Search results

Wow, thank you pellicle. That is nice thought. Radiation is also not so good for hearts/valves//lungs. I am trying to traverse all that new input in a brief time window. Maybe this site should start a new forum for "Complicating factors" like cancer etc.

Thank you everybody for all your responses. Sounds like there is a lot of variability depending on procedure, doctor and valve. I have decided to go back to Mayo for the lumpectomy, I still have a cardiologist there. That gives me a certain amount of reassurance. When I chose the mechanical...

Pellicle, I read the articles and blog. So I was just reaching out to see what other valvers' experiences might be. Has anyone just skipped warfarin, or dosed down to low but therapeutic INR? Has anyone heard or read research to the contrary or had experiences with their providers about this...

Hi folks. I've been gone awhile-long story. So I was doing pretty fine with my On-X valve which I got May 24, 2017. Back at gym, INR freakishly stable. This January I received a diagnosis for invasive ductal cancer and I am headed for a likely lumpectomy in a couple of weeks. The bridging for my...

Hi folks. I've been gone awhile-long story. So I was doing pretty fine with my On-X valve which I got May 24, 2017. Back at gym, INR freakishly stable. This January I received a diagnosis for invasive ductal cancer and I am headed for a likely lumpectomy in a couple of weeks. The bridging for my...

Hi Tigerlily; I would want to know if there was LVH or Left Ventricular Hypertrophy and if you are having any symptoms? Plus, I always believe a second opinion is called for. good luck and hope you get answers soon. Bonbet

I wonder if anyone has experience or knows about restarting the heart when the surgery is over. Cleveland Clinic says that the heart typically restarts once the pump is disconnected. After my AVR on 5/24; when the ICU nurse was reporting off to my PICU nurse, my bf heard her say that they had...

Good luck Eric, but more than luck: you have pretty much the best surgeon in the world. Holidays are not a bad time to be in the hospital - it is pretty quiet (except in ER) and the nurses are happily making time and one half!

Anne; so good to hear you are not facing an imminent re-op! And your attitude is great. I have always had low BP and Metoprolol is standard after AVR but even so they debated whether to give it to me. Every new nurse freaked out because my systolic was between 85 and 100. They ended up dividing...

Thanks to all of you for your thoughtful and reassuring responses - the reason I love this site! epstns; I thought of you frequently while we were negotiating the arrhythmia vs pacer issue. But all this time, I have read your posts, I mistakenly thought you had afib. The "body guardian" monitor...

I am 3 1/2 weeks post AVR for severe aortic stenosis of a bicuspid valve. I have a 25mm OnX mech valve. It has taken a bit of time for m to be able to talk about what happened because I am disappointed. I know many of the wonderful people on this forum are positive thinkers, and I appreciate...

Thank you everyone for your encouragement! It feels more surreal the closer I get. Juli, I am so glad you had a positive experience at OHSU and that you had such a rapid uneventful recovery. Hearing that is very reassuring. Bonbet

I have known for 17 years about my BAV but have only really been consciously in the waiting room for about 7 or those years. Mayo told me in March that my numbers, which had been steadily on the cusp of severe since about 2013, had taken a sharp turn downwards and I have LVH and it's time. I...

Paleywoman: wow your LVT seems to have developed rapidly. I am so sorry to hear that you are facing another surgery. You have been such a bastion of info and more importantly caring counsel on this site, especially for me. I hope this surgeon does an awesome job, and you are back to your awesome...

The Mayo plans to discharge me and let me take planes and automobiles back to my home in Oregon a mere 5-7 days after surgery. They say they do it all the time. They advise that you can arrange to get up and move around every hour or so. So my travel home will be a splurge on first class. It's a...

"(Edit -- except for the part about giving up alcohol in exchange for a normal life expectancy. I'd totally go for that deal.)" Really?! I have to give up my delicious glasses of red wine! I am cancelling my surgery. Seriously, I didn't think it was necessary to give up the pleasure of red wine...

True, Cleveland is a good choice. Albany General also rates pretty well. If you want to go to NYC then Cornell Weill is excellent. NY is one of the few states that has mandatory reporting program for hospitals and surgeons (or at least they did in 2012 -ish) when I was thinking about it. They...

Pellicle: Thanks for the explanation. And the graphic. Bonbet

Pellicle; got to wonder how that transmission occurred - during surgery for pete's sake. Did the hospital track it down to the carrier? Same with Aetos - someone had to be transmitting it- if not directly then onto the equipment. It scares me as I have multiple antibiotic sensitivity. Bonbet

Wasn't there a post somewhere on the forum from someone who got endo from the bacteria that causes acne? Bonbet