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  1. PhillyJohn

    Marijuana and Blood Thinners/Mechanical Valve

    As a purely anecdotal report, I consume marijuana regularly via a vape pen / cartridge, and it has not seemed to have any negative effects beyond some munchie-related weight gain. I do not notice any INR changes, and my cardiologist hasn't expressed concerns.
  2. PhillyJohn

    Traveling after surgery?

    Sorry for the late reply! I'm probably no longer a good barometer for this question -- I experienced some relatively serious complications from my surgery which required a second surgery in January (just like Bill Clinton!). Even so, I probably could've managed to travel in February, but I...
  3. PhillyJohn

    More lancet talk (Coaguchek Sofclix)

    I really prefer using the softclix device - other ones bruised the heck out of me for some reason, and are just less convenient to carry around. I finally found replacement coaguchek lancets on a Canadian site...
  4. PhillyJohn

    Saying hi - 41 year old with BAV and surgery "soon"

    After 8 days in the hospital, I’m finally home resting. I had a bit of a bumpy landing - my first night in the Step Down ward, something caused a precipitous drop in my hemoglobin levels which required a couple of emergency blood infusions. Pretty scary. Once they got me full of blood I...
  5. PhillyJohn

    Saying hi - 41 year old with BAV and surgery "soon"

    Hello from the other side. Pretty groggy but feeling good with the exception of if $$&! drain time tube. Thought you’d all get a kick of seeing the tattoo the surgeon had to cut through
  6. PhillyJohn

    Saying hi - 41 year old with BAV and surgery "soon"

    Thanks for everyone's comments here. Heading into my surgery tomorrow morning bright and early. See y'all on the other side.
  7. PhillyJohn

    I will have my aortic valve replaced with a mechanical valve next week

    Sorry to hear about the complications, but glad to see you on the other side. I've got a date with my valve tomorrow morning!
  8. PhillyJohn

    I will have my aortic valve replaced with a mechanical valve next week

    I’m a week behind you - I’m 41 with a BAV (but apparently no other complications), and am having my mechanical valve installed on Nov 29. I can honestly say if not for this forum, I would be frankly freaking out, but reading all the stories here has calmed me down considerably. If you’d like to...
  9. PhillyJohn

    Traveling after surgery?

    It's actually the other way around! My symptoms got a bit worse, so decided to move the surgery sooner - from March of next year to Nov of this year.
  10. PhillyJohn

    Traveling after surgery?

    The word from the surgery was: given my age and overall health, it's likely that I'll by physically ok for the trip. Meaning the flight, etc. However, whether it's actually a good idea to go or not will depend on whether my INR has stabilized to a point where we feel confident that something...
  11. PhillyJohn

    Traveling after surgery?

    I was originally scheduled for replacement of a bicuspid aortic valve in March 2024, but moved the surgery up to Nov ‘23 (next month). I’ve got a previously-scheduled trip at the end of Feb ‘24. Obviously I’ll speak with my surgeon and doctors, but I’m curious if any of you have experience...
  12. PhillyJohn

    Saying hi - 41 year old with BAV and surgery "soon"

    I'm not huge either - 5'7" but pretty "broad" at 185lbs. My surgeon specifically said he sees issues with smaller women specifically - but I didn't press that point too hard since it apparently didn't apply to me. I suspect after reading a little about the "top hat" valve that the size issue has...
  13. PhillyJohn

    Saying hi - 41 year old with BAV and surgery "soon"

    To that point, if my surgeon had suggested a St Jude's, I'd have been cool with that too. I don't plan on messing around with the lower INR guidelines of the OnX, although it was mentioned as a benefit. I didn't feel strongly between the two.
  14. PhillyJohn

    Saying hi - 41 year old with BAV and surgery "soon"

    One interesting thing about my meeting - I expected, based on most of the threads here, to get some pushback when I asked about INR self-management, but my surgeon said that their practice strongly encourages self-management after the first few months. So maybe the tide is changing in that regard.
  15. PhillyJohn

    Saying hi - 41 year old with BAV and surgery "soon"

    The short answer as to why I'm personally choosing that is because my surgeon recommended it, and I'm choosing to limit the number of decisions I'm making to some degree. But I did ask him why he recommended it over other valves in the first place, and if not for this forum (and mostly you, to...
  16. PhillyJohn

    Saying hi - 41 year old with BAV and surgery "soon"

    Thanks for everyone's kind words on this post. Almost immediately after posting this my symptoms got somewhat worse, so I met with my surgeon today. I've scheduled my valve replacement (with an On-X valve) for Nov 29th. I felt pretty well informed going into the discussion with my surgeon...
  17. PhillyJohn

    mechanical or tissue valve and an active lifestyle?

    There's a new-ish documentary about Arnold on Netflix right now, and there's a brief scene about his first OHS. Apparently there was some complication, and they had to immediately bring him back into surgery when he woke up from the initial anesthesia. He doesn't go into details about the...
  18. PhillyJohn

    Had no idea

    I haven’t yet had my replacement, but just want to let you know that you’re not alone in feeling the way that you do. I’m 41 with a 5 year old daughter, and my initial reaction was exactly the same as yours. Most of the folks here will (likely correctly!) say not to worry too much - but you...
  19. PhillyJohn

    Had no idea

    Hello fellow hockey player! I’m getting a mechanical sometime in the next few months. I’m curious - do you think you’ll still play hockey once you’re in the Warfarin club? I’m leaning towards playing occasionally, but at a much lower / less competitive level. (Feel free to DM me if you’d prefer)
  20. PhillyJohn

    Saying hi - 41 year old with BAV and surgery "soon"

    Sorry for the late reply -- my symptoms are just some shortness of breath at times, and I've been told that I am not yet in the "severe" category. My valve is "not stenotic, but sclerotic" - so, things aren't awesome, but from what I understand I still have a bit of runway. I don't intend to...
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