Recent content by katie1234

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  1. K

    Families and how they are affected

    My mom told me she felt a lot of these feelings about the way her surgery would affect my brothers and me (she had it three years ago when we were all in our early to mid-twenties). She was really upset about it and apologized to me that I had to see her go through this. I wasn't surprised that...
  2. K

    Thoughts and prayers for my friend

    Thank you so much for all of your prayers and thoughts. Michelle read and appreciated them. I am so sad to let you know that she did not make it through her surgery. I want to stress as much as I can that she was not a typical case, nor was she going in for a valve replacement. She had an...
  3. K

    Thoughts and prayers for my friend

    Hi there, I just wanted to ask for some prayers and good thoughts for my amazing friend and office room-mate Michelle, who is going to have surgery next Tuesday to fix an aortic anyuerism that is partially dissected. This is her third OHS; her first was an emergency for an aortic dissection...
  4. K

    valve choise for radiation damaged valve

    Hi there, My mom had radiation for Hodgkins in the 1970s and got her aortic and mitral valves replaced in July 2007. We got several opinions and everyone said to go with mechanical for the reasons you and LuckyGuy stated stated. So she had decided to go with the On-X valves but when she came...
  5. K

    Please Prayfor my sister Florence Again

    Saying prayers for you and your sister.
  6. K

    restrictive cardiomyopathy

    thanks very much!
  7. K

    restrictive cardiomyopathy

    Thanks very much guys. I appreciate the support and the heads up about Dr. Lytle. We are working out the consult now. Al, I think I read somewhere that cytoxan (sp?) after radiation therapy can increase the probability/extent of damage from radiation. My mom had several courses of cytoxan after...
  8. K

    restrictive cardiomyopathy

    My mom hasn't been doing well (extreme fatigue, SOB, constant hacking cough and recurrent fevers) so she had a right heart cath last month. The results indicate that she has radiation-induced restrictive cardiomyopathy, which from what I have learned on the internet seems to be pretty rare and...
  9. K

    brian is on his way to the ER

    That's great news! Will keep you guys in my prayers. Hope he's back home tomorrow and feeling much better.
  10. K

    LynW's Mom passed away today.

    Hoping that you're doing okay. Thinking of you.
  11. K

    long overdue update on Lorraine1234

    Thank you so much for that information. I didn't realize that your Joe had such similar conditions, Nancy. I will go to that site you sent me and will ask the docs about Tracleer and Revatio- it's wonderful to hear that they can work even when you have a lot of other problems. Thanks so much...
  12. K

    long overdue update on Lorraine1234

    I am sorry that I turned out to be one of those people who only post when there's bad news. I will try to be better about that...and here is some bad news: My mom hasn't been feeling that well in the year and a half since her surgery (she had a couple of good months but things have been bad for...
  13. K

    Waited 8 years to write - "I'm HOME!"

    Welcome Home!!! Thank you so much for sharing your wonderful news. You are quite an inspiration. I am just so happy for you. Please continue to take good care of yourself, do all the sleeping/eating/(slow and steady)walking/and incentive spirometer you can. Congratulations, Katie
  14. K

    Getting out of the "waiting room"

    Hi Barbara, I am thinking of you and sending you hugs and prayers for a smooth surgery and a great recovery. My mom has two tissue valves and they are working great. She does deal with other problems, but I think the consensus is that these are actually probably from her radiated lung issues...
  15. K

    JUstin's year appt today

    That's great news! So happy to hear it.
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