What do we mean by "help"?

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Dennis S

VR.org Supporter
Supporting Member
Joined
Jun 28, 2005
Messages
1,595
Location
Northern New Mexico
This thread came to mind as I read the following sentence which I have taken from another thread.

I]"Seems we all could benefit by staying on topic and only answering posts where you can help."[/I] (Emphasis added)

For sometime I have wanted to think through, and write, out what my friends on this board mean to me. In part, I want to take a few minutes to say a careful thank you to my friends on this board. I got started tonight because I strongly disagree with the sentence quoted above. These very words might have come from my mouth years ago. I now think that this attitude was wrong, and hurtful. I would like to explain why I have changed.

A big part of the problem is defining what is meant by the word "help". I think men (in particular) often fall into the mistake of believing that people describing some important problem are only "helped" if you can give them some factual advice, or a strategy for solving the particular matter at hand.

However, we are often hurt in ways where there is no immediate strategy or information that is going to solve the problem. When we find ourselves in these situations (and I think they happen to us all the time) what do we want from those who surround us and care for us? If you tell me that my cards, letters or expressions of hope/sympathy only distract you in the search for a solution-I think you inflict an additional hurt on both of us. And I think many men (not exclusively, but much more than women) do this to the people around them.

We all need to look at our own responses. Sometimes insisting that we confine the discussion to practical suggestions is really a message that the time I have allotted for you & your problem has expired & I intend to move on. But we are social creatures, and most of us can help/be helped by something as simple as listening-if we are fortunate to have friends willing to invest the time. Have you ever wanted your wife to come in to watch the replay of the athletic performance of some football player? I do this, even though I know she won't get the thrill I just did. I do it because I am a social creature. I would rather watch a basketball game in a crowded stadium than have the whole place to myself-because I am a social creature. There is some way in which the experience is enhanced by sharing with others.

And if I am afraid or confused, I will-of course-want solutions/strategy help. But if all you can do is sympathize, that will mean a great deal to me. I will always remember that it happened to be Karlynn who was the first responder to my first post. I don't remember what she said, but I will always remember that she took the time to respond. Now I am thrilled to see pictures of her-and everyone else’s-grandchildren. If you ask me why, all I can say is that I am a social creature. A pretty nice thing to be if you ask me. I would hate to have missed all the joys that have been shared on this board. And when the next really hard time comes-and it will come for all of us-the sympathies of my friends on the board will not distract me from a solution-they will give me the strength to continue, and to find joy in as many ways as possible.

It is hard to remember or think about it-but a time will come when there is no solution or strategy to solve the problem. But in that very hard time-I will take comfort in the presence of my friends.
 
Thanks for posting this, Dennis. It is so typical of the kind and thoughtful posts you have always made to this forum. Your words are always as beautiful as your pictures!:D
 
The reason I cried when I found this wonderful site, after living over 11 years without knowing anyone sharing my circumstances, was that I no longer felt alone. I've always had wonderfully supportive family and friends, but none had first-hand experience with walking in my shoes. In one fell swoop I had found a place where hundreds of people had been walking in my shoes.

Next week I have my annual echo. I always get a little anxious as the time draws near. I know that if the echo should turn up something new, I'll have a lot of shoulders here to lean on. I know that some of these shoulders will have welcome, concrete advise on how to procede, but the other shoulders, just offering words of encouragement and support will be just as important to me. And if the echo news is good, I'll be glad to have the "woo hoo!" posts too!:D

Thanks for the post heart-brother.
 
that statement just deterred me from posting in one of today's threads. I had nothing of experience to contribute, thought about that, and didn't post a 'thinking of you' or anything else. Wonder how many others are also deterred. I just wanted to let that poster know his post was recognized and acknowledged and appreciated.

I have posted in the past when I felt a post fell through the cracks and nobody posted. I would post and it would get picked up by members. We have sometimes had a new member come in and say "I posted and nobody answered".
 
hensylee said:
that statement just deterred me from posting in one of today's threads. I had nothing of experience to contribute, thought about that, and didn't post a 'thinking of you' or anything else. Wonder how many others are also deterred. I just wanted to let that poster know his post was recognized and acknowledged and appreciated.

