dear Susan, I have a two year old son with bicuspid aortic valve and a mild dilated aortic root. Just found out my four year old son also has an outpoking at the same area on his aortic root as my two year old.... My immediate advice to...

To all you beautiful and precious heart people...I want to say thankyou for all your support... The update on the "saga" about my beautiful sons is...took my four year old for his cat scan today after he had an abnormal chest xray last week (took him in for a cough). Once the doctor learned of...

my boys my boys do you remember where you read that about aortic aneurysm...not causing problems until after puberty? The dr is calling my boys...aortic bulging...not anuerysms yet. thanks

thankyou thankyou thankyou deanne, No testing for marfans, but i've read about it and neither one of them have physical characteristics of marfans...could they still have it?

:( Just found out on Oct 20th my two year old son whom we've known has had BAV since two weeks old has "mild dilating at his aortic root at his sinus of valsalva." Due to that finding, I had my other two children, a four year old son and eleven month old daughter tested through echo...

This is Kyles mom...my two year old has BAV w/ mild dilation at his aortic root. My four year old has been checked by a cardiologist with an echo and told everything was fine. He has had a cough for three weeks now. We got a chest xray yesterday. It revealed an "opacity at his aortic arch"...

thankyou lyn

never thought of it that way never thought of it that way Wow... I never thought of it that way...his little aortic valve may just grow to catch up w/ the aortic root dilating...right? Hopefully... Thankyou again Lyn for being there...

Hello it's Julie, Kyle's mom again... My two year old Kyle has BAV and last year his aortic root was on the high end of normal at 1.7cm. Three weeks ago his echo revealed his aortic root was now "mildly dilated" at 2.07cm. His "bulging" grew 0.37cm in one year. If it continues to grow at...