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  1. Z

    Weird feelings

    So I had my second heart op back in 2016 to replace my RV-PA conduit, my pulmonary valve with a homograft and my aortic valve with a mehanical carbomedics aortic valve. I've been fine since then apart from having these weird mental moments where I experience dejavu/weird 'oh I've dreamt that...
  2. Z

    Hospital refuse to prescribe me any Coaguchek XS Strips

    So here in the UK, a tub of 24 testing strips costs around £64 without VAT. With a prescription, I can buy these for £8.65. I recently asked for another prescription, 3 months after my last and they said they won't be prescribing any for me because I already have enough. I have told the clinic...
  3. Z

    Slight increases in INR, two main culprits?

    So I've begun to consume a lot more 100% natural peanut butter and almond milk. I've read that Vitamin E is a natural blood thinner. Two weeks on and this has increased my INR from 2.5 to 2.9. Not a dangerous increase, still within range, but interesting nonetheless. Do you guys think the...
  4. Z

    One year since surgery

    I'm 3 days away from a whole year since my re-do surgery on the 7th of April last year. I honestly cannot believe how quick it has come around. It feels like yesterday that I was in hospital. #1 year with my mechanical Carbomedics valve, pulmonary homograft and RV-PA conduit. Mouthful... :-)...
  5. Z

    Can exercise wear out my homograft?

    I recently had surgery last year which replaced my aortic root and aortic valve with a mechanical composite valve/root and I also had my original pulmonary homograft/conduit replaced with another one. Can exercise wear out tissue valves quicker? Thanks!
  6. Z

    warfarin dose issues

    I was out travelling today and noticed I didn't have the correct dosage with me for warfarin. My normal dose is 6mg on the weekends and 5mg during the weekdays. I decided to take 6mg today as I only had the packet for 3mg doses today and will decide to take 4mg tomorrow and continue with 5mg...
  7. Z

    how to adjust warfarin dose

    My normal dose is 5mg mon to fri and 6mg on the weekends. I'm out travelling today and only took a 3mg dose box with me. I was wondering if It would balance out if I took 6mg today and took 4mg tomorrow and continued with 5mg after that as normal. Pellicle, if you're reading this, I'd...
  8. Z

    how to adjust warfarin dose

    My normal dose is 5mg mon to fri and 6mg on the weekends. I'm out travelling today and only took a 3mg dose box with me. I was wondering if It would balance out if I took 6mg today and took 4mg tomorrow and continued with 5mg after that as normal. Pellicle, if you're reading this, I'd...
  9. Z

    Nightmares after surgery

    Hi guys, I am now 3 months post op, and have been having nightmares such as my surgeon telling me we need to operate again as my valve is leaking or that my valve is making a lot of noise(Pretty dumb dreams, which feel terribly real in the moment). Has anyone experienced anything similar after...
  10. Z

    warfarin advice

    It's day two of using warfarin whilst at home, and ill be having an inr check today at the hospital. I wanted to ask you experienced people a couple of questions about warfarin, after all, who better to ask than the very people who take warfarin! 1) does breakfast have to be taken at the same...
  11. Z

    Date for surgery

    Found out yesterday that my surgery date will be on the 7th of April, admittance on the 6th. Doesn't leave me with much time. Out with the old pulmonary conduit, aortic valve and aortic root, and in with the new :). How did you guys cope/prepare a few weeks before your surgery? Is there...
  12. Z

    Second heart surgery; nervous

    Hi Guys, I'm on a waiting list on the NHS in the UK for my second cardiac operation, which may happen in March/April of this year. I was born with Aortic Stenosis and underwent a Ross procedure at the age of 8. I am now 23 and my aortic valve is severely leaking and my aortic root is dilated...
  13. Z

    Warfarin and buffets

    I was born with aortic stenosis, and had my aortic valve replaced when I was 8, in 2001 through a ross procedure. Now I am 22, and have been told my aorta has dilated to 4.9cm, i have moderate pulmonary valve disease, and my aortic valve is suffering from significant leakage, although I am...
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