B
bellotti
Hello, I just found this site today. What a great resource.
My son Asher is 2&1/2 months old. He was diagnosed with a bicuspid AV at birth. At that time the pressure gradient (???) was 18mmHg, considered mild-mod. Well, at his check up this week it was now averaging 48mmHg, bordering severe. Our Cardiologist (Dr. Timothy Cordes at Riley CH in Indianapolis) said he needs a balloon cath and after consulting the interventional Cardiologist
(Dr. Mark Hoyer) we are scheduled for the 22nd. Needless to say we are in a state of shock, never expecting things to progress this rapidly. I've been doing the research on PubMed for statistics and such.
I posted here because I would greatly appreciate any advice anyone might be able to give my wife and I in dealing with our sons condition and the potential future surgery(s). We haven't met many people yet that can give us any help. Looking at statistics and potential for multiple surgeries, the future looks depressing But I see people on here who have been and are currently going though it and seem in great spirits.
Thanks,
Pete
My son Asher is 2&1/2 months old. He was diagnosed with a bicuspid AV at birth. At that time the pressure gradient (???) was 18mmHg, considered mild-mod. Well, at his check up this week it was now averaging 48mmHg, bordering severe. Our Cardiologist (Dr. Timothy Cordes at Riley CH in Indianapolis) said he needs a balloon cath and after consulting the interventional Cardiologist
(Dr. Mark Hoyer) we are scheduled for the 22nd. Needless to say we are in a state of shock, never expecting things to progress this rapidly. I've been doing the research on PubMed for statistics and such.
I posted here because I would greatly appreciate any advice anyone might be able to give my wife and I in dealing with our sons condition and the potential future surgery(s). We haven't met many people yet that can give us any help. Looking at statistics and potential for multiple surgeries, the future looks depressing But I see people on here who have been and are currently going though it and seem in great spirits.
Thanks,
Pete