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My son was born with BaV and CoA (Coarctation of the Aorta). He had his CoA fixed by simply removing the narrow part and piecing the good ends together. After the surgery, it could renarrow after a certain period of time, but never did. He is all clear from that aspect. He is going on 4 years...

Hopefully things will work out. I know from all my talks with the docs, they have noted several times that they cannot really determine when, they just know the where. That does not mean any predictions based on experience are any less relevant. It just means it's not an exact science just yet...

Thanks! We sure are happy that everything is going great *knocks on wood* We are coming up on our yearly checkup this December to follow his BaV progress. I think this will still be a bit scary for us, but hopefully after this one, we will come to understand that these yearly checkups are...

Welcome! Well, I think you came to the right place for information and support. Many members have been through the same or similar thing that you have or about to take on. I faced a similar issue with everything being new to me in relation to my new born son. At only 11 days old, he was being...

My son's doctor is an all around ped cardiologist. He discovered my sons CoA and BAV when others overlooked it. Therefore, we assume he is knowledgeable in his defects. He also recommended one the best ped cardo surgeons in the state who specializes in those repairs. Lets not forget he was from...

Figured I would toss an update on my son. A few months ago, my son had his 2 year checkup. His CoA repair looks great and his BAV has not changed, just turbulent blood flow that was noted as normal for most BAV patients due to the design of the bicuspid. So, this is the point when renarrowing...

I think most of the questions have been answered, so I'll toss out some advice of mine from my son who is going on 20 months with BAV and COA. Our doctors have pretty much said what everyone else is saying in this thread. Don't worry about it, this is a very common, a long healthy life is...

My son was diagnosed at 10 weeks old with BAV. He was also diagnosed with COA. My wife and I have no history of heart conditions nor have one. Random fluke? I hope so, but I wouldn't put too much thought on your daughter passing it on. Life is good, and BAV is far from a condition you should...

My son was diagnosed at 10 days old and had his operation shortly after to address a narrowing of his aorta (CoA). His BAV is not a problem right now, but we are watching it as everyone else. Since then, echo's have been pretty easy on him thus far, but of course that may change as he gets older...

Don't feel bad about not finding out much information after the diagnoses. I was in a similar boat when our 10 day old son was diagnosed with CoA (narrowing of the aorta) and BAV. They didn't explain much other than what his CoA was and didn't really explain what BAV would be later in life. We...

My son's echo was great yesterday. No signs of scaring from the surgery or narrowing on his aorta. His BAV also looks great and the turbulence in his valve actually went down. So, everything is looking great on his 3 months. Now, we just wait another 3 months to hit that 6 month mark to ensure...

I think he was just referring to the general BAV symptoms now. So, maybe I was just looking too much into what he said. "The design of the valve is such to allow non-turbulent, or laminar, flow across the aortic valve and into the aorta. In the case of a bicuspid aortic valve, there is...

My son is having his 3-month echo this Wednesday to follow up on his CoA repair and BAV progression. The last echo was good. His surgery to repair his CoA looks great and no signs of the aorta renarrowing. His BAV on the other hand, seems to have some slight tightness and what our card...

My son is only 3 months old and he was discovered to have CoA and BAV at 10 days old. He had his CoA repaired the following days at UNC Children's Hospital. This is where they went in through his side, cut out the narrow part of his aorta and I guess tied the loose ends up. However, there is...

This. My son has BAV and he is almost 3 months old. Although he is not at the stage of repair or replacement, we have already discussed options just in case. The procedure you mentioned is also something we discussed because if I'm not mistaken, taking the pulm valve is the recommended...

My son had his at UNC, but that's a different set of surgeons of course in terms of PED. Duke I hear is top ranking over UNC for heart treatment, but I'm sure both are good.

If Stenosis is narrowing of the valve, why wouldn't they just stick a balloon in the valve to widen it back up as opposed to watching it? I've always wondered that in terms of replacement to that procedure. I was told my son could do the balloon procedure right off the bat if needed. I assume...

This was not any of those local hospitals. It was something else, I would almost say it was a Christan Hospital or Practice that specializes in heart surgeries and repairs. They claimed to have the best and do the most surgeries in North Carolina. I dono if that's just talk, but if you can find...

This is similar to my son's CoA (coarctation of the aorta) who also has BaV. One of the conditions is high blood pressure because coarctation refers to basically stenosis, but more specifically to the aorta. It's narrowing and causing the high blood pressure from what I was explained. Even...

I don't have any issues with my valves, but my 1-month year old son has CoA (narrowing of the aorta) and BAV (bicuspid aortic valve) that was diagnosed at 10 days old. He was diagnosed by WakeMed and moved to UNC Children's Hospital where he had his surgery performed by one awesome surgeon that...