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So it has been a long time since I have been here but I know that you guys know it all. Caleb had a skin expander suck in his leg 2.5 weeks ago. He is still bleeding out of the incision. His INR is a bit high (3.7) at on Monday. He is off of Lovenox and at last check his platelets were at...

Caleb is scheduled to have a birthmark removed on August 6, today the called and said that he will be admitted a week early. Does this seem extreme? What have you expirenced?

Well today Caleb's valve turns 1 today! We just had a check up with the cardiologist and all he can say is that things are "OK". The pressure on the mitral valve is the highest that they would like to see and there is some regurg. Also his aortic valve is being pushed pretty hard. They are going...

Caleb is sick again! This time we can't get his fever to go away. His fever started around noon today and progressively has gotten worse. I know that this is going to throw off his INR but I'm waiting until morning to check where that has gone. We called the on call cardiologist when Tylenol...

Wow! I cannot believe how fast your INR can change when you are sick. Caleb came down with a fever and vomiting on Monday and on Tuesday I called the coumadin clinic that watches his INR, they wanted to me to check him, His INR was 7.1! I also took him in to his pc and he has strep. This is the...

Caleb is having two teeth extracted in March. The dentist originally said to stop taking coumadin for three day before the appointment, but I said that wasn't an option. Now is saying she will do it with him on coumadin. Is this normal I'm a little nervous about the drastic change in opinion...

When do you say you sould go in and get checked out? Caleb just fell out the our swimming pool and landed on his head (I know how?!). I think that he is ok but I'm still worried. At his last check his INR was low at 2.0. I'm just not sure, he is walking and talking fine pupils look fine and only...

Just thought that I would let you know that I'm thinking of you tonight! I know surgery is just two days away. I'm praying for a very sucessful surgery and quick recovery! Stay strong and brave! Surgery (the hard part) will be done in just 48 hours from now. Jamie and Caleb (the bravest boy...

Why is it that a dentist thinks that they can get off telling me that Caleb won't need pre-med because they don't think that they will be close to the gum line???? Is it so hard to just call it in? I can't believe that they are even suggesting that he doesn't need this. Needless to say after...

While we were leaving the hospital with Caleb one the residents mentioned that the Cardioloigist would talk to us about his Coarctation of the Aorta. Now I realize that maybe this isn't anyone's specialty but has anyone heard of this being found after a valve replacement? They also kept talking...

Thank you so much for all of the support! Sorry for not posting sooner but, we did make it home late yesterday. They have no idea what caused all of this pain. This whole coumidin thing SUCKS! Maybe I shouldn't say it's the coumidin, but the blood draws and the clinic that we have to work...

Medtronic HP not a St. Jude was put in. I'm very confused. The surgeon said at pre-op that the only valve that they use is the St. Jude, and this morning I hear this, I guess I don't mind but I was never told of this before. My only requirement was that it wouldn't have a recall on it!:D I...

:D Sorry I didn't get another update last night but I was exhausted! Caleb finally came up stairs at 7:59 pm and we got to see him at 8:45. He looked wonderful (all things considered). There was a little bit of swelling, but that wasn't all to bad. The chest is closed!!! On the x-ray you could...

Today we went through Caleb's pre-op and we are going in tomorrow morning. Caleb's inner calm has escaped him and he is a very sad boy:( . I'm having a harder time with this, but I know that it is very important that I hold myself together. I really just want to have a really good cry! This...

Well, Caleb's surgery is one week away and he seems healthy!:D This to me is very exciting, we have never actually had a surgery on our first scheduled date. It's amazing by what excites me. Caleb even woke up this morning and said "Mom I feel great today!" This is different than the last few...

So I've been thinking about this for sometime now and I'm wondering is it something that I should get for Caleb? Does anyone have one? Where is the best place to get one? My Dr. office an order form for one but I wasn't sure if there is a better place. Thanks for your help Jamie

Well I finally started it. There is not much there but I've started. www.caringbridge.org/visit/calebrustad Jamie

Well, lets just say mom is tired! Everyone is sick and we have only 17 days to get healthy. Why is it when someone you know asks what kind of surgery Caleb is having, and you say Mitral valve replacement. Their come back is "Oh, it's only a valve replacement." If one more person says that to me...

Hello I'm here because Keegansmom02 sent me here from baby center. Although they are wonderful and all, I'm finding that this might be a great fit for my situation. See my 5 year old son will be having his mitral valve replaced on the 17 of May. (not that it has ever happened on the first try...