I need this surgery and of course, i am pretty scared....

  • Thread starter myheartsafluttering
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myheartsafluttering

Hello, I will be meeting with my surgeon on may 14th to discuss my aortic valve replacement. Needless to say, i am pretty scared....i was only diagnosed 2 years ago, probably living with this for quite awhile.....always complaining to doctors that i never felt quite right..I know I don't want a mechanical valve and I hope that i will be a canididate for minimally invasive surgery. I'm fifty-three year-old female......i'll have many questions for the surgeon, but if anyone can suggest others i will be truly grateful. My surgery will most likely take place at St. Francis Hospital in Roslyn, NY. Hope to hear from someone soon..can use all the encouragement i can get! Thanks..
 
Hope it goes well with your surgeon. Just wanted to say welcome, everybody is scared, i hope you can find some comfort on the forum, all the best with everything.
 
Welcome...........

Welcome...........

Hi, welcome to the site. Im glad you found us. You will find LOTS of information and get LOTS of support here. :cool:
 
Welcome to our Funny Farm. You've already taken a big step -- realizing that you need the surgery. We all were scared at the time of that realization, so you're not alone there. Ask away and you'll get plenty of information in response to your questions and concerns here.
 
One thing I wanted to add it that you need to make sure that you ask your surgeon a lot of questions about your minimally invasive surgery and the upsides and downsides. Often people come onto this board and assume that "minimally invasive" means that there will be minimal pain, minimal recovery time, and minimal complications. There have been individuals on this board who have had both minimally invasive surgery as well as the more standard sternum opening and have reported much more pain with the minimally invasive approach. The reason is that the surgeon needs to cut through a lot of muscle with all of the minimally invasive approaches while there is relavely little muscle cutting when they go through the sternum. If you have had a broken bone, you know that there is relatively little or no pain once the bone is reset until it heals. Compare that to an injured muscle pain (pulled, strained, etc.) and recovery and there is no contest. That said, it seems from my unscientific observations on this board that those who have a minimally invasive surgery have fewer restrictions (especially with regards to driving) immediately after surgery. One advantage of the full sternectomy is that it gives the surgeon the best access to the heart in case you have some complicating factors. I believe there have been some people on this board who went in for minimally invasive surgery, but the doctor ended up finding some things they didn't like and had to do the sternectomy as well to get better access - in that case you would get the downsides of both approaches and the upside of neither. The minimally invasive approach does, of course, offer cosmetic advantages. If you are a person who would feel extremely uncomfortable with a chest scar, that can be avoided. Regardless, please make sure you understand the pros and cons of each approach before making your decision. Best wishes.
 
Welcome to the club. I'm somewhat new here also. I only found out that I had a bad aortic valve less than two months ago. My surgery is Monday, May 12th.

Don't be afraid to ask your surgeon anything. I keep a littel Moleskine notebook just for my heart valve surgery. Its filled with info I found here on the forums and on the web.

Here are some of the questions I asked (some may not apply to you)
What type of surgery do I need? Why
How long have you been performing this surgery?
What is the greastest risk?
What is the expected outcome?
What is the success rate?
Would you let your child or relative have this type of procedure?

I also bought the book from this website: www.heart-valve-surgery.com. This book, along with this forum helped prepare me for my OHS next week.

Good luck.
 
Welcome to the VR community. Sorry for the circumstances but glad you found us. Being scared is normal. We're all been there. That that I'm post-op, I can honestly say it wasn't nearly as bad as I had feared. Best wishes and good luck.
 
Welcome to the best information you can get on this fourm.
Before you know it you'll be recovering.. Just trust in your drs and you'll be fine.
Again welcome to vr fourm....
 
