meanwhile I'm exhausted x sleepy x suffering palpations throughout my body x pains in my arms legs breast back neck x out of breath doing the slightest thing
Hi Leah and welcome to the forum.
Although it may not seem like good news, the fact that your medical provider has diagnosed your aortic stenosis is actually a good thing. Many don't find out about their stenosis until they have an event and there is a solution for your diagnosis- surgery, with excellent outcomes following surgery. Facing valve surgery can seem very scary, but we have all been through it and, while it is not a walk in the park, it is not at all as terrible as it might sound. It is very likely that you will feel much better following your surgery.
Given that you have been diagnosed with aortic stenosis, these symptoms which you describe should be evaluated as soon as possible to determine if they are being caused by your stenosis and whether your symptoms are classified as severe. I would suggest calling the cardiologist's office back and make it very clear that you are having these symptoms. If they are aware of this they may move up your evaluation date. You indicated that you were told that you were being fast tracked to the cardiologist initially, presumably by your physician or the ER unit. You should also contact whomever it was that told you that they were fast tracking you to cardiology and let them know that you were not "fast tracked" but are being made to wait months. Perhaps they can do something to help fast track your cardiology appointment, as that was apparently their intent following their initial evaluation of you.
Sometimes the urgency is not properly communicated in a referral. Ideally, you should be evaluated and considered for surgery soon, not in months. I understand that depending on where you live that they still may not see you for months, but I would push to be evaluated by a cardiologist soon and I would be persistent about it.
From the link provided below:
Symptoms of aortic stenosis may include:
Chest pain
Rapid, fluttering heartbeat
Trouble breathing or feeling short of breath
Feeling dizzy or light-headed, even fainting
Difficulty walking short distances
Swollen ankles or feet
Difficulty sleeping or needing to sleep sitting up
Decline in activity level or reduced ability to do normal activities
https://www.heart.org/en/health-top...lems-and-causes/problem-aortic-valve-stenosis
Please keep us posted.