My surgery is back on

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TakeStock

Well-known member
Joined
Feb 13, 2009
Messages
181
Location
Cincinnati, OH
After talking with my surgeons and my cardiologist, the MV repair surgery is back on. It?s now scheduled for March 31 at Bethesda North hospital in Cincinnati. Dr. Hiratzka, the second surgeon I talked to, will have the honors. Both surgeons I talked to give the repair a 75%, and in fact my first surgeon who originally just wanted to do a replacement now thinks a repair is the way to go.

As you might recall from my previous postings, the angio and TEE showed improvement in my MV regurg after the endo vegetation left. But in my case, because the valve damage is structural from the subacute endo, not from long-term chronic deterioration, it isn?t going to get any better and there?s no way to reduce the dilations with medications. Although I have some time, we don?t know how quickly the heart will enlarge since there?s no history. And since my father has had a-fib since his 30?s, it?s best not to take a chance waiting. Also, there?s some risk of re-infection if I wait.

I learned something interesting about my case. I have a tear in a chordae and likely a small perforation in the exterior of the leaflet, away from the chordae. These appear to be two separate incidents where the chordae first became damaged, allowing the strep infection to later get into the valve and grow on the leaflet. It?s a mystery how the chordae became damaged but it must have happened shortly before the endocarditis because it would have caused a heart murmur and I didn?t have one 5 months before the endo. The strep infection for the endo came from my mouth bacteria, although I didn?t have any dental procedures during this time ? it must have been from brushing or flossing. The chordae can become torn from a heart attack or trauma, and the doctors could find no evidence of either occurring. I do remember having several weird cases of palpitations several weeks before the endocarditis fever hit, although at the time I didn?t think it worth getting checked out.

Regardless of what caused either event, these things are rare, and both together, back-to-back? well, apparently I was destined to have this surgery. :D I?m thankful at least that the overall damage is minimal and my heart should be back to 100% with this repair.
 
Why do they think the tears weren't caused by endocarditis?

It sounds like your case is similar to mine. I had rheumatic fever which turned into endocarditis. My valve was eaten up and some of the chordae were damaged. I went into surgery with about a 5% chance of repair due to the high level of damaged to the valve. It sounds like yours was caught in time.

Good luck! Soon you'll be good as new!
 
Given all that has affected your valve, it's probably best to repair or replace it now rather than wait. That is interesting about the chordae. I was curious to find out if I had any damage to my chordae too, since I had an onset of murmur in the last few years. This is very scary that you can get endocarditis just from brushing or flossing!

I have heard many different theories about what caused my leak : ) Like you, I am just glad it was diagnosed. You will be fine, that's the most important thing. All the best!
 
Congratulations on setting the date. I had torn chordae, too. However, I am not sure how it happened. I have an annual check-up and every year everything was fine. Then one year my doc found a new heart murmur and a year later I had a MV repair. Best wishes and good luck for a successful repair.
 
Thanks Lisa, Nupur, Wayne and Mary (and everyone else I miss). The surgeon I talked to believes the chordae defect, based on its location, was not caused by the same endocarditis, but he could be wrong. Perhaps I had two infections around the same time. Incidently, around this time I had started using ACT Restoration mouthwash. I was using it regularly, 1-2 times a day for several weeks. I don?t think the mouthwash caused the infection but maybe it weakened my gums and made it easier for the bacteria to get inside. I?m reaching here, but in the past five years I?ve had 3 teeth extractions, a root canal and 2 crowns (plus one after the endo), none with antibiotics, and never had a problem. Hmmmm.

BTW, the reason I know I was ok 5 months earlier was because I had a checkup for enrollment into a Critical Illness insurance policy, which coincidently has a 100% payout for heart valve surgery. I guess I better donate some of that money. :D Should I be worried that a month before getting that checkup, I also got one for renewing my life insurance policy??? :eek:
 
How lucky you made those adjustments to your insurance.....just in time, it seems.

Best Wishes.
 
Although I had had my MVP and MR for years, in the end our two cases look similar in that you have a 75% chance of a repair and I had an 80% chance, I also had ruptured chordae that seemed to rupture some time after the endocarditis which, by the way, like your endocarditis, came about not from a dental appointment, but probably from just brushing and maybe a slightly bleeding gum. I also had a perforation in the leaflet.

I really hope for you that your surgeon will be able to do a repair. Mine, in the end, had to do a more complex repair than the stardard "resection" (I think that's what it's called), because the P1 scallop of the posterior leaflet was too calcified (probably because of the endocarditis). So, instead, he pulled down the posterior leaflet with Goretex sutures to replace the two chordae that were ruptured. He also closed up the perforation in the leaflet, as well as closing up a patent foramen ovale (like an atrial septal defect). Then he did a left maze.

Anyhow, I wish you the best!!!
 
I had a bi-leaflet aortic valve from birth. Then onset of murmer. went 39 years no problems. Did have an enlarged left ventrical. Had endocarditis at 39 years old. After the infection cleared I had an AVR using a St. Judes replacement. The surgery was in April 2001. Went back for a a check. The doctor found what he thought was an infection on or near the mitral valve. The infection turned out to be torn chordea tendens. The doictors told me that the tendon torn when the heart left ventical reduced in size.
 
:)Wishing you the best of luck. I hope all goes well, and your back on your feet in no time.:D
 
......Regardless of what caused either event, these things are rare, and both together, back-to-back? well, apparently I was destined to have this surgery. :D I?m thankful at least that the overall damage is minimal and my heart should be back to 100% with this repair.


A very positive attitude and I wish you a successful surgery hoping your heart 'will be back to 100%' :)
 

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