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My mom told me she felt a lot of these feelings about the way her surgery would affect my brothers and me (she had it three years ago when we were all in our early to mid-twenties). She was really upset about it and apologized to me that I had to see her go through this. I wasn't surprised that...

Thank you so much for all of your prayers and thoughts. Michelle read and appreciated them. I am so sad to let you know that she did not make it through her surgery. I want to stress as much as I can that she was not a typical case, nor was she going in for a valve replacement. She had an...

Hi there, I just wanted to ask for some prayers and good thoughts for my amazing friend and office room-mate Michelle, who is going to have surgery next Tuesday to fix an aortic anyuerism that is partially dissected. This is her third OHS; her first was an emergency for an aortic dissection...

Hi there, My mom had radiation for Hodgkins in the 1970s and got her aortic and mitral valves replaced in July 2007. We got several opinions and everyone said to go with mechanical for the reasons you and LuckyGuy stated stated. So she had decided to go with the On-X valves but when she came...

Saying prayers for you and your sister.

thanks very much!

Thanks very much guys. I appreciate the support and the heads up about Dr. Lytle. We are working out the consult now. Al, I think I read somewhere that cytoxan (sp?) after radiation therapy can increase the probability/extent of damage from radiation. My mom had several courses of cytoxan after...

My mom hasn't been doing well (extreme fatigue, SOB, constant hacking cough and recurrent fevers) so she had a right heart cath last month. The results indicate that she has radiation-induced restrictive cardiomyopathy, which from what I have learned on the internet seems to be pretty rare and...

That's great news! Will keep you guys in my prayers. Hope he's back home tomorrow and feeling much better.

Hoping that you're doing okay. Thinking of you.

Thank you so much for that information. I didn't realize that your Joe had such similar conditions, Nancy. I will go to that site you sent me and will ask the docs about Tracleer and Revatio- it's wonderful to hear that they can work even when you have a lot of other problems. Thanks so much...

I am sorry that I turned out to be one of those people who only post when there's bad news. I will try to be better about that...and here is some bad news: My mom hasn't been feeling that well in the year and a half since her surgery (she had a couple of good months but things have been bad for...

Welcome Home!!! Thank you so much for sharing your wonderful news. You are quite an inspiration. I am just so happy for you. Please continue to take good care of yourself, do all the sleeping/eating/(slow and steady)walking/and incentive spirometer you can. Congratulations, Katie

Hi Barbara, I am thinking of you and sending you hugs and prayers for a smooth surgery and a great recovery. My mom has two tissue valves and they are working great. She does deal with other problems, but I think the consensus is that these are actually probably from her radiated lung issues...

That's great news! So happy to hear it.

Thanks so much, I really appreciate it. I will definitely check it out.

Sending thoughts and prayers for you and Justin!

Thanks so much for the support and suggestions. I am looking into the amyloidosis as a possibility. And DesignLady, I hadn't read your story before but I looked up the threads you have started and it sounds so similar to my mom. You guys are such fighters, I know it. Al, my mom reported last...

Thanks, Nancy. I'm going to look into this amyloidosis. After I posted this I did a search for pulmonary fibrosis and saw that you had gone through this with your husband. I also see from your posts that you seem to have gone through this weird and frustrating experience of trying to figure out...

We are approaching the one year anniversary of my mom's AVR and MVR (7.20.08)! My mom mentioned to me the other day that this anniversary is kind of hard for her because, although she is of course extremely grateful to have had the surgery and gotten through it, she hasn't been feeling well at...