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  1. Perry

    I've decided on the OnX...

    What is the target INR for the OnX testing - anyone? Perry
  2. Perry

    Ross Procedure or Mechanical Valve for 29yo?

    Great call - run with it. Best of luck and health. I wholly agree with the suggestion to have a plan "b" - the docs will get thier best view during surgery and things could change.
  3. Perry

    Aortic Valve Replacement - How long until you can stress the heart

    There is some risk of messing up the surgeon's handi-work if you go to hard to early. But everyone's recovery is different - different capabilities post-op. From what I remember - the instructions were for me to walk about as much as I could without overdoing it (use the breathing toy too)...
  4. Perry

    Ross Procedure or Mechanical Valve for 29yo?

    I struggled with the choices as I looked ahead to my aortic valve replacement. I settled on a Ross Procedure. I even specified that I wanted a manufactured tissue valve to go in the PV position and not the usual homograft. I knew that the final call on the Ross would be made during the...
  5. Perry

    Anybody know anything about the double-switch Ross Procedure?

    My younger son had the Ross-Konno when he was 5 months old - Dr. Jonas was at Boston Children's then (2000 - we travelled there) and is now at Childrens in Wash. DC. His donor pulm. valve was apparently from a small women. Due to the valve size primarily (becoming restrictive to flow), we...
  6. Perry

    Surgery in 2 days - Wish I had found this site sooner

    Mark, Best of luck for a smooth recovery. There are lots of great tips on this site, but the experience is a little different for everybody. I wouldn't knock myself out reading just before going in. March in there and get it fixed. Don't be late because the surgeon is likely scheduled for...
  7. Perry

    I need to make a choice soon

    geckley - I sent you a PM. Dr. Cameron was a proponent of the St. Jude in general when I first started seeing him - you can't go wrong with St. Jude. Are you getting two valves? I missed that part. I'm pretty sure I have read of On-x valves in the mitral position (on this site) but the 'what...
  8. Perry

    I need to make a choice soon

    This is a very personal and somewhat emotional decision that most of us have been forced to make. If you haven't been through this you just can't know. I am being reminded of when a real estate agent knocks on your door and starts referring to your 'home sweet home' as a house or property - a...
  9. Perry

    I need to make a choice soon

    My INR target with my On-x is 2 to 3. I was told that with the SJM valve it would 2.5 to 3.5. That played into my decision and I doubt that the On-x folks picked a lower INR for marketing reasons. If you have evidence to the contrary - please have your lawyer contact me. I am an Engineer and...
  10. Perry

    I need to make a choice soon

    I first met with Dr. Cameron in late 2005 to discuss my options for AV replacement. I think he had a St. Jude valve that I could handle and a tissue valve in lucite paperweight (correct me if I am wrong). Pretty freaky. When you are talking about what should be a valve for life, the St. Jude...
  11. Perry

    Valve Decision - Mechanical or Tissue

    Johnny, A little background: I had what turned out to be a leaky bicuspid aortic valve that slowly deteriorated in funtion over 5+ years. This site was very helpful. My informed choices became 1) Ross Procedeure 2)On-x valve 3) tissue (can't recall which). That's kinda how I broke it down...
  12. Perry

    14+ months and counting

    18 months ago...... 18 months ago...... Great news Robert! I've been off of the website for a while. I had OHS on 3/8/2006, back to work nearly two months later (could have been quicker) and a new job offer two weeks after that. I have not been on the computer nearly as much as before...
  13. Perry

    Confession

    I am 4 months out from receiving my ON-X aortic valve. I don't use a heart monitor so my info lacks numbers.....At 6 weeks the surgeon told me I could jog and it took me just less than one month to be able to cover my 5:00 a.m., <2 mile, hills included jog with the dog that I do before work. I...
  14. Perry

    New Surgeon and Finally a Surgery Date

    Leah, Sounds like you 've done some great planning and have lots of support. Best of luck and I hope your recovery will be easy. I brought our huge Lazy Boy recliner to another bedroom and went back and forth for only a couple nights. I could lay in bed and sleep with little discomfort, but...
  15. Perry

    They're torturing me!

    Sorry to hear - but they are really screwing with your mind. At one month out mine was delayed two days and I was pissed about that. On the bright side, to them your operation is so routine they may not realize what you are going through. Is that a bright side? I don't know but I hope it helps.
  16. Perry

    I'm NEW... in more ways than one!

    Welcome to the other side. I received my ON-X mechanical 3 months ago. I agree with the spirometer use entirely. It seemed that on recovery days that I felt sickly I could not do much with the spirometer. When I felt good I had good numbers with it. I don't know which was cause or effect...
  17. Perry

    On-X valve?

    My ON-X was installed on 3/8/2006. I felt/feel the design of the ON-X is very comprehensive. The manufacturer attempted to improve the typical mechanical valve design in several areas. Some of those areas, along with the material itself, have lead to the reduced anticoagulation study now...
  18. Perry

    Need advice!

    Adamsmom, I can relate since I was in for 6 days and 6 nights (I am 42 though). Perhaps some of these suggestions have been made......but justy in case: I think normal clothes help (as normal as tubes and IVs will allow). Easy to get off and on shorts and/or sweatpants, a comfy button shirt...
  19. Perry

    Questions about types of valves

    A day in life on Coumadin. I have been home for 2.5 months. I got my level checked daily when I first got home (a home nurse came by and took blood). That gave everyone an idea about my needed dosage. I just got tested Wednesday for the first time in three weeks. INR was slightly low - I...
  20. Perry

    Questions about types of valves

    Welcome Jetfixer, I started my research in November 2005 and had a mechanical (ON-X) installed in March. You are probably right that if you pick a St Jude you won't have to worry about it again. That is primarily why I chose mechanical over tissue (though the Ross Procedure was my real #1...
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