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I wanted to thank everyone for all of the prayers and good thoughts for me. It's been a while since I posted, but I had my third open-heart surgery in March 2012 at the Cleveland Clinic in Ohio. I'm an adult congenital patient with Tetralogy of Fallot, and in 2009 I had my second OHS, with a...

Pls keep me in your thoughts. I'm having my 3rd ohs today. Will try to update when possible.

I've had complications from my previous OHS - it feels like they put the wrong one in me, I have ToF & an absent pulmonary valve and it's been problem after problem. My pediatric cardiologist is amazing, but the complex defect seems to be rare, so I'm going to see a specialist. I found out...

I had my 2nd OHS two years ago to replace my first mechanical valve (lasted 20 yrs, born with congenital heart defect). My first valve was great, I could hear the ticking but it feel much smoother. This new one has felt weird since I got it. It feels like it kicks and thumps hard in my chest...

Strangely (and luckily), for the 23 years I've been on Coumadin, I never thought about this...does anyone have experiences or have been told what to do if you are in a car accident? Last week, I was driving my mom's van on the freeway, and the rear tire blew out. The state trooper who came...

I haven't posted lately bc I've been sick. I am now seeing a pediatric cardiologist who works with adults (I was born with Tet. of Fallot and an absent pulmonary valve). I'm going in tomorrow for a right heart/ left heart cath. I had one done in the summer 2009 and they gave me the "twilight"...

I have been referred to a heart failure specialist, and he has ordered a CPX stress test. I'll be taking it tomorrow morning, and I'm a bit nervous about it. I had my 2nd OHS last Aug 2009, and the difference bw the first and second surgery is remarkable different. Granted, I was 14 when I had...

Question for adults who are living with congenital defects. I was born with Tetralogy of Fallot and an absent pulmonary valve. 1st OHS in 1988 (I was 14), fixed VSD and inserted St. Jude mech valve in pulmonic position. 21 yrs later, pulmonary stenosis, right ventricular hypertrophy, and the...

I had my 2nd OHS one year ago this week (I'm 36). They replaced my first mechanical St. Jude valve - inserted in 1988 - with an On-X one in the pulmonic position and corrected other issues related to my congenital defect, Tetralogy of Fallot. I took metoprolol for 3 months after the surgery...

I had a quick question for those who are further out from their OHS. I was born with Tetralogy of Fallot and an absent pulmonary valve. I'm 36 now, but at 14 I had my first OHS where they inserted a St. Jude mechanical valve and closed the VSD. Everything worked ok, but over the 21+ years, I had...