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Hi all, so my date is set. Feb 3rd will be OHS #2 and I will be undergoing valve-sparing aortic root replacement (David Procedure) and mitral valve repair. I'm doing well with everything and am very optimistic about how much better things will be when this is all said and done. I do have a...

Hi All, I hope everyone had a nice holiday weekend! I had quite the busy week last week and wanted to send out a quick update. I had my appointments with Dr. Dietz and Dr. Cameron last Tuesday over at Johns Hopkins Hospital. First off, I wanted to say that it was so refreshing to speak to such...

Hey everyone, My name is Nik and I'm a 28 year old from Royal Oak, MI. I was diagnosed with LDS (Loeys Dietz Syndrome) last year. For those that don't know, LDS is a connective tissue disorder that is similar to Marfans but found to be more aggressive/severe. I'm happy that I came across this...