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Hello all ... I breeze in and out ... I have coarctation , repaired age six,and bicuspid valve , not yet severe enough for surgery ... with beginnings of aotic small anerysm. Can't spell either...Have had quite an enormously stressful couple of years ( divorce,no need to say more !) Anyway , I...

I have recently had four bouts of fainting just after exercise . I have dots in my eyes then faint , out , not for long from what I can determine. I have surgically corrected coarctation , bicuspid valve etc . I have recently seen cardio and he is perfectly satisfied. I have in past suffered...

Hello all... I have not been on here for a while , have been busy with other matters in my life .I had cardiac surgery as a child and use this site based on my need , which in honesty is selfish but the truth !! I dip in and out from time to time and am very glad to be aware of every one's...

I had an MRI well over a year ago , after the event I sent a letter to the Adult Congenital Heart Cardio that I see. The letter was lost and resurfaced after all this time. Basically I had some questions .. They requested I have Mri , have them every four to five years, see cardio annually and...

I have been reading Woodbutcher's charity cycle post with interest and awe.. Well, it is easy to read about someone cycling 900 miles , goodness, actually doing it ?! Crumbs, I know I could not:eek: I have sponsored Woodbutcher .... Come on , all here , are you going to join me ?!! The British...

After 36 years of having congenital heart condition I finally realise that I would like to completely understand what everything means, so am hoping that some of you very knowledgeable people can explain a recent echo to me ! I have a copy of the letter the cardio sent to my g.p. I had...

I am wondering if anyone can help shed some light on anti hypertensive medication, please ? I have had coarctation repair in childhood. Coarctation patients can have a tendancy to develop high blood pressure, despite successful repair. I have mild recoarctation and am having my blood pressure...

Dear All, I am quite new to this site and I am interested to hear views/ experiences regarding...THE COLD.. I have BAV, had Coarctation repair in childhood . I am very sensitive to the cold, extreme !! Has always been the same, It doesn't matter if I am active in cold weather but guaranteed...

Hello all, I am relatively new to all of this, can any one shed any light on when, if ever ! it may be possible to replace valve with keyhole surgery ??? Thanks in advance for any information.

hello all, I am just wondering at people's general experiences. I have bicuspid valve and had coarctation repair in early childhood. I am monitored annually by cardilologist. I recently went along for a cardiac MRI AND MRA to evaluate the whole aortic area, I think. They also scanned my head...

Hello everyone, can any one tell me how many open heart operations a person can safely undergo in their lifetime ? Just thought this is interesting as I haev no idea ! thanks , bit of a chicken, bicuspid valve, not yet needing relpacement and coarctation, repaired !