Memory Difficulties

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J

jfprofit

I am now almost 6 months post AVR surgery and I was wondering....
Do any of you feel that your memory is somewhat diminished after your surgery? There are things I used to know and now I'm asking about them. I can't seem to remeber things as well. (I thought I might be suffering from ADD, so I tried to take the test on line, but I couldn't finish it. I suppose that's diagnostic in itself.)
 
I'm sure you'll get some personal testimonials here -- if only we can remember what to say. :D :D

As usual there are plenty of people more expert than I and I'm sure they'll be along eventually (some may be away on this Independence Day).

In short, there is something called the "pumphead" syndrome that can result from being on the heart-lung machine during surgery -- in general, the longer on it, the more likely to have some diminishing of memory. I think I'm right about this (haven't looked up the literature) but I believe the effect tends to fade over time.

Hard for me to say if I experienced any of this because my memory has always paled in comparison to my wife's. She had a stroke and really scary surgery (I mean scarier than OHS) 10 years ago to repair a brain aneurysm -- and yet she still remembers the birthdays and anniversaries of everyone in the family and extended family. I do good just remembering hers. :D

Doesn't sound like you have severe memory loss. Wouldn't hurt to chat with your doctor about it sometime though. There are probably specific mental exercises that can be done to improve this. My wife swears that watching "Wheel of Fortune" and "Jeopardy" got her synapses firing again :D
As for me, I don't remember. :D
 
Yup, "pumphead" lives. Pain in the neck.

I think the majority of us who've experienced it have found it diminishes, if not vanishes, after a while. Can't put a timeline on it, tho.

I had a touch of aphasia from chemotherapy I had a long time ago; had more trouble with words after ohs. Still have trouble, not as bad; have found out how to maneuver around it, I think. And I have far less trouble when typing than when speaking (tells you something about neural pathways).

Had great holes in my memory for a couple of months after surgery. There are still things I can't remember (i.e., my husband was in a production of "Jesus Christ Superstar" about 6 weeks after my surgery; I can't remember the production at all. I can only remember a conversation I had with a friend I had in the theater prior to the show). But generally my memory is fine now - I never forget appointments, etc.

There have been studies that show that pumphead exists years out after ohs. Guess I'm not going to worry about it; pumphead or dead? I'll take imperfect memory.

Incidentally, my surgery was quite long - 8.5 hours.
 
You sound like me....Am I pumphead or am I ADD? I had compromised oxygenation prior to surgery...and boy was I uncomfortably spacey. I teach ADD kids so if anyone is going to know ADD it would be me. I would have bet your ranch on an ADD diagnosis, but upon going to my psychologist last month, he said rarely are people MY age diagnosed with ADD. I figure pre-op it was related to oxygen levels...post-op pumphead. It is really hilarious for two post-op heart patients both with pumphead to talk. So many unfinished conversations....but who notices??
Debbi
 
You know -- I think I was on the machine for a long time. I don't even know for sure because getting to talk to my surgeon post-surgery was not easy. I kept being seen by his PAs. I was in surgery something lke 6 hours -- so I guess that means a long time on the machine.

I've never had any memory problems since first waking. I was sharp as a tack then and still am (maybe I am delusional?? :confused: :eek: )
 
5 months later and forget the word I want to use in a sentence or can't remember someones name. Makes me mad.:mad:
 
Ditto on the pumphead syndrome, I am 2 Months out, still learning what happened in the hospital from my wife as she fills me in. I to am looking forward to the day my memory returns.

Best of luck,
Doug
 
I think pumphead is very real. I think it varies dramatically from individual to individual. My cardio said that my "cognitive issues" should dissipate. No timeline given!

It's funny to feel clearer in the head (I was very spacey prior to surgery) and yet have trouble with recall. I've never been great with names or labels, and that is where I'm still balking. It has gotten MUCH better this last month, so I am encouraged. At first I could not pull out important words (you know, have to use a whole phrase to explain when obviously one vocabulary type word would have worked and I should have known it.) My husband and daughter laughed at me when I first got home because I wasn't making much sense for awhile. I thought I was making perfect sense, though!! :p

Try not to worry too much about it. It really seems to be an individual thing. Doing things to exercise your brain cells (or whatever!!) might make you feel like you're trying anyway. You know, use a different hand to tie your shoes, or to button your shirts, or comb your hair. Do some crosswords (I hate them!) or word finds. Read the editorial page every day for awhile (those people think way too much!!).... stuff like that.

