Bicuspid Aortic Valve and possible future aortic dilatation

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BicuspidBuddy

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May 21, 2012
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Hi again. Does anyone have any data on the possible development of aneurysm/dilation in someone with BAV with severe asymptomatic stenosis needing repeat surgery for this problem alone?

Hubby is leaning toward mechanical because one and done is very appealing, but one and done may not be one and done, because as the cardio said to us, you can't change DNA. What does the science say about this likelihood of happening despite SAVR? (cardio said that SAVR or no SAVR would not make any difference in the development of possible future aneurysm/dilation)

We saw the cardiologist yesterday and we are preparing for surgery in the next 3 - 4 months after the coronary angiogram is done and to eventually meet the surgeon and discuss options. It's definitely sobering after watching and waiting for 22 years. But it's also sobering laying my head on his chest and listening to that incredibly loud systolic murmur that increases at late peak systole.

I just wanted to say, that I've read so many of your stories on this site. You are all heroes with great tenacity. I have so much admiration for all of you and thank you for sharing your wisdom, knowledge, experience and stories. 🤗

(Yesterday's report: aorta sinus 36 mm, aorta sinuses index 19 mm/m2, prox asc aorta 37 mm, Prosc asc aorta index 20 mm/m2 and normal is < or = to 19; I'm going to dig up his results from 20 years ago to see if it's stable or has been on the incline)
 

Lucker

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Jun 24, 2022
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Hello, thanks for your kind words. The statistics are all over the place, but with these dimensions at 60+ YO the aneurysm is rather unlikely, AFAIK.
 

tom in MO

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Jan 17, 2012
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Anyone can get an aneurysm in many places. People with BAV have a heightened risk, however I was told "don't worry be happy your BAV is fixed."

I do some isometric exercises (Charles Atlas ones) and the cardiac nurse said to always breath, don't hold my breath when exerting during exercise. She said this was due to my slightly higher risk of a aneurysm due to the connective tissue defects in BAV people.
 

Dano64

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Jan 3, 2022
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I don't have the data handy, but I did read some of those studies last year linking BAV with future ascending aneurysms, because that is what happened to me. My cardiologist did not warn me about that at all, so it surprised me. I think it is worth researching somewhat when making a decision. Best wishes on a successful future surgery!
 

Lucker

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Jun 24, 2022
Messages
66
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Russia
Anyone can get an aneurysm in many places. People with BAV have a heightened risk, however I was told "don't worry be happy your BAV is fixed."
That's true, Debakey himself had a dissecting aneurysm at 90+ and he most certainly hadn't BAV. But again, the dimensions now look reassuring.
 
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