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I should probably start another thread, but I'm just curious about life insurance with a BAV? How much more are premiums? Does anyone know? Or have issues getting a policy because BAV? I have a large policy through work, but i fear it is not portable.

It's certainly interesting to think about. I saw an article on Google scholar recently opining that the actual prevalence may be understated given that some "bicuspid" valves can look very tricuspid or be almost impossible to tell from true bicuspid valves? That goes back to my original...

I agree Paleogirl. I do not know. One thought is that it is hard to know you have it unless it's not working or you otherwise suspect it (runs in your family, it's an incidental finding). It's not something I ever bring up to others. It's funny you say that though. I actually did meet another...

Also, I agree with you on the websites. Some make it sound like surgery will happen eventually, but I've heard here that only less than half fall into that category. I also get confused with the 2% prevalence everyone sites. Since it seems one can have BAV aorta issues and yet have a 3...

Hi, Henry! I rarely post, but I'm kind of in the same boat. My BAV was diagnosed incidentally at the end of my last pregnancy. My oldest daughter has it as well, and she has no issues. I was supposed to have other tests to confirm because (like you) nobody looked at ascending aorta. My root...

That's so cool!

Meant to add. My daughter is 27 months. My younger daughter is 7 weeks! :) You can fine my old post I'm sure.

Hi Glen, I am pretty new around here. I don't have anywhere near the knowledge of most of these fine people, but i just wanted to let you know that I also have a small child with BAV. That is the reason I found the forum! :) Anyway typical story....her pediatrician found a murmur. Luckily our...

Yes! I am nervous about the test. I am just an anxious person about meds. I don't take anything unless necessary. It took me years just to take ibuprofen! I am always scared of reactions even though I haven't had anything bad happen. I should not have read up about it online. There are some...

Saw the new cardiologist today. He felt that there was no need for another echo until next year. His opinion was that given the "probable" bicuspid valve notation and sclerosis, we should just assume it's bicuspid. With that being said he ordered a CT of my aorta (next week) as a baseline...

Thank you AZDon. I will definitely ask about the ascending aorta. I don't think they measured it with the first echo because they were not looking for BAV. I imagine they will take a look with the TEE. I will make sure I ask. I am thankful for the suggestion from this site to get copies of...

Thanks for the replies. I guess I just figure odds are pretty good I have BAV. My daughter has it, and I have sclerosis of that valve ( I'm only 33)...plus it says probable BAV on the report. I can't imagine it's not BAV. I agree the root measurement is fine, but i don't think theu checked the...

Okay. Maybe I have been thinking about this too much. I know there really isn't anything you can tell me but I am anxiously awaiting my next appointment. I made an appointment with a new cardiologist for next week. I just can't get comfortable with my current referral given that he wasn't even...

So I think my root size us normal...2.7? Does the root enlarge and dissect In Some people? Or id it another part that dissects?? Does it only enlarge if the valve is bad? I am also concerned about the noted sclerosis. It doesn't say anything about the degree....but is that like...

Have no clue what this means but like I said I will be having the TEE (hope I got that right!) in November. Hope I'll know more then.

Thanks guys! I actually requested a copy of my echo and received it today. Every category is normal. Here are some measurements: Ao root 2.7 La dim 3.20 La/Ao 1.19 IV .98 LTD .81 LOL 4.47 LIDS 3.34 Don't know what that means other than aortic root! No regurgitation in any valves. All are...

Recently I've had an issue with skipped heartbeats. I really didn't think much about it because I have noticed them all my life. My pediatrician noticed a murmur when I was younger but basically labled it benign. When I was about 19 the PVC's really picked up. I saw a cardio at that point who...

Roller Coasters? Well that stinks. I have always loved those! Kristen - I am so glad your son is doing well. I hope and pray that my daughter's course is more mild and doesn't need intervention until later. Our cardiologist said he thought she wouldn't have issues (if any) until 30s or 40s, but...

You are all so kind to share your stories! If I only had what I read on the internet, I think I would still be very depressed about this diagnosis. I go between being thankful it's not something worse, to still being terribly upset with all the possibilities. I just have to keep reminding myself...

Interesting stories you guys have. It drives me nuts thinking about the possibilities. My husband feels it's no different than anything else, that life is inherently uncertain....and that something you worry about your whole life may not ultimately be of any consequence. He is right. And yet, it...