And by all means discuss it with your doctor if you don't feel right.

Oh, and Doug......I think some of the pain meds they use in surgery actually have amnesiac type properties. They don't want you to remember!!

JF. Where is there an online ADD test?? Curious about those! :D

Marguerite
 
we have had dozens of discussions about the pumphead syndrome (the drs fondly call us pumpheads because we got the syndrome from being on the heart/lung machine during surgery). If you search (key is above) you can go all the way back to when we started and find several articles by doctors on this subject along with their explanations for what causes is.

Some doctors pooh-poohed it to begin with and I don't know if they ever accepted the pumphead fact. It IS real.

They are now doing surgeries without the patient being on the pump but not everywhere yet.

I have it. Some is pumphead, some is meds, later on some became plain old age (I'm way older than most here; I had bypasses and not valve rep).
 
RandyL said:
5 months later and forget the word I want to use in a sentence or can't remember someones name. Makes me mad.:mad:
Especially when making a business call and you know the word you want before the phone is answered, but sound like a stuttering idiot when your talking to someone. :mad:
 
Ross said:
Especially when making a business call and you know the word you want before the phone is answered, but sound like a stuttering idiot when your talking to someone. :mad:


I think that's one of the reasons I love this place so much. Even before surgery......no matter what I say or ask or respond or confess here....... I never feel like an idiot!! Everyone understands! :D :D

Just a random thought. Guess maybe randomness comes along with the pumphead!! :p

Marguerite
 
jfprofit said:
(I thought I might be suffering from ADD, so I tried to take the test on line, but I couldn't finish it. I suppose that's diagnostic in itself.)


36_11_6.gif

I'm not laughing AT you I'm laughing with you! When I read that sentence it gave me a good chuckle because of the irony of taking an ADD test but being unable to finish it!

LB:D
 
Memory difficulties

Memory difficulties

I'm almost six months out from my second OHS and I still have problems with finding a word I want to use. From my first surgery, May 2005, until about two months ago I was unable to finish a book and I love to read. I can now do it and have made up for lost time.

Doing mental exercises is a good idea. You know the old adage "use it or lose it." I did crossword puzzles (not my favorite) and spent hours playing Spider Solitaire on my computer. I think it really did help. I not only have the excuse of being a pumphead, I have lupus and we have brain fog, and I'm menopausal. With all those excuses I don't have to remember anything! (just kidding)

The memory problem is getting better and as I said I can now read an entire book. I still have a bit of a problem with finding the right word, especially when I'm tired, but I'm getting used to it. I do admit, it is frustrating to lose some of a faculty we use all the time, but it is a trade off: a good vocabulary or a healthy heart. I'll take the heart.

Barbara
 
LadyBlue said:
36_11_6.gif

I'm not laughing AT you I'm laughing with you! When I read that sentence it gave me a good chuckle because of the irony of taking an ADD test but being unable to finish it!

LB:D
You are so bad! :cool:
 
I am an avid reader and buying books costs me quite a lot of money. The bonus of now having a poor memory is that I can finish a book and then start it again, I will have forgotten the plot so it is almost like reading a fresh book! :)
 
I was going to say something about this string but I forget what I was going to say. This is pretty scary, you think I might be more spacey post-surgery, than I am now! :eek:

Randy
 
I do some computer games every morning to check how well I can mentally function. If I have any trouble winning, then I probly ought to stay home that day! This morning I did really well so I went out to the real estate office, pharmacy, got my hair cut and then braved WalMart and bought more than I should. I haven't done that in a good while, so my dr has brought me out of my funk and helped my poor ol brain to get goin again. well, for today anyhow.
 
Ozmercy said:
I was going to say something about this string but I forget what I was going to say. This is pretty scary, you think I might be more spacey post-surgery, than I am now! :eek:

Randy

Maybe, but we can show you how to work around it! We all have some tricks.:p :rolleyes:
 
Oh--I just remembered...

Oh--I just remembered...

Thanks to all of you for your responses. I only just now remembered that I posted the question a few days ago. I feel better knowing that I'm not alone-but I do feel badly for your family members. I am absolutely certain that I know something-or that I heard someone say something-but no one else remembers it. I was convinced it was a grand conspiracy against me, at least until I read your posts. Unless...are all of you in on the conspiracy? *smile*
 

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