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runningscared

Hi Everybody,

I'm being monitored yearly at this point, moderately/severe leaking aortic valve.

Ever since I found out about my bad valve which was a few years ago my runs have never been the same.

Why, after the cardio has told me it's okay to run do I still have crappy runs. I feel like I cannot run as fast or as far as I used to, I think it's all in my head though.

Any ideas on how I can get back to a faster/longer run! I mean, I am getting older, I'm a 47 yr old female. Should I just accept my slower pace or is there a way to pick things up a bit.

Thanks everyone.

Mary
 
Never Run Scared!

Never Run Scared!

Okay, I think there is a long version and a short version answer....speaking from my experience, my times definetly slowed from over the last say 10 years. I thought it was just age, until I was diagnosed April 2006. Then, looking back, my cardio (and PCP) and I agree it was the valve as much or more than just age. There are charts and studies showing age graded records and times. The problem is they are using top runners for the age groups not us mid to back of the pack people. My times slowed down much more than the sudies would ahve predicted. In any case, you may be experiencing symptoms due to your valve, not just age related slow down. Consider it a symptom...not and irreversible fact of life!:)
 
I was aware of my heart murmur since I was 10 years old. It prevented me from participating in high school sports and kept me out of the military draft in the Viet Nam years. I was always cautious about exerting myself, but by the time I was 30 I started to read where exercise was actually good for the heart, not detrimental and that taking it easy was counter productive in the long term.

I got into running in a big way at 30 and ran a few road races each year, at first casually, not at a very competitive level. As I got fitter and stronger my times improved and my confidence rose and I got more intense with my training. The race times were never much to write home about, 20 minutes or so for 5K, but I was happy with that level. And I ran at the level for many years with no ill effects.

It wasn't until I was 39 that the bad valve manifested itself. I had a minor stroke on my 39th birthday which put me in a funk for many months. Luckily my cardiologist was forward thinking and told me to go back to what I had been doing with no restrictions. But he noted, when it's time you'll know. That was somewhat perplexing at the time. How would I know when I knew? What signs, what eventuality, what shocker bigger than a stroke would I need to let me know? He simply said, when you can no longer do what you're doing.

I returned to intense training and racing. At age 40 and 41 I ran some personal best times at 10k and 15k. Then in 1990 at age 42 I was in pretty good shape and expecting to run one particular 15K at about 7 to 7:15 per mile. All my training times told me that's what to shoot for. At mile 5 I was on target with about 35 minutes and feeling fine but then came a hilly mile that I knew would slow me down. Would it be 7:30, maybe 8:00? No, it took me 9 minutes. The third 5K of the race was at least a full minute per mile slower than the first two thirds and I was working just as hard, maybe harder.

Then came the recovery. Instead of a week or two after a hard effort like that, it was a month and I still didn't feel quite right. He was right, it was time. The valve leakage had taken a major jump. These things don't get worse gradually, they tend to worsen in steps. You suddenly just tire out far more quickly doing the same things you normally do. With me I can point to the day, time of day and the spot on a city map. I had the valve replaced several months later.

Now, I'm not trying to scare you any more than you already are. I'm trying to let you know what to expect. You'll just get increasingly tired for no good reason. There will be little doubt when you need it replaced but until that time you can't go hide in a closet. You can continue to push yourself and enjoy yourself. When it's time, you'll know.
 
My experience is exactly the same as tprice54's. Don't be scared, be cautious and keep on top of the problem. As we can all attest here, there is life and a return to competition after surgery.
 
Valve problems manifest themselves differently in each patient.
As my valve deteriorated in my mid-40's, I started to experience chronic fatigue and shortness of breath. I could continue to push myself physcially, but I also developed left ventricular hypertrophy, which was not a good thing.
At some point you're going to have to accept the fact the your performance is going to be affected or that you are potentially risking further damage to your heart.
Mark
 
I'll have to agree with Mark in that each of us progresses at a different rate. I have aortic stenosis, and was diagnosed about 5 years ago. In my case, it was my noticeable decline in exercise tolerance that took me to the various doctors for evaluation. One of them noted my murmur and advised me to have it evaluated. The cardio then diagnosed AS and we began to realize that my decline was more the valve than age (I'm almost 60 now). I still jog 5 days a week, averaging 4 miles/day, but I've slowed my pace so that I can still exercise and enjoy it, but I stay within a comfort zone. The hardest thing has been accepting the reality that I must slow down. . .
 
Thanks everybody. I think a big part of it is that I'm scared to push myself. Everytime I get the least bit winded or tired I tend to slow myself way down. On the last couple of runs however, I have been trying to adjust my way of thinking, instead if constantly worrying, I'm trying to convince myself that I am actually doing my heart and myself good, by keeping my heart strong in case I do need to have the valve replaced soon.

