D
Diana
Hi,
I reached out to you a few weeks ago about my husband and now I am definitely in need for a second opinion in Birmingham and I am hopeful that some of you Alabamians can help me. You all gave me the name of surgeons before but I am in need of a really good cardiologist. Our doctor's nurse just gave us the wonderful news that my husband's heart is completley normal, no calcification, no stenosis, he is tricuspid, no aneurysm, with a normal EF of 74%. I really truly hope this is true but I cannot rest with that until we have someone else take a look just to be sure, as I am not quite sure I understand how several echos as a child reported heavy calcinosis with AS and bicuspid, one a month ago reported AS with a calcified nodule, his tech reported to us there was a leak with calcification, yet all of the sudden everything is normal, talk about miracles, but what about the SOB. Anyways I think I was ready to hear anything except for absolutely nothing is wrong, that is scary to me for some reason and so we cannot relax until we get a second opinion from the best within our reach.
I hope you can help.
Diana
********UPDATE********
Well I was in a panic when I wrote the above but I just heard back after a fuss and having his CT scan re-read tonight. (The doctor has been on vacation this whole time). He does have calcium on his heart, he does have stenosis, he does have an "abnormal" valve but..... his heart is in excellent shape for his condition, therefore there is no need for panic. We do need to have it followed up on and this is not the end of our problems, but we have time, and hopefully lots of it, and that is an answer I can totally fall asleep tonight and feel at peace about. We will still need a second opinion and we have to figure out where his shortness of breath is coming from but suddenly I do not feel the urgency about this as I was feeling a few hours ago.
The biggest thing I have learned today though is IF i had not taken the time to learn about this process, this disease, and get my hands on as much information as possible, I would not have known to get his CT scan re-read and would have tried to continue through life like nothing was wrong, which could have killed him. I am so thankful to you and this forum that you have that empowered me to have the confidence to understand what was going on and to question what does not make sense, you may have saved his life and I am so grateful.
Diana
I reached out to you a few weeks ago about my husband and now I am definitely in need for a second opinion in Birmingham and I am hopeful that some of you Alabamians can help me. You all gave me the name of surgeons before but I am in need of a really good cardiologist. Our doctor's nurse just gave us the wonderful news that my husband's heart is completley normal, no calcification, no stenosis, he is tricuspid, no aneurysm, with a normal EF of 74%. I really truly hope this is true but I cannot rest with that until we have someone else take a look just to be sure, as I am not quite sure I understand how several echos as a child reported heavy calcinosis with AS and bicuspid, one a month ago reported AS with a calcified nodule, his tech reported to us there was a leak with calcification, yet all of the sudden everything is normal, talk about miracles, but what about the SOB. Anyways I think I was ready to hear anything except for absolutely nothing is wrong, that is scary to me for some reason and so we cannot relax until we get a second opinion from the best within our reach.
I hope you can help.
Diana
********UPDATE********
Well I was in a panic when I wrote the above but I just heard back after a fuss and having his CT scan re-read tonight. (The doctor has been on vacation this whole time). He does have calcium on his heart, he does have stenosis, he does have an "abnormal" valve but..... his heart is in excellent shape for his condition, therefore there is no need for panic. We do need to have it followed up on and this is not the end of our problems, but we have time, and hopefully lots of it, and that is an answer I can totally fall asleep tonight and feel at peace about. We will still need a second opinion and we have to figure out where his shortness of breath is coming from but suddenly I do not feel the urgency about this as I was feeling a few hours ago.
The biggest thing I have learned today though is IF i had not taken the time to learn about this process, this disease, and get my hands on as much information as possible, I would not have known to get his CT scan re-read and would have tried to continue through life like nothing was wrong, which could have killed him. I am so thankful to you and this forum that you have that empowered me to have the confidence to understand what was going on and to question what does not make sense, you may have saved his life and I am so grateful.
Diana
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