mrsnuffles
Active member
Hi All,
I've been reading these forums for nearly a year and the information you guys give is a wonderful resource and I'd like to thank you all for that. This is my first post so I'll introduce myself.
I was diagnosed with what was originally described as a heart murmur in Sept 2007 during a doctors check-up. I was sent to the local cardio unit for chest x-rays, ecg and an echo and was told shortly after that that I have moderate to severe Mitral regurgitation. This came as a shock to me as I hadn't suffered any symptoms up until that point.
In Febuary 08, I went for a TEE which allowed my cardio a better look at the valve and I was refered to the regional Cardic unit in Swansea. After much too-ing and fro-ing (and hospitals loosing my echo resuts), I got to see a surgeon who advised me that a) I should be on Perindropril and b) I looked to be a good case for a repair, and that it should be done ASAP before any symptoms started.
Shortly after that I started on the Perindropril and worked my way up to 8mg which is the dose I am currently on.
In the mean time I decided I would do some research on the surgeon that I had been allocated. I found out that he has not carried out many (if any) mitral repairs and when I questioned him about his experience, his answers were vague and did not reassure me in any way that he was the man for the job. I have therefore, in the past week, requested to be refered to a more experienced Mitral Valve repair specialist, Prof. Von Oppell in Cardiff and I am now waiting for an appointment to see him.
Since the summer I have experienced the odd hollow feeling in my chest. This occured maybe once or twice a week but over the last 10 days, it has happened more frequently so have been to my GP who requested an ecg and a 24hr ecg. For the 24hr, I have to wait for a letter from the local cardio unit so fingers crossed it won't take too long.
I am at the stage now that I want to have the repair as soon as possible to get it out of the way. I have heard that the wait for Prof Von Oppell is shorter than the original wait I was quoted of 5 months so I'm hoping for some positive news soon.
This whole thing has been a testing journey and now I am nearing the top of the mountain, I feel anxiety and worry at times and I think this maybe causing the chest sensations that I have been recently feeling.
I will keep you all updated from now on and would like to thank you all again for this wonderful forum.
Andrew
I've been reading these forums for nearly a year and the information you guys give is a wonderful resource and I'd like to thank you all for that. This is my first post so I'll introduce myself.
I was diagnosed with what was originally described as a heart murmur in Sept 2007 during a doctors check-up. I was sent to the local cardio unit for chest x-rays, ecg and an echo and was told shortly after that that I have moderate to severe Mitral regurgitation. This came as a shock to me as I hadn't suffered any symptoms up until that point.
In Febuary 08, I went for a TEE which allowed my cardio a better look at the valve and I was refered to the regional Cardic unit in Swansea. After much too-ing and fro-ing (and hospitals loosing my echo resuts), I got to see a surgeon who advised me that a) I should be on Perindropril and b) I looked to be a good case for a repair, and that it should be done ASAP before any symptoms started.
Shortly after that I started on the Perindropril and worked my way up to 8mg which is the dose I am currently on.
In the mean time I decided I would do some research on the surgeon that I had been allocated. I found out that he has not carried out many (if any) mitral repairs and when I questioned him about his experience, his answers were vague and did not reassure me in any way that he was the man for the job. I have therefore, in the past week, requested to be refered to a more experienced Mitral Valve repair specialist, Prof. Von Oppell in Cardiff and I am now waiting for an appointment to see him.
Since the summer I have experienced the odd hollow feeling in my chest. This occured maybe once or twice a week but over the last 10 days, it has happened more frequently so have been to my GP who requested an ecg and a 24hr ecg. For the 24hr, I have to wait for a letter from the local cardio unit so fingers crossed it won't take too long.
I am at the stage now that I want to have the repair as soon as possible to get it out of the way. I have heard that the wait for Prof Von Oppell is shorter than the original wait I was quoted of 5 months so I'm hoping for some positive news soon.
This whole thing has been a testing journey and now I am nearing the top of the mountain, I feel anxiety and worry at times and I think this maybe causing the chest sensations that I have been recently feeling.
I will keep you all updated from now on and would like to thank you all again for this wonderful forum.
Andrew
