Search results

Valve Replacement Forums

Help Support Valve Replacement Forums:

This site may earn a commission from merchant affiliate links, including eBay, Amazon, and others.
  1. DeuxofUs

    Back after a second opinion, different diagnosis. Grrr, tricuspid stenosis?!?!

    Thanks to all of you who suggested I go get a second opinion after getting "sketchy" readings from my first cardiologist. She had me at 1.6, then a year later down to 1.0 then back to 1.5 after telling me some BS that "sometimes measurements change due to overall experience with aortic valves"...
  2. DeuxofUs

    New "standards" of measuring heart valve openings... So now I am a 1.5 not 1.0!?!?

    New "standards" of measuring heart valve openings... So now I am a 1.5 not 1.0!?!? I go every 6 months to get my heart checked. So I have been holding steady at 1.0 aotic opening but now my cardio put me at a 1.5. Ok. um.... she said that the Heart Association gets together every so often and...
  3. DeuxofUs

    Elective surgery

    I have some elective surgery that I have been thinking about doing for myself and I am currently steady at 1.0, little regurg.... left ventricle is good.. etc... Do you think my cardio would give me the go ahead for something like this? It would be about 3 hours or so... Anyone else have...
  4. DeuxofUs

    Ejection Fraction??

    For some reason, my cardio tells me I have an EXCELLENT Ejection Fraction... last echo it was 69 now it's 68... Can someone explain to me (in dummy mode):D what this is? My echo yesterday showed NO abnormalities... no co-arction, aneurysms... etc. Just a calcified aortic valve.... They got a...
  5. DeuxofUs

    Weight loss after surgery?

    How many of you lost weight after surgery? If so, how much? Why, because of the stress, lack of appetite, shock to the body?
  6. DeuxofUs

    Echo next week - Why am I so nervous?

    I have my 6 month echo (since being told I have BAV) on Monday the 25th. I find myself growing anxious about this. I guess it's because there won't be any good news? I am (or maybe not now) at 1.0cm and I think I am symptomless...although there are times where I feel pain in my heart area but I...
  7. DeuxofUs

    What I have decided

    All, First of all, I would like to give a warm welcome to the new comers as I have noticed there have been quite a few. Welcome to a great site with great people. Second, I have decided to have my surgery early next year. My husband and I are going to Bora Bora Aug 2. I pushed my echo to July...
  8. DeuxofUs

    Tired of the anxiety

    It's been about 3 1/2 months that I have been living with my diagnosis. I am much more accepting now of my situation and thanks to this AMAZING forum, I am better off than I would be had I not found you guys. Reading about all the people post-surgery has helped me understand what I am up against...
  9. DeuxofUs

    To travel or not to travel, that is the question.

    All, I am struggling with a decision and it is keeping me awake at night. I have spoken with Dr Stelzer (one of the best in the country for the Ross Procedure) and he is in NYC. I REALLY liked him and he took time with me to answer all my questions. Plus, he has a good sense of humor. Kind of...
  10. DeuxofUs

    Question of timing of surgery.

    Hi all, I am curious.... I know I am at 1.0 right now and have dropped from 1.6 in one year. Ouch. I have a few questions though and wanted to get your opinions. 1. I swear I have some mild chest pains and they radiate to my back area. I can't tell if it's anxiety or my valve. Is it possible...
  11. DeuxofUs

    What was your initial reaction to your diagnosis?

    I think I am having a hard time processing my diagnosis. Don't get me wrong, I have accepted it but some days, I feel so depressed. Last night I just started crying and it's been since Feb 16th that I was told that I have BAV at 1.0. When the cardio told me, I went into some weird shock and...
  12. DeuxofUs

    More numbers from the cardio on my condition

    So, I went to the cardiologist a couple of days ago to ask many questions... I was too upset on my last visit. Ya think? Anyway, she is a cardiologist that doesn't wait for symptoms... she will watch my numbers very carefully and when they drop.. into the OR I go... I asked her what the rest...
  13. DeuxofUs

    Dr Paul Stelzer personally called me

    As some of you know, Dr Paul Stelzer at MountSanai in NYC is one (if not THE top surgeon for the Ross Procedure) To date he has done 485 of them. I must say, I was surprised by his call especially since I had sent him a message only the day before. He said "I just got out of surgery and...
  14. DeuxofUs

    Question ideas for my cardio tomorrow??

    Hi All, I see my cardio tomorrow since Feb 16th. I was too upset with my diagnosis and couldn't ask any questions. Now I feel more stable and was wondering if anyone could provide some ideas on questions to ask her. I am already going to ask her about my gradient and ejection numbers...
  15. DeuxofUs

    Random thoughts from a newly diagnosed

    I have some of the weirdest thoughts going through my head right now. Like, what about going up to high altitudes? 7K? I want to play in the snow. But the lack of oxygen up there... wouldn't that be a problem? What about flying in an airplane? The oxygen level is that of 8K feet... isn't that...
  16. DeuxofUs

    Newbie with Aortic Stenosis and terrified!

    Hi All, I am so glad I found this place! I was diagnosed last Wed with Bicuspid Aortic Stenosis. I feel like the world has stopped. For the record, I am 41 year old female. All my life I was told I had a heart murmur. I can't tell you how many doctors would say "do you know you have a...
Back
Top