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  1. Gloria Mundi

    New member; Alarmed at decreasing EF %

    Thanks for this thought; I'm open to all of them especially now that I've seen how different the views were from two cardiologists in the same practice! When I was first diagnosed 2.5 years ago I had a calcium scan and the score was 1. It hasn't been repeated. I also had a treadmill stress...
  2. Gloria Mundi

    New member; Alarmed at decreasing EF %

    Thanks to the people who nudged me to get a second opinion. I saw another guy today- same practice but more interested in intervention. Since my main symptom is breathlessness on exertion he wants to do an exercise echocardiogram to see what happens with the valves when I'm active. If that...
  3. Gloria Mundi

    New member; Alarmed at decreasing EF %

    Well, I could change my mind in the next 12 months. :-) I don't feel as great a sense of urgency, though. My cardiologist's approach of "wait and watch" has worked so far. Funny thing- when I thought about how to find a good person for a second opinion I realized my 3 primary sources were...
  4. Gloria Mundi

    High Altitude

    I wanted to add to this even though it's been thoroughly covered already and my MVP isn't severe enough to treat yet (cardiologist just said that yesterday). I was in Cusco and Macchu Picchu in May. Back before I had symptoms (March, 2020) I was in Bolivia and did notice myself breathing...
  5. Gloria Mundi

    New member; Alarmed at decreasing EF %

    I didn't ask- I'd seen that description on one of my prior reports and looked up what it meant- it can be classified as severe" if there are symptoms. Well, yes, I've had this breathlessness (dyspnea) on exertion for 2+ years so it's definitely symptomatic.
  6. Gloria Mundi

    New member; Alarmed at decreasing EF %

    A long time ago my late husband and I "discovered" Cadenhead's, on the main drag in Edinburgh. They sell name-brand whiskies, dumped straight from the cask, into the bottle, not mixed even within the same malting, no coloring, no filtering. You can't get them in the US. They also have a shop...
  7. Gloria Mundi

    New member; Alarmed at decreasing EF %

    Well, THAT was a non-event. He repeated what I'd seen here and elsewhere- EF is subjective. Everything is stable, including left ventricle size/function. Nothing to see here, you're doing great at exercise, keeping weight normal, healthy BP, etc. Come back in a year. I don't regret going...
  8. Gloria Mundi

    New member; Alarmed at decreasing EF %

    Thanks- that article is really helpful. I could make myself a nervous wreck by going back over my results and looking at left ventricle measurements and function, but I won't. I know they first found cardiomegaly on a breast MRI in 2021 and I do remember the echo reports mentioning areas that...
  9. Gloria Mundi

    New member; Alarmed at decreasing EF %

    Thanks! I know I'm collecting more anecdotes than data (and the plural of anecdotes is not data :) ) but they're helping me shape my questions for tomorrow's visit. these posts have also shown me how many people have been managing MVP from a relatively young age and the "Active Lifestyle" Board...
  10. Gloria Mundi

    Resting HR post-AVR surgery

    A little OT but it's good to find kindred spirits. Sounds like something I would do before heart surgery but to a lesser extent since I'm almost 71. I'm glad to have found this group.
  11. Gloria Mundi

    New member; Alarmed at decreasing EF %

    Thanks- this is reassuring. I also talked to my priest this morning- I knew he hard heart issues. He's 74, had a heart attack and was diagnosed with T2 diabetes 20 years ago and had valve repair- basically a collar around it, no replacement. His EF is 45% and he goes to the gym every day and...
  12. Gloria Mundi

    New member; Alarmed at decreasing EF %

    Thanks-I know there's no cookbook answer to this. I'm gathering information and anecdotes because that's about all I can do. I've been diligent about regular monitoring and because I'm a special kind of hypochondriac, I keep tabs on my resting heart rate (under 60), heart rate range during...
  13. Gloria Mundi

    New member; Alarmed at decreasing EF %

    Good afternoon (at least in my time zone). I was diagnosed with mitral valve prolapse and an enlarged heart in mid-2021, at age 68. Main symptom was shortness of breath on exertion, especially walking or bicycling uphill. LDL on the high side but not alarming, not on medications, calcium...
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