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My 19 year old son Sam has just had his annual follow up following his AVR surgery in November 2012. I am pleased to say that his results are very good and according to his cardiologist, the valve is working perfectly ( medtronic freestyle tissue). I must admit to having been a little anxious...

Interesting discussion-My son had a Medtronic Freestyle tissue valve fitted in November of 2012 at the age of 18. There is no data on how long this valve will last him, as not many youngsters his age have them. He would have had a Ross, but he was not a good candidate as his pulmonary valve was...

Three weeks on and Sam is doing really well, he is healing nicely and every day feels better and stronger. He is back to college tomorrow for short sessions. He is walking well and looks so much better now!

Home 5 days post op!!!!! Home 5 days post op!!!!! Wow - On monday, the pacing wires came out and after an echo which showed all to be fine, the central line came out of Sam's neck. He had a good night Monday. The cardiologist came to see him on tuesday morning and after examining him, said he...

Hi everyone - no infection was discovered and his temperature became stable and he was transferred to the high dependency unit where he's made great progress. The drains were removed yesterday and most of the IV's. The good news is he is now on the regular care unit and is on oral pain killers...

Hi all and thanks again for your messages- Visited Sam this morning on ICU - he eventually woke at 9pm last night and they took him off the ventilator- He had a reasonably good night, but today his temperature is up and down and they are keeping him in ICU for now. They have run some blood...

Thank you for all your kind messages - I am pleased to say that everything has proceeded to plan and Sam went into surgery an hour ago. He was in high spirits without a care in the world due to that wonderful pre-med!!!!!!! Update later.

Well the day of our 18 year old son's surgery has arrived. He had been originally been lined up for a Ross Procedure given his age but closer examination has shown his Aorta is too large to accept his pulmonary valve satisfactorily so the decision has been made to go with a tissue valve. We are...

Been quiet of late but just an update. Met with Mr Shore, head cardiac surgeon at the Royal Brompton in London last week to discuss Sams' forthcoming surgery. It is expected he will have his operation in September or October. Mr Shore is of the opinion that Sam is a good candidate for the Ross...

Thank you all very much for your messages. It certainly lifts the spirits to read the experiences of others with similar conditions to Sam. We are just waiting now for his surgery date to be confirmed. Thanks again!

Hi all Havent been on for awhile but just an update. My son saw his cardiologist today. His pressure gradient across the valve has changed significantly from his last echo and his avs has tipped over from moderate to severe. As he has shown intermittent symptoms ie breathlessness on exertion etc...

Saw GP and he has written to the cardiologist recommending that my son gets seen sooner than his six monthly check up in March. I expect he will get seen in the next few weeks.

Hi all Been a quiet observer here for a while but just wanted some info. Our 17 year old son was diagnosed at birth with congenital Aortic Valve Stenosis. He has had annual check ups until early last year, when his echo picked up that his left ventricular diastolic dimension had increased...