Good luck and welcome to the forum. I had minimally invasive and didn't have much in the way of incision pain but I had severe shoulder pain for about 6 to 8 weeks.
Earline
 
welcome, welcome

welcome, welcome

I understand your position. I am in the waiting mode for my surgery, that is currently scheduled for June 10, but I am going in for another opinion on May 19th, which throws off my security in a date, but keeps me hopeful since I will be seeing "the best" in my area.
Can I ask, why dont you think you want a mechanical valve? I had a tissue valve when I was 20 due to the lack of meds (I am currently on nothing) but now face surgery number two -11 years later. The reason I had the tissue was so I could have kids with no complications, which I did. But now I am ready for the last surgery and getting a mechanical valve. Im sure you will feel much better after talking with your surgeon, and getting lots of advice right here on this site.
Welcome!
 
Welcome to this great group of people. I'm somewhat new myself here. I'm waiting for AVR surgery and i, too, am having a tissue valve. Being scared is normal...sometimes you feel like you're in a bad nightmare and just want to wake up and have it all go away! I just try to keep busy and enjoy each day, but it's still hard sometimes. Best wishes to you and i'm keeping you in my prayers. ~Hugs~ Dawn-Marie
 
Thank you to all of you....

Thank you to all of you....

:) Thank you to all of you who have replyed to my post......your encouragement and good wishes are truly welcome.....I have already learned quite a bit and feel a bit less apprehensive about all of this....I will let you know what my surgeon says and when my sheduled date for surgery will be.......also, those of you who are scheduled for surgery, i will also keep you in my prayers....and to those who have been there, I wish you continued good health! Talk to you all later! Stella
 
Welcome

Welcome

Welcome to our little mayhem. I see you are going to St. Francis. NYS Health Dept. publishes a report on heart surgeries, including valve and CABG. I had my surgery at St. Joseph's in Syracuse, which is #2 in the state for successsful valve surgeries. St. Francis is #1. I'd be confident in that choice.
 
Thanks!

Thanks!

tprice54 said:
Welcome to our little mayhem. I see you are going to St. Francis. NYS Health Dept. publishes a report on heart surgeries, including valve and CABG. I had my surgery at St. Joseph's in Syracuse, which is #2 in the state for successsful valve surgeries. St. Francis is #1. I'd be confident in that choice.


Thanks Tom, I needed to hear that! Hope you are doing well and enjoying life! I can't wait til I can actually walk a block, or go up stairs without getting winded! Then i want to get back to hiking trails in New Hampshire, maine, NY State, that i started to enjoy doing a few years ago until i suddenly couldn't keep up anymore........did you feel the difference quickly, or did it take a while? I have it in my head that i will feel different from the moment i wake up!
 
MikeHeim said:
There have been individuals on this board who have had both minimally invasive surgery as well as the more standard sternum opening and have reported much more pain with the minimally invasive approach. The reason is that the surgeon needs to cut through a lot of muscle with all of the minimally invasive approaches while there is relavely little muscle cutting when they go through the sternum.

I am so glad you wrote this! Believe it or not, the "breaking the sternum" thing is what freaks me out most about the surgery!

Now I can just think: beats cutting all those muscles!
 
myheartsafluttering said:
Hello, I will be meeting with my surgeon on may 14th to discuss my aortic valve replacement. Needless to say, i am pretty scared....

Are you bringing someone with you to the meeting? It's always good to do that. Even if you think you've written everything down, the other person will remember some good questions and remember info when you leave.
 
ponygirlmom said:
Are you bringing someone with you to the meeting? It's always good to do that. Even if you think you've written everything down, the other person will remember some good questions and remember info when you leave.

Excellent idea I had both my son and my husband with me and even between the three of us we missed some things.

If you considering minimally invasive surgery Ask him what you can expect from both surgeries. I had minimally but I had some very severe shoulder pain for weeks. like 8 to 10 wks.
 
In the event you have bicuspid aortic valve disease, request a CT scan or MRI to evaluate your aorta for aneurysmal dilatation. Ask your surgeon if he considers himself as an aortic specialist and what his track record has been in this area, how many, etc.
All my best,
Mr P.
 
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