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Hmmm, really enjoying people talking about all this, its a lot of good personal experiences and makes me feel less alone. here I am in my 6th week post surgery and I don't feel like the wires hurt at all. the sutures are poking out of the skin a little, so there is that. The sutures are annoying...

Glad to hear you made it home! Good luck with a quick recovery.

I am sure it does have something to do with the Marfan. From what I understood from the post surgical report, the removed aortic tissue showed a lot of wear and tear. Kind of like rusty pipes or something. Soooo, we will try and keep my blood pressure from getting too high while exercising. The...

I don't know much about BAV, I had a repair for Marfan Syndrome at the Cleveland Clinic last month. Great Doctors and a really good experience overall; however, the 7-10 hour drive back home to New York would have been a nightmare but my parents (from the other side of Ohio) came with us to help...

Sorry I forgot the cardiologist recommendations. for my case I believe I remember him saying 60% of estimated max ((220-32)*0.6 = 112) But I think he also said something like 130bpm max too, which would be more like 70%. Perhaps the most telling piece of advice I got was not to "strain" myself...

I thought i wold pipe up since I have some recent info on max HR recommendations. My cardiologist pre-surgery was looking for % of max, I believe he might have mentioned keeping it <100beats per minute at one point too. Then again, due to a TON of stresses in my life my aortic root dialated...