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Hello all on here and thank you for all the comments on my original post . Alot has happened in that time , my mother , was rushed to hospital with fluid on her heart , that was drained off , then she was shocked eleven times, resusitated twice , a temp defib pacemaker was fitted then a...

Thanks for thoughts ... off to get a check over ! Am confident cannot be heart related , am moving house , it is so very cold and stress and singlehandedly looking after three children have, I am certain combined to leave me feeling like this .Trouble is, and here is to justify doctor's...

Hello all ... I breeze in and out ... I have coarctation , repaired age six,and bicuspid valve , not yet severe enough for surgery ... with beginnings of aotic small anerysm. Can't spell either...Have had quite an enormously stressful couple of years ( divorce,no need to say more !) Anyway , I...

Hi Lyn ! You are always so on the ball ...knew medically they refer to it as thoracotomy, just could not remeber it for a moment ! I have read the other replies , very interesting ... Yes, Alison , we are rare gems !! My cardio has told me that female patients are rare , the coarc is relatively...

By the way , I did ask my cardio and surgeon when the time comes for my avr , if they will cut into existing scar to replace avr , to this they did not actually reply as question was lost at time in something else they were discussing , out of interest, do you know if they plan to do that with u...

Hello Alison , I do not come on here often , but just happened to see your post . I had coarctation repair , in 1978 or 1979 , sometime then and yes , my scar goes under my left breast , and around to my back . It is quite faded now ( am now 37 ) still, not sure I would call it a beauty !! Ha ...

Thanks everyone ... much as I will feel a nuisance , am going to return to GP surgery ( avoiding the nice locum , this time ) . Nancy , had not thought about dangerous aspect , so seems sensible to go back. Am not on BP meds, and Lyn I eat loads !! Ha , want to sort this out , feel abit cross...

I have recently had four bouts of fainting just after exercise . I have dots in my eyes then faint , out , not for long from what I can determine. I have surgically corrected coarctation , bicuspid valve etc . I have recently seen cardio and he is perfectly satisfied. I have in past suffered...

Coarctation Aorta MRI imaging Coarctation Aorta MRI imaging I have Coarctation of the Aorta , which has been resectedand bav. I have five yearly MRIs with brain scan to check circle of willis for anersym. I have been advised by cardiologist that the BAV and coarctation apperently increase the...

Oh yeah ? Nice to know what get up to over there ?! The first two , well , no that probably not good for you , but last is at least exercise ?! Isn't that what the cardios are always suggesting !

Thanks Ross and Lyn ... I have now sent a letter and hope it will not be an age before I get a reply ! I am sure my cardiologist will give me the answers I want . I do not like the sound of the aortic dilation , but I suppose the MRI S that they send me for make sense and is reassurance that...

Thank you Lynlw and Bina ... Lyn , to answer your question , I have received a cc copy of a letter they have forwarded to my GP . I was not expecting a letter . I had dismissed the whole appointment/ consult as entirely positive. I still think it is ... The difficulty is , having been a cardiac...

Hey ??!! Ross... u trying to trash my easter !!!! That cannot be right , they certainly have not said that ? That is what makes me so cross about information exchanged to my GP and not explained to me ...It comes back to this heart being in my chest , and I fully expect to undertstand every...

Hello all... I have not been on here for a while , have been busy with other matters in my life .I had cardiac surgery as a child and use this site based on my need , which in honesty is selfish but the truth !! I dip in and out from time to time and am very glad to be aware of every one's...

Thank you , Maryka ! I currently do not feel excessively worried about my health presently , am very fit , active and happy . I am currently going through a divorce, seeking part time employment and house hunting and have three children ... All this has happily helped keep me in perspective...

Thanks Ross and Bob for the reply , I suppose my wonderings stem from the connective aspect .. I am thinking if all is good now surely it will remain that way ?? Anyway , Ross, I understand your observation about tissue possibly becoming weaker as we age. Feel very lucky to have two cardios...

I had an MRI well over a year ago , after the event I sent a letter to the Adult Congenital Heart Cardio that I see. The letter was lost and resurfaced after all this time. Basically I had some questions .. They requested I have Mri , have them every four to five years, see cardio annually and...

great piano playing ...love the energy !! I have not been on here much lately & this made me grin ! Thanks Lionheart

twinkle twinkle little star is safe , I hope ?!well. all nursey stories are morbid .. Hansel & Gretal, little red riding hood , etc, I had to hide our age old copy of rumplestitleskin /red riding hood etc ladybird classics from my daughter ... they all gave her nightmares... Except THree billy...

Wish I had not...joined this forum ??!! Where reading about post op recoveryand vent tubes makes me even more chicken.... Joking,there is more here to inspire really than terrify. Trouble is, for most of us we either eat too much, drink too much or for some have a puff, or may be recreational...