Recent content by c terra

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  1. C

    computers & pacemakers

    Thanks so much for all your suggestion ! Some of them I have tried. Like noticing what postion my hand and arms and sitting up start. Doesn't seem to matter. And yes I have stood behind my husband while he is on the computer and I still have the same experince. And have used a family members...
  2. C

    computers & pacemakers

    Hey it's me again... I was encouraged to bring this to the list. Don't know how many have pacemaker's but I have had this strange thing happen ever since I got my pacemaker a year ago. Actually, a week after my BAV replaced. Here is what happens...with in seconds to a few minutes after I'm on...
  3. C

    1 year yesterday....Nov. 5, 2008

    Hey just wanted to say ... I had my 1 year anniversary yesterday Nov. 5, 2008. I had my BAV replaced with a cow valve and then got a added bonus Nov. 12, 2008 of having Metronic pacemaker. But I am very thankful because I wouldn't be here spending time with my family & friend other wise. I had...
  4. C

    left leg pain while lying down...is this related to BAVD?

    I also have pain in my legs. A few months ago it sent me to the ER. They checked for Blood clots everything was ok. My cardiologist was concern and felt like I was retaining a lot of fluid(they want put me on a duratic-whole nother issue) But she prescibed something that has helped some. They...
  5. C

    Cardiac Rehab or NOT?

    I was so glad that I went through Card. Rehab. Not only did it help me with my physical part of recovery but helped me with the mental part. In fact, I am 6 months out and I am still in the maintence program they offer...which has helped me feel a little more secure cause I started having some...
  6. C

    Just wondering if anyone has experinced these symptoms post surgery ?

    Thanks so much for sharing ! c terra
  7. C

    Just wondering if anyone has experinced these symptoms post surgery ?

    Sorry, I was just re-reading my last post ... I meant to say my EF is 59. Thanks again ! c terra
  8. C

    Just wondering if anyone has experinced these symptoms post surgery ?

    Thanks so much for your sugguestions so soon. The medicine was MethyIPREDNIsolone. And yes, I was only on one series of this medicine but didn't help at all. When my cardologist speaks of my echo being normal they often say the arotic valve looks good (by the way I have a cow valve) still have...
  9. C

    Just wondering if anyone has experinced these symptoms post surgery ?

    Hi there ! It's been awhile since I posted... but was wondering if anyone has experinced these symptoms after surgery ? I am about 5 months out from having BAV replacement surgery and then a week later having to have a mentronic pacemaker because of total heart block after the OHS. I gratuated...
  10. C

    Surgeon Shocked: MVR, MV 3x's the size of a normal valve? Is this common?

    I had this happen with my Aortic valve. All the test TEE, Echo, & Heart Cath showed moderate to moderate/severe. I was very symptomatic and had done polum. fun. test too. They decided to go ahead with the BAV replacemant. When the surgeron came out to speak with my husband after surgery he said...
  11. C

    Still have night sweats?

    I too had night sweat for about 4 months after surgery BVA. They were AWFUL ! My card. put me on Nitrogylen patch about a month ago and my night sweat or no longer. Don't know if it helped ....or it just happened. Was put on Nitro patch because of angenia. c terra
  12. C

    Secondary symptoms to BAV/CTD

    I had BAV replacement in Nov 2008 and I found out about a week after I had the valve problem that I also had limited scleroderma, which is a conective tissue diease. I too have Raynunds syndrome. c terra BVA Nov 5 2008 Metronic pacemaker - Nov 12, 2008 Total Heart block Mtiral vlave leaking -...
  13. C

    Have a question ? Any one experience hot sweat & cold sweat after BAV replacement ?

    Thanks again for everyone's responses. I went to my Internist today and they took "a boat load" of blood from me. Said it should be at least 48 hours before they know anything. I hate that others have experienced these awful sweats but it is confronting to know you are not the only one. I do...
  14. C

    Have a question ? Any one experience hot sweat & cold sweat after BAV replacement ?

    Thanks for the repleys. As I said earlier I've been taking Tylenol (extra strenght 1000mg) 3 times a day since about the 4 the day home from the hospital. The stuff in hospital (norna sp?) or what they sent home for me gave me horrible panic attacks. So I stopped that ! I have, not taken it for...
  15. C

    Have a question ? Any one experience hot sweat & cold sweat after BAV replacement ?

    Have a question ? Any one experience hot sweat & cold sweat after BAV replacement ? Just wondering if anyone has experienced having hot sweats/cold sweats after having OHS (BAV).? I'm 8 weeks out from surgery. I was experiencing this some before surgery especially when I had platations.Which I...
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