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  1. kfay

    AliveCor ECG for iPhone

    I use it on my finger tips. Do you have lotion on your hands that maybe is interfering? Do you have it attached to your phone, or do you keep it separately? If separate, you know it needs to be within a foot to record. Mine has read me as being in a-fib several times now. However, I know...
  2. kfay

    AliveCor ECG for iPhone

    I also bought an AliveCor several months ago. You actually can email your ecg's to your dr or anyone else. There is a little icon at the top of the page when you are in the history that lets you send them. I also was trying to catch an arrhythmia I was having and was successful at doing so...
  3. kfay

    17 year old with tricuspid regurgitation

    Alex, I take it from that letter that you do have Ebstein's. I would really encourage you and your parents to research your condition and understand it. Like I mentioned above, there is a surgery called the cone technique that is a repair of your tricuspid valve. If you qualify for it, it...
  4. kfay

    17 year old with tricuspid regurgitation

    Alex, have you been told your condition has a name? The most common (although it is rare) congenital problem with the tricuspid valve is Ebstein's Anomaly, which also has a pretty good likelihood of fast arrythmias. I have this condition and have had 2 surgeries since I was diagnosed at...
  5. kfay

    Teenager in severe status

    Anne, I had my surgery done at the Mayo in Rochester by a pediatric/adult congenital surgeon there named Dr. Joseph Dearani. He is awesome and really a fantastic surgeon. I know many other families who have taken their children to Dr. D and they all rave about him as much as I do. You can't...
  6. kfay

    Second post op report

    Paleogirl, Sorry to hear about your stomach issues. You might want to ask your GI dr when you see him if it could possibly be your gallbladder. There have been several of us who unexpectedly developed gallbladder problems soon after this surgery. I fell into that boat. I was positive I was...
  7. kfay

    Palpitations and migraines following surgery

    I had a history of rhythm problems before surgery and still have them afterwards. In my case, they just go hand in hand with my congenital heart disease. It's common for people to experience some rhythm issues right after surgery and as the heart heals and remodels itself, but you shouldn't...
  8. kfay

    CEM/Holters Covered By Insurance?

    Hey Jim, good to see you again! Holter monitors are typically only worn for either 24 or 48 hours, while king of hearts, or event monitors can be worn for a month. I've worn them both for a couple dozen times, and my insurance always pays for them. There is a new monitor, called a Zio I...
  9. kfay

    Ross Young

    I'm so very sorry to hear of Ross' passing. He fought so hard for so many years to stay alive. I hope he has finally found peace and can rest. Thank you Ross for helping Hank with this forum for so many years to help make it what it has become. I know it helped me when time came for surgery...
  10. kfay

    Hi

    Lyn, so glad you came back around although I'm sorry for the circumstances. I know I speak for many when I say we miss you and your never ending wisdom about so many heart related issues. I understand if this just isn't the place for you at this time, but know that we are always happy to...
  11. kfay

    What happens after you leave hospital ?

    I traveled out of town for my surgery, so I saw my local cardio the first week I got back home (2 weeks post op).
  12. kfay

    Ladies - clothing question please

    I was able to wear a t-shirt within a week or so, I wore one home from the hospital. Getting my arms up to put it on was no problem for me.
  13. kfay

    Tissue valve deterioration - signs, symptoms, etc.

    My cardiologist told me that they will know (from echo's and exercise stress test) long before I will be able to tell, that my valve is starting to fail. She then showed me on my tests the numbers that were important to watch. The valves can either become more stenotic, or more regrug. I was...
  14. kfay

    Cholectstectomy and aspirin

    I had my gallbladder removed about 2 years after I had my valve replaced with a pig valve. They will make you stop the aspirin, but don't worry about it. I can't take aspirin and haven't for the 5.5 years I've had my pig valve. My surgeon and cardio are both okay with me not taking it. The...
  15. kfay

    Tonsilectomy

    Why are they telling you to go off of the gabapentin for this surgery? I've taken that drug for years as a preventive for migraine headaches and have had many surgeries while taking it, including my last heart surgery and back surgery just 3 weeks ago. Never has been brought up that I need to...
  16. kfay

    Best hospital in the united state

    What is your CHD? As a female who also has a CHD, there is a HUGE difference in the care and knowledge from a "general" cardio to one who is trained in taking care of adults with CHD. Cleveland Clinic is obviously a very good hospital, however, it is NOT known for it's ACHD program. I...
  17. kfay

    Side and tummy sleeper....how long after surgery will i be on my back??

    I slept on my side while still in the hospital once they pulled my chest tubes (about day 7, I had a fluid problem that required me to keep them in longer than usual). When I got home, I still slept on my side and within a couple of days was sleeping on my stomach for at least part of the...
  18. kfay

    PVC's???? Whats the real info??? Im at a loss and need help!

    Jay, after my last heart surgery, I started having pac's (in the atrium vs ventricle, but same feeling, I have them both) at the rate of 25-30,000 a day, between 1/4 to 1/3 of every beat of my heart. They drove me insane, not to mention made me feel like crap. Even at that high number, they...
  19. kfay

    Second tricuspid valve OP

    There are very few people on here who have had any work done on their tricuspid valves, much less had them replaced. I had mine replaced 5 years ago with a porcine valve at the age of 45. I've never heard about the size of your heart being an issue with clots, but rather, putting a mechanical...
  20. kfay

    Very sore chest. Looking for similar issues

    I had something similar to what you are describing about 2 years post op. One spot on the lower right side of the sternum itself became extremely sore, sometimes unbearably so. I was diagnosed with Costochondritis and after a shot of cortisone into that space, it resolved fairly quickly. From...
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