EireCara
Well-known member
Hi there everyone, Well, I had my cardio app yesterday. I left home at 7.30am and got to Dublin about 9.50. I had to walk up a hill (very slowly) from the train station to the hospital, and I felt soo unwell. My heart was jumping around and I got a pain just below my sternum (iv had it a few times if I stand for a while in a queue or walking, but never had it this bad) I was gasping for breath and I truly thought my heart was going to burst, the pressure was so bad.
When I got to the hospital I had to wait over 2 hours to see the cardio, which is the norm here. The short version of this story is that he didnt seem to consider that any the ''new'' symptoms I told him about, which have developed since I saw him in Sep. were important. He is sticking to the plan he had for me in Sep which is to do an ablation. I asked for another echo, but he said there was no need, as I had one done in Sep and ''things would not change in 6 months, and if they didnt have such 'sensitive' machines they probably would have picked up on the moderate MV regurg''.
I had written out all my symptoms, for him, but he simply glanced at the sheet once, and never once touched it, just left it sitting exactly where I had place it on his desk...it was actually closer to me than him. In fact he was visibly ''not too please'' to see it.
This is a sample of some of the symptoms I had written,
TOP OF THE LIST: SOB...NEW
Pulsating/soreness in upper abdomen...NEW
Pulsating pain in my head and right ear...NEW
Pulsating/soreness above navel... NEW
Pain in right foot.
Pain/sorenes/fullness in chest... NEW
Exercise ability virtually nil.
Pain in chest on breathing in, especially bad in morning.
3 Episodes of arms going numb, strange feeling, and
once unable to think/speak.
Difficulty swallowing and hoarseness.
When I was very sob in Nov and had one of those ''funny episodes'' my gp sent me out to my local hospital where they said my o2 stats were low at 93% and upped my dilzem med from 90mg to 120mg....cardio yesterday said to drop my dilzem in half to 60mg because it might be causing my swallowing/hoarsness problem. In fact he spent more time talking about that than all of the other symptoms. I said I felt it had started when I took Amiodarone (cardarone) over a year ago, but he dismissed that immediately. (To be honest, my swallowing problem is the LEAST of my problems right now)
I asked him 'was the ablation a good idea, as I hadnt had any tachy (fast) heart rates in over a year. He said ''thats a very good question, if I cant instigate the tachy, then I wont be able to do the ablation, and we will then look elsewhere''. I should hear about the ablation in 6weeks or so...(in Sept he said I would have it done before Xmas).
He wasnt rude in any way, but I felt he had a 'plan' and he was sticking to it no matter what I said. I feel mentally and physically exhausted, and if we werent waiting for Thomas' ct scan (any minute) I think I would go to the er of my local hospital. I AM IN A LIVING HELL ....honestly....if I didnt have kids to consider...I would rather be dead.
I know theres no answer or solution to this mess. I just thought it was only fair to let you all know how things went, as you were so helpful in replying to me.
I tried.
When I got to the hospital I had to wait over 2 hours to see the cardio, which is the norm here. The short version of this story is that he didnt seem to consider that any the ''new'' symptoms I told him about, which have developed since I saw him in Sep. were important. He is sticking to the plan he had for me in Sep which is to do an ablation. I asked for another echo, but he said there was no need, as I had one done in Sep and ''things would not change in 6 months, and if they didnt have such 'sensitive' machines they probably would have picked up on the moderate MV regurg''.
I had written out all my symptoms, for him, but he simply glanced at the sheet once, and never once touched it, just left it sitting exactly where I had place it on his desk...it was actually closer to me than him. In fact he was visibly ''not too please'' to see it.
This is a sample of some of the symptoms I had written,
TOP OF THE LIST: SOB...NEW
Pulsating/soreness in upper abdomen...NEW
Pulsating pain in my head and right ear...NEW
Pulsating/soreness above navel... NEW
Pain in right foot.
Pain/sorenes/fullness in chest... NEW
Exercise ability virtually nil.
Pain in chest on breathing in, especially bad in morning.
3 Episodes of arms going numb, strange feeling, and
once unable to think/speak.
Difficulty swallowing and hoarseness.
When I was very sob in Nov and had one of those ''funny episodes'' my gp sent me out to my local hospital where they said my o2 stats were low at 93% and upped my dilzem med from 90mg to 120mg....cardio yesterday said to drop my dilzem in half to 60mg because it might be causing my swallowing/hoarsness problem. In fact he spent more time talking about that than all of the other symptoms. I said I felt it had started when I took Amiodarone (cardarone) over a year ago, but he dismissed that immediately. (To be honest, my swallowing problem is the LEAST of my problems right now)
I asked him 'was the ablation a good idea, as I hadnt had any tachy (fast) heart rates in over a year. He said ''thats a very good question, if I cant instigate the tachy, then I wont be able to do the ablation, and we will then look elsewhere''. I should hear about the ablation in 6weeks or so...(in Sept he said I would have it done before Xmas).
He wasnt rude in any way, but I felt he had a 'plan' and he was sticking to it no matter what I said. I feel mentally and physically exhausted, and if we werent waiting for Thomas' ct scan (any minute) I think I would go to the er of my local hospital. I AM IN A LIVING HELL ....honestly....if I didnt have kids to consider...I would rather be dead.
I know theres no answer or solution to this mess. I just thought it was only fair to let you all know how things went, as you were so helpful in replying to me.
I tried.
and decided to mend his ways.
