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  1. MandyMV

    Saying Goodbye!

    I just wanted to say goodbye and thank you to all on this forum. I looked to this forum during one of the toughest times in my life for information and support during Ryan's battle with endocarditis/valve replacement. The people here are a wonderful support system and full of great information...
  2. MandyMV

    How old is too old?

    Hello Everyone, I got a call last night that my grandmother is in the hospital with early stages of CHF. She is 92 years old but very active and in relatively good health. She had trouble breathing this weekend and everyone finally convinced her to go to the ER where they admitted her...
  3. MandyMV

    Heart Pain?

    Hello Everyone, Ryan had his valve replacement over 1.5 years ago. He is still dealing with some PVCs that the doctor says is benign but as it bothers Ryan so much he is taking medicine to try to mitigate the uncomfortable feeling it gives him. He was switched from Atenolol to a calcium channel...
  4. MandyMV

    Fever-How high to warrant the ER?

    Hi everyone, Yesterday Ryan was having some tummy pains and then began feeling like he was getting a fever. He took his temperature and it was 99.5. We tested every couple of hours and it didn't go up and after a couple of Tylenol it went down to 97. He feels good today but it was our first...
  5. MandyMV

    Sleep & Stomach Issues

    Hello All, While I was enjoying the debates going on in heart talk, I wanted ask for advice on some ongoing issues Ryan has been facing since his surgery 11 months ago. He had MVR with a St. Jude's mechanical at the end of August 07 and since coming home from the hospital has had trouble...
  6. MandyMV

    What to do with INR 5.1?

    Ahhh the ever changing INR issues...thank goodness for this forum. Ok we just tested with our new home testing strips (we FINALLY got them) and after dripping blood all over the carpet his INR came up 5.1? So now that he has stopped bleeding and is cleaning the carpet I am calm enough to ask the...
  7. MandyMV

    Fretting over low INR

    Hi All, I am not sure the best place for this thread but I just need to vent so this seems like a good place. My BF has been using the INRratio home testing machine for the last month. His first reading was low 1.8, week two 2.5, week three 3.7 and now this week it was 1.7! He tests on Monday...
  8. MandyMV

    First At Home Test-Very Low INR

    Hi Gang, Well we just got our hemosense INRatio machine from Raytel thanks to the lovely folks at our Coumadin clinic. We watched the video and tried to get in touch with our Raytel trainer but something with the phone number is wacky. Anyway we couldn't help ourselves and we tried out a...
  9. MandyMV

    Help explaining symptom

    Hi Everyone, Last night my BF had another one of his episodes where as he is falling asleep his heart rate and Blood pressure spike and then he has a feeling of not being able to breathe. Usually he wakes up from it hyperventilating and then can not go to sleep again for a few hours. These...
  10. MandyMV

    Am I nuts to want Home testing?

    Hello, I just got off the phone with my boyfriend's case manager who told me that we didn't have a shot of getting approved for a home testing monitor because he is abled bodied and can get into the local clinic to have his lab drawn so they don't see any need. However, I have extensively read...
  11. MandyMV

    Questions to ask doctor

    Hello, This is my first post but I have been reading the forum since Aug 07 when my boyfriend suffered a stroke due to vegetation breaking off from his mitral valve from bacterial endocarditis that went undiagnosed for 9 months. The stroke luckily only resulted in a loss of vision in the right...
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