This experience is exactly what I was concerned about, and what caused me to start this thread. We stand to lose something precious. You didn't ask for my advice-but I hope you will go back and make that post. I have every confidence it will have a valuable, and positive effect.
 
I agree with all that has been said, and have the same fears that Hensylee has, that staying totally on topic will erode the warmness of this site. I too have not posted to a couple of topics I would ordinarily have posted to, even though they had few answers.

I will stop that immediately, and if the moment strikes me and I want to support someone, then I'm going to. If they don't want to read it then that's OK.

We all get help in many ways, and emotional help should not be discarded as something "not relevant".

This is all very difficult medically and emotionally, and both forms of help apply.
 
Excellent thread!! I couldn't agree more! When I arrived a couple of months age I felt alone even though I had family and friends who were trying to help. It is so different when you can talk to people who are in the same boat as you or have been! If everything on here was just the facts then I probably wouldn't still be here. I feel a connection with everyone especially when it isn't just all facts. I consider everyone here a friend now and that would not be if all I was getting was statistics!

Thank you all for all you have done for me!! Thanks for the facts and most of all the caring comments!!
 
We don't post a lot, but we have learned much through our reading on this site! We have certainly picked up a lot of information, but the greatest thing we have learned here is that we are not alone. That has helped more that we can begin to express.

Mike
 
Dennis I love the warmth in your comments. It is so YOU! ;) Thanks for starting this thread. I agree with so much of what you said...

The quote you used (in bold) was most probably generated out of an individual's fear and impatience. Fear is a consuming thing and certainly breeds impatience. It can block out that light of humanity. You have to hope that such comments, when brought to this warm community, will be softened and illuminated. I applaud your expressions of what you understand it all to be about, and I hope that the rest of us can shrug off any negativity and remain welcoming.

Most of you well know......I took all of you with me to my surgery!! Mine was the image of being held up in a blanket with all your smiling faces around me. You carried me through it!! It is so genuinely comforting to be accepted into this wonderful mix of people. You made it happen for me. I was never skeptical or pessimistic, but I certainly had fears and questions. And the non-judemental support was so uplifting and strengthening. This group is always here for me. It just doesn't get any better than that when your family is scared or exhausted from thinking about it all.

We are each so different; yet we come here to exchange emotions and ideas and concerns and information. I think it's working marvelously well and if someone has some grievance it's important for them to stick their neck out and be heard.......gently! :) Because I think, in the end, that is what is most important...that we be gentle with each other (oh, forceful once in awhile when someone isn't taking care of themselves, of course!!). We're all already having kind of a rough time with things, ya know?! This place is such a respit from all those nagging feelings.

A million thanks to all of you........and now I'm curious so I'll go look it up.......who was "my" Karlynn (probably Karlynn!!) :D

Marguerite

P.S. ..... nope....... it was (((((((( Nancy )))))))) (hugs!)
 
I consider members here my friends. It is through the off topic extras that this has happened. I pledge to continue my notes of encouragement whether I know the answer to the poster's question or not.

We'd never have been able to participate in births, deaths, graduations, weddings, travels, and jokes if we always stuck to facts, would we. I would never have spent personal time with Bonnie - Lordy, I wouldn't have missed that day for the world. I wouldn't have gotten Ross' home address, I wouldn't have gotten comfort and scolding when needed. We wouldn't have seen New Mexico and Germany and Ireland, the animals we all love - and each other, in pictures. Nor the sex thread.

Thanks, Dennis, for setting me straight.
 
Dennis,

You have stated the case for caring beautifully. I completely agree.

I'll never forget that Mary started a thread for me wishing me the best as I was about to go in for my valve and root replacement. I was scared to death and it was so uplifting to receive those good wishes and prayers. In the weeks before that, I had received a lot of good information, particularly about valve choice, from vr.com members,and I deeply appreciated that as well. But nothing meant more to me than those simple statements that folks cared.

