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Thanks a lot. This forum has been very helpful.

My son had a successful bicuspid aortic valve repair at Boston Children's Hospital. We will forever be in debt of Dr Pedro DelNido for his surgical skills. My son now has "proper" tricuspid aortic value. He now has 2 native cusps and 1 cusp made using his own pericardial tissue (using...

Thanks Duffey

How is life with a mechanical valve ? I understand the need to take daily blood thinners to maintain INR numbers. What are the other restrictions ? Are there some foods / diets which should be avoided ?

Thanks Greg and all others for your perspective. We have now scheduled OH surgery for my son at Boston children's. The surgeon will first try aortic valve repair / reconstruction. For our case, this most likely means doing a partial (one leaflet) or full (all three leaflet) Ozaki procedure. The...

The pediatric cardiothoracic surgeon, at Boston Children's Hospital, we are considering is recommending aortic valve repair or reconstruction. Does reconstruction always mean replacement of the valve ? Is the Boston hospital a good place to consider ?

Thanks cldlhd for the very informative links.

After reading quite a few articles and published literature it seems to me that Ross procedure - even if successful, might not last as long in kids as a prosthetic valve - introduces a problem with an additional valve - might lead to other problems like aneurysms down the line Because of these...

My son is now stable for his condition if we greatly restrict his physical activity. There is a very wide blood pressure gradient and he somehow does not complain about physical strain. Doctor confirmed that he does need surgery and the question now is "when" instead of "if". Given his age the...

Thanks all, for your support. We are planning to meet our regular Cardiologist tomorrow and will come back for any follow up questions / advice. After the first couple of days of denial it has finally struck me that this is going to be a very long term ordeal especially for my son.

My son was diagnosed with bicuspid Aortic valve when he was 3 months old. We have been monitoring his condition and lead a mostly worry free life till 2 months back when our Cardiologist said that my son now has severe aortic valve stenosis. He recommended getting a balloon...