6 Month Anniversary

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johnnycake23

Two-time AVR Vet
Joined
Nov 19, 2003
Messages
190
Location
Chicago
Hello. Today is the 6 month anniversary of my second go-round with the scalpel and I want to measure up my status with others who have gone through the same or similar procedures.

You read stories of people saying they had this or that replaced or repaired and that 2 or 3 or 4 weeks later they?ve never felt better in their lives. Well, this ain?t one of them stories.

It took awhile, months even, before I could get my stamina back to a respectable level. Only the last two months have I been able to join the gym and get back to working up a sweat in the workout room. I get sternum and incision discomfort on occasion, particulalry when I walk; I guess it?s still considered a fresh wound. I told cardio how sometimes I feel a pressure build up just under my sternum where the scar tissue is and he told me it?s called an abdominal hernia, a protrusion that I can just push back into place with my fingers; it?s common but it?s nothing heart related. I chew Tums to make it go away. And there is the occasional but reportedly harmless skipping beats that happen mostly with fatigue. So, do I feel like my old self or even better than before? Truthfully, no. My body feels like it?s been through a major trauma. Go figure.

The good news is the heart is doing great. I went to my cardio last week and he said my valve ?sounds like a normal valve.? Can?t get more of a ringing endorsement than that. And my vitals were right on the money too. So there is reason to cheer. If I could only get my sleep issues under control then I?d really be a happy camper.

I guess my point is for others who are about to get such a procedure done, if their recovery is slower than the look-at-me-after-just-two-weeks crowd, I say to them don?t get discouraged. Some recoveries are slower than others, like mine obviously is. It sucks, no doubt, but you?ll get over the hump ? eventually. I?m not trying to be a bummer, just giving another perspective.

Thanks to everyone for their words of support. I can hardly wait for the fall when I put the pads back on and get back to my hockey team.
 
Congratulations on your six-month anniversary and hooray for the good news about the condition of new heart with replacement valve.

You send a very important message to all here. Occasionally, one reads exuberant messages from folks who have been through this and have become extremely active very soon (something they sometimes regret later). Anyway, recovery times vary from individual to individual. From all that I have read here in past 3 years, I would say "bumps" like you're experiencing are not at all uncommon. It often takes a year or more to "fully" recover (in my humble, unscientific opinion).

Sounds like you are working out and getting there, and doing well in the really important ways. You will get to where you want to be.

Meanwhile, all should recognize that OHS is not a walk in the park. It is major trauma, and rehab should be gradual and measured. Yes, get into walking or other exercise, but listen to your body as you proceed...

Thanks for posting this, and best wishes as you head toward full recovery.
 
Congratulations on your six months! and thank you for this useful posting. You make a good point: "if their recovery is slower than the look-at-me-after-just-two-weeks crowd, I say to them don?t get discouraged."

At four months, I feel like I'm progressing steadily, still don't have day-long stamina, but haven't been pushing. Several weeks of rehab have made a difference, and I'm content with their pace.

It sounds to me like you're doing very well, but are are disappointed at altering your expectations? This isn't a competition. It just isn't.

Good luck on getting sleep under control. That will really help.
 
Good health to you on your six month anniversary! I see your second go was at Northwestern Memorial in Chicago with Dr. McGee. I am waiting for a consultation with Dr. McCarthy at Northwestern to review my aortic valve/ascending aortic aneurysm replacement soon. I'd be interested in what you thought of the hospital, nurses, cardiac program, etc. Any little tid-bit would help me with my anxiety. This would be my first heart related surgery.

All the success stories here do help first timers, like me. I thank everyone for sharing them.
 
My recovery also seems slower than the suggested possibility.

As I was starting to feel bummed, this thread reminded me that my
reality is not a competition.

Thanks.


***************what did one frog say to another?


"Times fun when your having flies!"
 
Johnnycake, While I am one of those who has been on here talking about my complete lack of pain (including while coughing and sneezing) and no bumps (so far anyway), at almost 6 weeks post op I certainly am in no shape to run a marathon anytime soon. In fact, just yesterday I went to lunch with my husband to a restaurant that is two steep flights of stairs up. I had to stop several times to get up all those stairs. I get a weird "weak" feeling in my heart when I do anything that is at all exerting. The thing that really gets me is that when I see people who know I have had surgery, they all are like, oh, you must be 100% now... your totally healed, right? Just because I look normal and am out there trying to do things that I would normally do does not mean I am "healed".

Everyone handles this major event differently, everyone heals at a different pace, and I agree, it definitely is not a race. If I had a choice, I would never, ever want to go through it again.

Keep working and you'll get there.

Kim
 
Congratulations on your six month anniversary. It sounds like the pace of your recovery and mine were similar. My body just wanted to take it's time, but it did finally fully recover. Best wishes on your continued recovery.
 
The thing that really gets me is that when I see people who know I have had surgery, they all are like, oh, you must be 100% now... your totally healed, right? Just because I look normal and am out there trying to do things that I would normally do does not mean I am "healed".

Kim, you're so right about that. Those people are like "surgery? YOU!?" It's hard for them to believe it because I'm right in front of them. Little did they know the hell I went through. Just because I'm here now doesn't mean it could easily not be that way.
 
It was a full year before I really felt back to normal, and even then, I still had post-surgery complications.
I look forward to your progress report when you hit the one year milestone.:)
 

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