Dear Friends,
I haven't been to the forum in a long time. It is hard to believe that it was almost three years ago that I started pestering folks here with my annoying questions.
I have a question about weight gain. Obviously, right after surgery I lost weight and was too thin. Since...
As you may know, I was born with a BAV. Last year I had surgery to repair a 5 cm aortic root aneurysm. My valve was spared.
I was wondering if anyone knows of studies showing what percentage of those with BAV connective tissue syndrome end up having aneurysms further up the aorta. I am...
It was interesting because the P.A. told me she didn't know of anyone with BAV who had had an aortic root aneurysm who had developed an aneurysm further up the aorta.
So yesterday I was at Hopkins for a baseline CT-Scan of my whole aorta. The good news is that my aorta's measurements are all within the range of normal.
I received a prescription for the blood pressure medication, Avapro, that is supposed to have a prophylactic effect by blocking receptors...
BarbJean,
I think we conversed via messages. I would do it now. I speak as one who had a very public hemming and hawing on this board a year ago. I went ahead and had Dr. Cameron operate on me and I am so thankful I did. This isn't an easy decision and if Colin wants to talk to me I think...
I'd have to agree with my friend Maryka about not wanting to do repeat surgeries if at all possible. I can tell you (and those I drove crazy here) that the psychic weight of knowing you have an aneurysm -- which you do, I think anything over 4.0 cm is consider an aneurysm -- is really weighty...
Wow. This is a tough situation. I don't know how anyone can say that your aortic dilation isn't a sign of BAV connective tissue disorder. That is, the fact that your aorta is dilated would suggest to this layman that you have a connective tissue disorder and that at some point (barring the...
Thanks. Yes, I get the sense that the recommendation is two-fold -- one to reduce the pressure and two because of the prophylactic effects it has on the tissue. My valve was not the problem, so the aneurysm was fixed and the valve spared -- tighter than it has ever been. I can my heart beat...
Maryka,
One of the reasons the PA for Dr. Dietz told me to go it was because they want my BP to be low. So it seems like one of their reasons is lower BP. But is there some tissue related piece here that I am missing. I think I am going to at least try it, but my BP is really quite good...
Dear Friends,
It has been a while. Brief background, last August I had surgery to repair my aortic root aneurysm and spare my BAV. I am doing great. I've met with the wonderful Dr. Dietz at Hopkins and he and his staff are suggesting that I go on an Angoitensin Receptor Blocker, specifically...
Dear Bill,
This was quite a shock to me. I have not been on the forums much since my surgery, but offered very basic -- and probably worthless -- advice to Valerie before her surgery. I had not idea she had passed. I offer you my deepest condolences and my prayers. If you are okay with it...