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Has anyones cardiologist told them that they can only do light to moderate aerobic exercises? I am 24 years old (had ross late 90s then a repeat surgery in 2013 on the aortic and pulmonary valves). He is telling me to do light weights, lots of reps. Also told me he does not want me to run 6...

It seems like maybe this is the same case here. My cardiologist made it seem like my valves were functioning just fine (pulmonary valve actually looked better this year than last year). He just said that with valve replacements in general, the valves are not our natural valves so, as a result...

I think you may have misread my original post, I already have had surgery twice. Its just this is the first time I am hearing about 'turbulence.' I have had murmurs before; however, never knew that turbulence and murmurs may be the same thing?

Yes, thank you for your response! This has just been so stressful.... Here I thought if I get 2 tissue valves I will be back to normal without any problems until calcification begins... and that seems to not be the case. Not that he is saying anything is completely wrong, just that replacement...

Is turbulence just another term used for murmur? I am not sure about the gradient and ejection fraction; however, everything seems to be functioning well and everything is acceptable.

I just got back from my cardiologist and am freaking out a bit. In March of 2013 I had my second heart surgery which corrected my Ross Procedure. Both the aortic and Pulmonary valves were replaced. I just came back from my cardiologist and he says that he hears turbulence in my valves but this...

Hey, I know I might just be paranoid about endocarditis, but I just noticed that my mole was bleeding while I was sleeping (might have scratched it off) and I was just wondering if this is known to cause endocarditis. Once I woke up and cleaned the dried up blood, it began to bleed again and it...

Hey, I had a couple of questions about exercising with a pulmonary valve that has stenosis. I would like to start exercising; however, I might be needing surgery on my stenotic pulmonary heart valve any year now. The cardiologist said that I am at a point where I can choose intervention now...

apparently i spoke to the doctor but dont remember doing it haha I have an appointment on the 4th. The experience kinda traumatized me though :( Really dont like hospitals

well i had my scary cath today and my appointment on january 4th lol

I know this isnt a valve replacement surgery or anything but I havent had my teeth/mouth cleaned by a dentist in a while (over a year) is it okay to get the cath done tomorrow?

have my cath tomorrow. Nervous/scared!

ah the melody valve is so tempting! But the person that would be doing my melody valve implant said she is not sure which is best for me out of the implant or OHS. She said out of almost all her patients I am probably the best candidate for OHS since it seems like it would go well and my body...

Are the people you know of fine with the melody valve?

thanks lynlw!

thank you everyone :) Still a little scared but not feeling the same way i used to. A little nervous about the cath test on the 16th but I guess thats normal before any medical procedure. Do any of you have experience with the melody valve? I am worried about the stent fracturing since there is...

Well i spoke to the person that would be doing my melody implant and this is what we worked out with her. I am getting the cath test on dec 16th to see how far gone my valve is. After I get that test i will meet with her and she will tell me if she thinks that it would be safe to get the melody...

I have my catheter exam scheduled for dec. 16th so we will see how severe my stenosis really is. Im not even sure it will be very severe because i feel fine/ dont have a shortage of breath throughout the day. I actually thought i felt better this year than i did a year ago.

SOO alot has changed lol . I havent been on in a while but ive received good news from a couple of doctors. Basically my hematologist did tests in 2003 and apparently the diagnosis of bernard-solier was a misdiagnosis and i do not have it. I just have a minor platelet storage dysfunction and its...

bernard-soulier :(