At my last echo my cardiologist said he sees no reason why I can't hang on to my valve long enough to be a candidate for the robotic replacement. He said he'd rather I wait until they perfect that.

I guess I'll just keep on doing what I love, running, even though it is slower.

Thanks again.

Mary
 
I had a similar experience to yours. I wasn't having many symptoms except in the gym or upon exertion. I got it checked and cardio. said my valve was still good, so I went back but kept having problems - stamina was down, I wasn't feeling so good when I stepped off the treadmill. I would go for a while thinking it was all mental so I would ignore it. Then got to the point where I was tired of feeling bad/frustrated after and during my workouts. Kept bugging the dr. until he finally had me do an MRI, which showed that my MVP was more severe than showing on the echo. He actually gave me something during the MRI which sped up my heart rate and showed my MVP increase during this time. It would be wonderful to wait for the robotic procedure, but maybe your cardiologist could send you for an MRI. If anything, it would ease your mind if it's not any worse than the echo shows, or if you do need surgery sooner, the sooner you can get better! I had two OHS this year and it wasn't fun but I am finally feeling better and am back to working out. Good luck to you.
 
Mary, I was diagnosed with aheart murmur when I was 6yo. My dad, who was a physician, said not to worry about it~do what I wanted~business as usual. So I never gave it another thought, except to be cautious about what I ate (became vegetarian at age 12) and skiied like crazy, ran, biked, swam on swim teams, did it all! In my late teens I developed some eating disorders so it was recommended to me to do yoga as therapy to help me get over them. I learned this great yogic breathing that masked my problems until I was shocked to find out my valve had closed almost completely down. I couldn't believe the difference in my breathing, strength and energy level after I had healed from the surgery! I thought I felt wonderful before OHS; had even climbed a 14,000' mtn. the day before I was rushed in for carotid artery surgery-both sides. Skiied with everyone and kept up fine but I'd get totally winded walking from the car to the lift line, but since everyone else said they did too, I didn't give it another thought. Then the fateful day came when my dr. said my echo had gone from moderate to severe to extremely severe and my choice then became what kind of valve I was going to have and how quickly could I get in to have it replaced. I really didn't know I was in dire straights b/c I had coompensated for it for so long, so I can't encourage you enough to stay on top of the whole thing and make sure your dr. does too! I credit my dr. with saving my life three times b/c she stayed on top of it while I was doing everything I normally did and then some.

Stay well!
heartfelt
 
Hi, I can totally appreciate what you are going through, I went through a similar situation prior to my surgery. One thing I would mention is that when I learned I needed surgery and found this site, the one major thing that gave me hope was this section of VR.com. Wow, people had major surgery and went on to run marathons, race bicycles, and do all kinds of things. I hesitate to ask but wonder if your cardiologist thinks surgery could improve your health....
best,
JD
 
do yourself a favor and stop trying to push to reach your old times. The very first sign that I had a problem was when at age 48 I noticed a decline in my own workout performance. I just attributed it to age--I was closing in on 50. The more I pushed, the harder it became. Then came the diagnosis of bicuspid AV with severe regurgitation.

I have been active my entire life; former surf lifeguard, lifetime swimmer, runner, weightlifter.

It is now time to listen to your body, and it is saying "back off". Don't stop. Just stop trying to push yourself to maintain your PR's.

Read my post under post-surgical. I am convinced that staying in excellent physical condition has enabled my fast recovery.

We exercise to live, we do not live to exercise. We are not defined by how fast we run, how far we swim, or how much weight we lift. Once I was able to get a grasp on this, life became much easier.

Sorry for the lecture, but I have been there and done that.

Good luck to you
 
doberman said:
...when I learned I needed surgery and found this site, the one major thing that gave me hope was this section of VR.com. Wow, people had major surgery and went on to run marathons, race bicycles, and do all kinds of things.

I agree, this site is invaluable. When I had AVR in 1991, this site or anything even remotely like it did not even exist yet. I was already connected to the internet then, an early adopter, and used Netnews, the grandfather of all web forums, a lot at the time. There were merely tens of thousands of people on the internet as a whole, certainly not hundreds of millions as today. So try as I might, I could not find anyone with a similar experience to discuss such things with.

I was on my own when returning to running. Contemplate that as you continue toward the OR. What if there was no one you could turn to and get a straight answer? Now you do have this resource where you can get instant response from many others who've been there and done that before you. People with exact same heart history, same surgery, same recovery, same goals. It adds an extra dimension to the advances in technology and medical procedures. Knowledge. And everyone here will admit that has immeasurable value.
 

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