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Thanks so much for all your suggestion ! Some of them I have tried. Like noticing what postion my hand and arms and sitting up start. Doesn't seem to matter. And yes I have stood behind my husband while he is on the computer and I still have the same experince. And have used a family members...

Hey it's me again... I was encouraged to bring this to the list. Don't know how many have pacemaker's but I have had this strange thing happen ever since I got my pacemaker a year ago. Actually, a week after my BAV replaced. Here is what happens...with in seconds to a few minutes after I'm on...

Hey just wanted to say ... I had my 1 year anniversary yesterday Nov. 5, 2008. I had my BAV replaced with a cow valve and then got a added bonus Nov. 12, 2008 of having Metronic pacemaker. But I am very thankful because I wouldn't be here spending time with my family & friend other wise. I had...

I also have pain in my legs. A few months ago it sent me to the ER. They checked for Blood clots everything was ok. My cardiologist was concern and felt like I was retaining a lot of fluid(they want put me on a duratic-whole nother issue) But she prescibed something that has helped some. They...

I was so glad that I went through Card. Rehab. Not only did it help me with my physical part of recovery but helped me with the mental part. In fact, I am 6 months out and I am still in the maintence program they offer...which has helped me feel a little more secure cause I started having some...

Thanks so much for sharing ! c terra

Sorry, I was just re-reading my last post ... I meant to say my EF is 59. Thanks again ! c terra

Thanks so much for your sugguestions so soon. The medicine was MethyIPREDNIsolone. And yes, I was only on one series of this medicine but didn't help at all. When my cardologist speaks of my echo being normal they often say the arotic valve looks good (by the way I have a cow valve) still have...

Hi there ! It's been awhile since I posted... but was wondering if anyone has experinced these symptoms after surgery ? I am about 5 months out from having BAV replacement surgery and then a week later having to have a mentronic pacemaker because of total heart block after the OHS. I gratuated...

I had this happen with my Aortic valve. All the test TEE, Echo, & Heart Cath showed moderate to moderate/severe. I was very symptomatic and had done polum. fun. test too. They decided to go ahead with the BAV replacemant. When the surgeron came out to speak with my husband after surgery he said...

I too had night sweat for about 4 months after surgery BVA. They were AWFUL ! My card. put me on Nitrogylen patch about a month ago and my night sweat or no longer. Don't know if it helped ....or it just happened. Was put on Nitro patch because of angenia. c terra

I had BAV replacement in Nov 2008 and I found out about a week after I had the valve problem that I also had limited scleroderma, which is a conective tissue diease. I too have Raynunds syndrome. c terra BVA Nov 5 2008 Metronic pacemaker - Nov 12, 2008 Total Heart block Mtiral vlave leaking -...

Thanks again for everyone's responses. I went to my Internist today and they took "a boat load" of blood from me. Said it should be at least 48 hours before they know anything. I hate that others have experienced these awful sweats but it is confronting to know you are not the only one. I do...

Thanks for the repleys. As I said earlier I've been taking Tylenol (extra strenght 1000mg) 3 times a day since about the 4 the day home from the hospital. The stuff in hospital (norna sp?) or what they sent home for me gave me horrible panic attacks. So I stopped that ! I have, not taken it for...

Have a question ? Any one experience hot sweat & cold sweat after BAV replacement ? Just wondering if anyone has experienced having hot sweats/cold sweats after having OHS (BAV).? I'm 8 weeks out from surgery. I was experiencing this some before surgery especially when I had platations.Which I...

pacemaker too ! pacemaker too ! I also had to have a pacemaker (medtronics) a week after my BAV replaced. I had total heart block and had several scary times while in the hospital before my pacemaker. Several times flat-lined which pretty much made a pacemaker the only way. It's been 8 weeks...

Eva, Glad your report was a good one ! I'm sure doctor's are diffierent. I had a echo at 4 weeks post (BAV) replacement(nov.5, 2008) and will have another at 4 months. Also, have had 3 pacemaker checks since having total heart block after (BAV) replacement surgery. As for the fluid problems I...

Welcome, Sheridan07 I'm also fairly new. I had BAV replaced Nov. 5, 2008. I had the same experience you had with the echo showing more serve stenosis & stiffing than the Heart carth.,& TEE. I was very symptomatic (the last month &1/2 before surgery was very difficult !!) My card. & surgeron...

Thanks for your concern. You know, either my cardologist nor my surgeon ever suggested the Mechanical valve. They both felt like the cow valve (I know there is a medical name for it)was the one best for me. Personally, I'm really sound sentive so I was kind of glad when they didn't cause I was...

Thanks for the suggestion. I can always use helpful hints on all this heart stuff. c terra bicuspid aortic valve replaced ....Nov. 5, 2008 pacemaker...total heart block ...Nov. 12, 2008 Mitral valve leakage ????