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Hi Jkm7, I've not been offered anything... :( I have been taking Glucosamine Sulphate 1500MG, However my wife has been visiting a private physio who was telling her about various things, of which the physio said for GS, you need to be taking at least 2000MG daily for it to do any good. So I've...

Well I'm no further forward. Went to my GP who said she did not know of anything to make good or better my jerking situation, so a bit stuck.

Bit of an up-date. My GP sent me off to the local hospital for some tests at a 'Nerve conduction/EMG clinic' what ever that means. I thought they would work towards sorting the situation out, however the woman connected up some wires to my legs and gave me electric shocks, then told me that my...

I'm possibly having issues with my medication after surgery with jerking in my legs at night. Lets start with a little medical history: I have Marfan Syndrome and Scoliosis. 1997 Aortic route and valve replacement. 2008 Endocarditis 2014 September...

Paleogirl. I'm based on the Herefordshire border with Gloucestershire (UK). I need my electrical gadgets as I'm self employed running an on line sales company (just my wife and I), so did not want hassles with any 'jobsworth' with the electrical gadgets. I got a local company to test the bits...

Shaving. I too agree this is a good idea, however my admission ion letter specifically mentioned **not** to shave due to infection risk. With shaving there is a risk of breaking the skin which could allow infection in. Though I do have a beard trimmer that I'm going to use on my arms as they...

Forgot to say, I'm in the UK

For some hospitals they like electrical equipment brought in to their sites to have been tested for electrical safety, otherwise known as 'portable appliance testing' (PAT). Whilst in hospital a few years back for Endocarditis using my laptop had a night nurse (otherwise known as a jobsworth)...

Palegirl, you are correct, it is the registrars that I have been seeing, its very difficult to actually see the top man. The whole thing depresses me very much, even trying to see my GP is nigh on impossible. My local GP surgery has various GP's who need more experience and stop relying on...

Thanks for your reply. Good advice, however every time I've attended the clinic, I get a different consultant and they don't seem very consistent with advice, plus it can take month and months to see anyone, hence asking here first.

I first had surgery 15+ years a go to replace my aortic valve and route which had swollen to over 75mm (due to Marfan Syndrome). At that time I was put on some sort of Beta Blockers (BB) which knocked me out, so was sleeping around 18+ hours a day. Obviously this was way too much, especially as...

Regarding the point about 'milking' the finger, I've had a terrible job getting large enough samples for strip testing on my CoaguChek XS, that I do have to milk my finger to get the blood out. I'm using the largest lancet and even modified it slightly to plunge deeper. I'm now getting...

Well after some wild readings with my original Coaguchek meter, it was replaced. The first reading with my new meter was exactly the same as the clinic, yipee :) However... I'm losing faith in my new one as I've never achieved the same reading again as the clinic, even doing finger pricks side...

I have spoken to Tal Golesworthy, very nice guy and only lives 20 miles away! If you google 'Tal Golesworthy' you'll find lots of information and if you also do a search on youtube, there's a number of videos of him on there. Its a shame I didn't know about this 20 years a go, it would have...

I was just about to do my own post when I saw this thread. BTW I'm in the UK I purchased my CoaguChek-XS last November from Roche, so I would have thought it would be 'spot on' (aka accurate). A few mornings a go I had a blood sample taken by hypodermic syringe to take to the INR clinic, the...

I think he was being careful on what he was saying (I suspect he may have had the same sort of hostile conversion as I had with HQ), but happy to prescribe the test strips on the NHS (not free, but reduced cost).

I'm not going to try and convert the 'guy' as he's clearly on his own mission. Where as my GP is on my side as he's prescribed the test strips, so get them at a reduced cost. My GP did warn me that I would be dropped of all responsibility by the INR masters if I took the route I have. I have...

I've just been to view the videos, however there seems to be an error as I'm unable to view or get a link for 'Part 1'. For others, the links are as follows; Anticoagulation Preview http://www.discoveryfitandhealth.com/tv-shows/specials/videos/anticoagulation-anticoagulation-preview.htm...

I've not seen this in any FAQ, so... I do sometimes struggle to get a large enough blood sample to carry out a successful test before the tester times out. Is the test strip useless if the tester times out, or if I switch the tester off before the test window time is complete? Can I re-use the...

The head of my local INR clinic is very anti home/self testing, and discovered I now have my own CoaguChek XS and basically ripped in to me about their accuracy and seems to pour scour on anyone else using them and their methods (inc hospitals not under his control). This manager wants me to...