I hope no one will ever be deterred from writing simply to express support for another facing this life-altering event. That is real beauty of vr.com, even though it transmits a lot of helpful information as well.

Cheers,
 
Terrific Post

Terrific Post

Thanks Dennis for putting all that into words.

That is probably a real achievement for a guy to think that all out.

My wife will often say to me "Stop trying to fix it or sove the problem, I just want someone to listen to what the problem is. I might end up finding a solution myself if you just listen to my thinking". How true that thinking is.

I must thank all of the members who gave me their advice and support when I came to this site. I was suddenly confronted with valve surgery in 14 days with little or no time to gain the knowledge I felt I needed. The information was good, but I think the support I received was even better. In the day before my operation I can honestly say that I felt a real peace knowing that I had the thoughts and prayers of so many on my side and from here on things were in others hands.

Thanks again.

Chris:)
 
Nice thread. A few things come to my mind:

I'm not a particularly social creature most of the time but there is a special connection that I find a bit hard to define in connection with this group of warrior-survivors as we try to deal with these heart issues that we have in common and as we try to "encourage" or "help" each other. (But I'm not offended by what the other Valver posted about keeping to topic either; he evidently was in a frustrated position of trying unsuccessfully to research a particular issue. Sometimes I just want to read some facts and sometimes I just want some encouragement.)

I know one problem with my "regular" (i.e., non-Valver) friends is that they really don't understand what each of us here has faced or will face or continue to face. You know, the "You look fine; so you must be fine," mentality. Of course, I don't talk about my heart problems as a rule anyway. But another thing is that many who are less-educated regarding the issues we Valvers have faced and will face seem to think that our heart conditions are self-induced. Most valve issues are not self-induced.

Another thing: when nobody comments after I've posted on any particular thread, I often wonder if I said something wrong or worded things wrong. I feel better if somebody indicates that they have read my post. But occasionally we all must be the last to have a say on any particular thread.

I feel like I've received encouragement/support/help from this site and, to a degree, I sometimes feel a sense of obligation to offer the same back.

I especially appreciate that Hank established this site and I appreciate Ross taking care of all of us with his watchful eye. I think that Ross was the first one to greet me when I first posted;).

Now, off-topic: I'm hungry and I'm going to go have some dinner:p! Goodnight, Valve Buddies:D!
 
when I first came to VR, the format was really different - not anything like this VR. Postings were all in a row on the same page (like chatting) and if you posted, you had to scroll down to find the answer for yours. There weren't many members. I was new to computers and searching for answers for my bypass surgery - I didn't even belong in here but I didn't know it. I eventually got up courage to post something - every one seemed to be friends here, except me. There were fewer than 100 members. I don't recall if I even got an answer the first time I asked a question. Robthatsme answered a question I had about aspirin and then I felt sort of accepted. (Thanks, Rob, I'll never forget).

(This is off topic, but VR started via e-mails between six or eight members, evolved to the chat-like mode as described above and then Hank made a formal fancy site, then another and now this updated model. Somebody will correct me if this is not quite the order, but I doubt most of you know how VR began.)
 
Thanks for the history lesson Ann and thanks for being one of those members that has hung out all this time and contributed so much!:D
 
Finally a guy who uses

Finally a guy who uses

ALL of his brain!! :D Kidding guys!!! Thanks Dennis for your insight.

I agree with Karlynn - I have tried to leave the VR.com board at times, but am drawn back here - it is the ONLY place (usually) where I feel understood and when I don't, I let you all know!! ;)

Someone else recently posted on another thread something about leaving the board so they wouldn't think of their heart all the time - won't work!! Been there - done that!! I think most heart patients are going to think of their hearts a LOT, so might as well have some support from others in the same boat, right? It is GOOD for your heart to have social support and a way to "vent." Besides, there is so much positive on this board - we can see that there is most definitely "life" after open heart surgery. Most friends and family have already decided we are "terminal."

Christina L
 

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