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Many of you may remember Wren (http://echobaby.blogspot.com) who had OHS in November. He was facing valve repair or replacement, Ross etc and we had many different opinions from cardiologists and surgeons about the way to go. A few weeks ago we had his 3 month follow up to the repair. The...

I found this article very informative. It gives guidelines for cardiologists in managing patients with BAV which is classified as a CHD. It also provides recommendations for valve replacement surgery thresholds and management of valve issues. You need to download the file which is in PDF...

Hi Thank you for remembering Wren (22mths) in his surgery tomorrow. We met with the PA today and apparently his case was fairly controversial. There was quite a bit of discussion before deciding whether to do a valve replacement, repair or even something drastic like a norwood (should the...

My son is 20 months old and has complex left-side heart defects: 1) Repaired hypoplastic aortic arch 2) Repaired coarctation of the aorta 3) BAV - mildly stenotic and slightly thickened leaflets 4) Stenosis below AND above the valve (critical level) 5) Parachute mitral valve, small side of...